Home > Ailments > Lewy Body Disease > Lewy Body Disease Q&A > Comments to advice needed regarding these symptoms
Comments to advice needed regarding these symptomsPosted By Connie (Slc, Ut) on 04/29/2011
I have found that B-12 has relieved nearly every pain for me, from head to toe. It has taken a lot of time, though, and I may have some permanent nerve damage from a long time deficiency, I've read, but I'm hopeful. So I urge you to either get your levels tested, if you have good medical care, or consider trying it for yourself. Good results may take 1-6 mnths. to manifest. I began my first month with 5000 -10,000 mcgs. daily, and then reduced to 1000-5000mcg. afterwards. I'm at 2500 mcg. Now, and I'll continue to observe results. I take a sublingual methylcobalamin because it absorbs into my blood more easily. I also take a good B-complex. Good Wishes.
Replied by Robyn (Melbourne, Australia) on 05/03/2011
Replied by Michelle (Cambridge, Cambs / Uk) on 05/03/2011
Replied by Robyn (Melbourne, Australia) on 05/03/2011
Replied by Robyn (Melbourne, Australia) on 05/03/2011
Replied by Spiritmom (Fayetteville, Ar Usa ) on 05/03/2011
Replied by Gavin (Manganui, Northland, New Zealand) on 05/04/2011
Replied by Merryanne (Orange City, Florida, Usa) on 05/04/2011
Replied by Michelle (Cambridge, Cambs / Uk) on 05/04/2011
I will try to post the advice Ted gave me, after I check with him, when he is better.
I'm appalled you are not being properly treated for this. Go to a site called Mary o/ cushings, and join all the hundreds of people sharing their symptoms and treatments, and how to get treated to start with! So many doctors cannot understand this illness, and you can find sympathetic and knowledgable doctors who treat it, through this site. Your muscles are wasting away, this is just one of the horrible effects of a NFT, (non functioning tumour ), you will be feeling depressed, and isolated. All side effects as well. I know it is difficult to motivate a body so achingly weak, but you have to stop the disease before it gets any worse and things become harder to do.
You have to get correctly diagnosed by a sympathetic doctor, as the different tumours require different treatments. Then Teds protocols will keep the interloper at bay. Please e-mail directly if you want, and I will talk to you about my ongoing treatment. Michelle
Replied by Michelle (Cambridgec, Cambs / Uk) on 05/04/2011
I have to have blood tests every few months now, and I have to inject myself daily with growth hormone, because due to the tumour, I lost my muscle mass. It is now beginning to come back, but it takes a long time. I still can't walk very far, but I feel so much better in myself, and can take some interest in things again. Each of us who has an endo system failure, manifests many different symptoms, all unpleasant. We deal with each one as they come up, which is why you need to get the correct help as soon as possible, and with Ted's help, get on the road to recovery, from this life threatening disease. God bless, Michelle.
Replied by Bill (San Fernando, San Fernando, Philippines) on 05/05/2011
If the pituitary gland is insufficient, then it will have widespread effects. You lack energy because you are probably hypothyroid as well as hypo-adrenal(Addison's Disease). Your thyroid controls your metabolic rate as well as bone formation by releasing calconin and the parathyroid hormone dissolves bone calcium into the blood. This should be in balance. With loss of pituitary function, and consequent depression of the thyroid, excess bone or calcium is being removed and released into the blood. This is what is causing your calcium build up and artery problems.
Bone formation is promoted by calconin from the thyroid -- which also promotes release of osteocalcin hormone from the bone. From recent research it has been found that osteocalcin also promotes the secretion of insulin from the pancreas as well as reducing insulin receptor resistance in the body. So if the pituitary is insufficient, then the thyroid will be insufficient, so bone building is not promoted together with insufficient osteocalcin and insulin -- which can lead to diabetes as well as osteoporosis.
The reason I'm describing these effects is to show how complex this pituitary hormonal problem is and to show some of the effects and relationships arising from just a depressed or insufficient pituitary gland.
The reason for the cyst on your pituitary gland is very likely because of excess fluoride and an excess build-up of calcium over the years. The best way to get rid of calcium from your body is to use a clacium chelating agents like EDTA or MSM or DMSO or Vitamin C(high dose) with magnesium. This will help to reduce the pain in the tissues, reduce the brain calcification in dementia, improve the fibro and address all the other excess calcium issues in the blood. Ted's alkalizing remedies will also help here.
Secondly, fluoride can be removed using borax(see the borax cures section on EC) or high dose lugol's iodine(2 - 4 drops/day of 5% lugols). Really, the only thing you can do is to try and resolve and reduce the root cause of the cyst problem by removing the excess calcium and the fluoride from your body and particularly from your brain.
Your cyst/tumor is probably growing on the anterior(front) part of the pituitary because this region governs the thyroid, adrenals etc. But there is another danger here -- because if your cyst/tumor is also growing underneath the pituitary, then this can result in pressure on the optic nerve from the cyst as it grows. If you also have blurred or double vision, than this is confirmation of this problem which can normally corrected by an operation.
Therefore, above all, you must have a proper diagnosis from your doctor. Don't just ask for a specialist diagnosis -- INSIST ON IT. And don't take no for an answer. Find a proper endocrinologist who knows his business. Ordinary GP's wont have a clue about such a complex pituitary problem.
Replied by Robyn (Melbourne, Australia) on 05/06/2011
Ive been doing the borax and everything on here except the alkalisation - makes me severely ill & increases pain to unbearable levels. Because the aneurysm is so small I got myself a liver profile - doesnt look good, says stage 1 is ramped up way too high, stage 2 is too low and too slow. I guess that is why I am so allergic I cant go into a building. When I google my liver profile it says stage 1 makes minorly toxic material into very toxic even carconigenic and then stage 2 not working to carry it out of my body. So that gives some explanation as to why I pass out if I come into contact with another human being that has deodorant on or washed their hair in shampoo. Still, I have to get all this ca out of my arteries. Does excess ca lying in your tissues cause severe pain?
Replied by Bill (San Fernando, San Fernando, Philippines) on 05/07/2011
https://www.earthclinic.com/supplements/calcium.html#CSE
And the reason you are unable to take alkalizing is perhaps because of all the calcium in your blood anyway. I would suggest that you start taking 500 mgs magnesium citrate or magnesium gluconate twice day. Take this for a week then, if you start getting loose stools, cut back to 250mgs magnesium twice a day. This should greatly improve your calcium balance as well as reduce the tissue pain. By regulating and promoting the bone enzyme, osteocalcin, this will also have positive effects on your pancreas(as I described in my last post to you).
Since you have a problem with your liver and kidneys, I would also advise that you take some sort of protein enzyme to help clear the trash from your blood. Enzymes formulations such as those containing pancreatin, bromelain, papain, serrapeptase and nattokinase will help you tremendously here. This will help clear blockages in arteries and veins, are anti-inflammatory, help reduce pain, help to fight pathogens and should also help to reduce and clear your aneurysim problem. Take these enzymes outside mealtimes -- you want them absorbed and working in your blood and not used for food digestion.
The other fairly critical problem you have is you liver and kidneys -- which are insufficient in doing their job of clearing the trash from your blood. There are several options here. First and perhaps easiest is to just take 1000 mgs of Chanca Piedra three times a day at mealtimes. CP is a diuretic that will gently help to clear your blood of trash safely. CP is also highly protective for the liver, intestines and kidneys and will also help to lower blood pressure and blood sugar levels. Containdications for CP are that you must be careful or at least consult your doctor if you are already taking heart meds, blood pressure meds or diuretics now.
The reason you have so many allergies is because your liver cannot deal with the allergens and toxins in the blood properly. My extended explanation, which will help you understand the problem better, is here:
https://www.earthclinic.com/cures/allergies6.html#LIVER
The above link provides a more complete therapy for your liver. If you do this therapy, ensure that you drink plenty of water as well as take mineral supplements as well -- due to its diuretic effect.
Taking two tablespoons of Virgin Coconut Oil per day will also give you extra energy and help protect the liver as well as help to fight viruses such as Epstein Barr -- which relates to your Fibromyalgia problems. See this link:
https://www.earthclinic.com/remedies/coconut_oil.html#ABAF
But don't forget to take the various calcium removing protocols I suggested in my last post. I would also detox heavy metals from your body -- another main caue of Fibro and glandular problems. This can be easily done by eating cilantro three times a week in salads or taking sodium thiosulfate drops everyday or simply supplementing with spirulina/chlorella everyday. This will all help to remove many of the causatve factors for your hypo-pituitary condition.
Lastly, your excessive copper problem can be helped by taking zinc acetate or zinc glutanate supplement. Zinc competes directly with copper in the absrbtion pathways in your body. The resultant outcome of excess copper intake is a sluggish thyroid, reduced body metabolism, with a consequent significant reduction in body energy. Taking 10 mgs zinc per day (or 25mgs every two days) should more than help to reduce your copper load, improve thyroid performance as well as act to considerably spruce up your immune system as well.
Replied by Robyn (Melbourne, Australia) on 05/09/2011
Replied by Robyn (Melbourne, Australia) on 05/09/2011
Replied by Julie (Spencerville, Md) on 04/19/2014