Verbena (Chicago, IL) on 02/11/2023
Has anyone heard/tried Gallium Nitrate for pulmonary fibrosis?
Robert (LA) on 02/05/2023
In August of 2021 I went to the emergency room requesting assistance because I had a lack of energy, great difficulty with breathing and just felt bad. I was told to take a seat and I would be seen as quickly as possible.
The next thing I realize I am waking up in a hospital bed and two months had gone by. I had the Delta version of COVID along with pneumonia (which I have had several times in my life). While I recovered quickly from COVID, the lung damage done by pneumonia had caused excessive lung damage and I wasn't able to breathe on my own.
During the initial stay, I was given a tracheotomy to assist in breathing, placed into a medically induced coma to assist in breathing (supposedly I was told because of my age {62} I might not come out of it) and had a gastric tube inserted to provide needed nutrients along with being placed on a ventilator.
My family had been forewarned if I did make it thru and woke up, I could end up being a vegetable because they had no way of knowing if my brain had become oxygen starved while being in the emergency room and not in an actual intensive care unit. At one point in time, the Dr.in charge called my family and told them if they didn't do something desperate, I would be dead in a few hours. My former wife called in a priest who administered last rights and my family started the funeral process on my behalf. Being the royal pain I have always been, I survived and eventually recovered enough to be brought out of the coma.
Spent 2.5 months in the hospital and another month in Rehab having to learn how to walk again. Went home the second week of November.
Had a Pulmonary visit in January of 2022 where I was informed I had Pulmonary Fibrosis and given time, it would take my life. I was also informed I had excessive lung scarring due to the aggressive pneumonia and there was no cure for the scarring and it would get worse as time went by.
I had a laundry list of medications including twice a day steroid inhalers, twice a day Nebulizer treatments, numerous meds and I don't remember any longer what else there was.
I was forced to go on Social Security because I had difficulty just getting up the staircase to my apartment. This sucked!
Stayed with the meds routine and ended up back in the hospital at the end of May 2022 for a week. I was pumped full of steroids and sent on my way. My next Pulmonary appointment wasn't until the first full week of September.
Felt great! .....for about 6 weeks then the congestion started returning and I felt none of the assorted drugs were truly doing any good by the way I felt so I decided it was time to go to plan B.
First hit up this website then started researching medical studies (outside the US) and saw a pattern developing surrounding Hydrogen Peroxide diluted with distilled water and given Nebulizer treatments several times a day.
So I bought a bottle of 12% FOOD GRADE (not that stuff for external use) Hydrogen Peroxide and a gallon of distilled water. Did some basic math and determined I needed to dilute it to 1.5% (to start) and around 4-5 cc's at a time in the Nebulizer. Started doing this twice a day and coughed constantly while using the Nebulizer. The gunk in my lungs were not happy to see this stuff and let me know!
After 3 days of this I could breathe again and I could feel the congestion breaking up! By the middle of August, I felt sooo much better that I could go out for walks again (really short ones).
Kept up with this twice a day until the end of August. Starting in September, I cut back to once a day and increased the dilution ratio to 2%. I was now also increasing my walking distance an it was up to a mile now. Went to my Pulmonologist appointment, explaining what I was doing and got a look like I had just fell off a turnip truck! The Dr.had no idea what I was talking about and couldn't condone it . He suggested I stop this and return to the drugs that weren't doing me any good. Don't hold your breath!
By the end of September I was walking 2 miles a day and had cut back the Nebulizer treatments to once a week having increased the diluted ratio to 3%
In October, cut back to once every two weeks, holding at 3% and increasing my walking to 3 miles a day. By November I was walking 3 miles both morning and evening. Had to stop this because my knees were giving me grief and cut back to walking only once a day.
In December I went in for a Cat Scan of my chest prior to my upcoming office visit with the Pulmonologist in January. By the end of December, I was at 3.5 miles a day in walking forgot more often than not about the Nebulizer treatments.
January 2023 rolls around and I head to my appointment. Met with the Dr.and he had a strange look upon his face. This had me concerned. I asked him if he looked over the Cat Scan results and he said he had (while gently shaking his head). The Dr.told me there was no lung scarring in the lower portions of my lungs and only a small amount up top!
After the Dr.and one of his residents had left the examination room and closed the door I could hear him telling somebody, " I have no idea how he became so dramatically better in only a year". I told him how but, its not part of Western Medicine.
Andrew Hall DC (Sonora, CA) on 01/20/2023
Tom (Tucson, AZ) on 01/10/2023
Quercetin gives good energy. Taking quercetin restored my lungs and sinuses from just average, to good condition in 2016.
Then in 2021, only 1.87% ivermectin horse paste, apple flavored, restored my lungs from the Covid situation. I had to intentionally cough up lung mucous for about 12 days in addition to taking the ivermectin, to finally get my lungs clear.
I tried stopping taking quercetin twice in 2016, but I had so much less energy and less healthy sinuses, that I had to make quercetin a permanent supplement of mine.
For thinning and liquefying lung and sinus mucous, I take 1/2 slightly rounded measuring teaspoon per day of the 14 herb seasoning, Dash Table Blend from Walmart in the spice aisle in the 6.75 oz bottle.
Subtly increasing lung volume and blood oxygen can happen by eating high-RNA supplements like nutritional yeast (1/8 level cup before lunch) or supplements like marine phytoplankton (1/2 slightly rounded measuring teaspoon or more per day). I prefer taking the yeast before lunch because I assume it takes extra oxygen for the body to process lunch.
To me, the lungs can be as difficult to maintain as the digestive tract is to have functioning properly.
Larry (Arizona) on 04/06/2022
Pauline (California, USA) on 02/17/2022
Pauline
Annie (USA) on 08/30/2021
"My husband has Pulmonary Fibrosis and I am looking for remedies to help him. He can no longer sit up for more than a minute. But laying in bed on his back is how he gets the best oxygen. He also suffers from anxiety and depression. He has a lot of back pain from a fall in 3 years ago. On his back his oxygen level is any where from 86 to 91% at level 2-1/2 to 3. When he panics the level goes down and we have to turn the concentrator up to 5. I am looking for any help to keep him safe and alive. Sincerely, Anita"
I was on oxygen recently and the doctors told me about proning. You lay on your stomach and the front of your lungs do not have to work so hard since your body is using the back of your lungs. My oxygen levels would go from 89 to 93 in under a minute (on oxygen ) It might work better since I had pneumonia. However the doctors at the hospital all day to prone for hours in the icu.
Also, check and see if his breathing gets worse after certain medications or food..I get chest pain right after I take some medications for pain and processed food ...I’m serious. I will pray for you all that you find relief.
Art (California) on 02/09/2021
https://www.earthclinic.com/cures/melatonin-for-copd.html
Here are links to studies of melatonin and IPF :
https://pubmed.ncbi.nlm.nih.gov/29567077/
https://pubmed.ncbi.nlm.nih.gov/30445883/
https://pubmed.ncbi.nlm.nih.gov/26122220/
https://pubmed.ncbi.nlm.nih.gov/16313495/
Melatonin is not a one trick pony and has shown efficacy in multiple health issues, yet doctors seem to mainly prescribe it as a sleep aid! If melatonin could become a patented prescription drug, it would be a blockbuster drug for what ever drug company held such a patent!
Art
Art (California) on 11/19/2020
Please look into melatonin and NAC for IPF. Check out these research studies for melatonin:
https://pubmed.ncbi.nlm.nih.gov/30445883/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5979295/
https://pubmed.ncbi.nlm.nih.gov/29567077/
https://pubmed.ncbi.nlm.nih.gov/27878256/
https://pubmed.ncbi.nlm.nih.gov/26122220/
https://pubmed.ncbi.nlm.nih.gov/16313495/
And for NAC:
https://pubmed.ncbi.nlm.nih.gov/?term=N+acetyl+Cysteine+idiopathic+pulmonary+fibrosis&size=20
Good luck!
Art
Elisabeth G. (Georgia ) on 10/27/2018
My reason for this post is to ask if anyone is aware of anything we could be doing to treat the PAH....As it seems to be the more threatening or problematic of the two diseases. His heart doctor has suggested he use Sildenafil, however it’s been about a year now that we’ve been waiting on the doctors and insurance to get everything approved for him so that he can finally get this medication, and still don’t have the authorization yet. PLEASE HELP!! My grandfather is a wonderful man and we need help to fight this. We are about four years post diagnosis and times ticking. I have faith that someone somewhere might know something, anything, that can help with fighting and treating this PAH.
Thank you. God bless.
Maureen (Washington) on 06/03/2018
Tried the serrapeptase at the 240,000 units twice a day....after ten days developed horrid vomiting. Thinking of trying it at 40,000 units twice a day for about ten days..if tolerated, then keep upping the dose. THOUGHTS?
Michele (Florida) on 05/15/2018
Also started him on NAC twice a day. Just started NAC so no improvement yet.
Art (California ) on 05/07/2018
Here are some fairly recent studies suggesting that melatonin may offer some help in this area. Melatonin has a very good safety profile and is naturally produced by the human body suggesting a lower potential for adverse reactions. Melatonin is also readily available here in the states and is fairly inexpensive.
http://www.mdpi.com/1422-0067/19/4/1118/htm
https://www.ncbi.nlm.nih.gov/pubmed/26122220
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jpi.12302
http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0097266
https://www.atsjournals.org/doi/abs/10.1164/ajrccm-conference.2016.193.1_MeetingAbstracts.A4169
Given the severe nature of IPF, it may be beneficial to look at as many options as possible and determine their relevance for your particular situation!
Art
Gertie (Galax, Va) on 06/09/2017
Diane (Pa) on 02/23/2017
Elizabeth Forbes Bryson (Uk) on 01/14/2017
Over the years I have settled on a programme which has had a positive effect on 92% of those who stay within its guidelines.
I also assume the worse ie it is a slow growing cancer - adjusting the capability of the body to take in at least 75% of oxygen and nitrogen and expelling 90% of carbon dioxide. Research indicates that cancer cells do not flourish in a body with adequate oxygen and discharge of carbon dioxide along with other negative substances, including their rubbish!
Look up Yoga Breathing exercises for Asthmatics. Within 1 week, the breathing pattern improves. It is important that the diaphragm is used to completely empty the lungs and the inhalation is deep enough to take the air to the bottom of the lungs.
Pattern: 3 inhalations - 3 times a day. Start first thing in the morning. Standing up if you can.
Visit your medical adviser. Too often interaction between medication drugs makes the condition worse. Ask for a review. If you are refused change your GP. Ask for an allergy test. Worse ones - statins, blood pressure conrollers and blood thinners. Recently Thyroxin has also come under the radar.
Did you know that during the last 10 years there has been much information released outside the UK showing that the stopping of or reducing of these 3 has not resulted in more deaths AND the patients on them, if they follow the mantras below, have a much better chance. Natural replacements, Hawthorn for BP. Chronic sufferers Hawthorn with Broom. DO NOT STOP your prescribed medication without consulting a fully qualified Natural Health practitioner
Three main points have to be followed for 6 months - without a break. No Smoking ( including the inhaling of perfumed steam - by any means} No alcohol. This means also cutting down the intake of substances that turn into alcohol. Mainly sugars. Any type that is not under the control of a plant and goes onto to a process system.
Turn to enzyme therapy . Suggestions Serraptase 3 times a day for 6 weeks and 0.1% Food Safe Hyaluronic Acid breathed through an inhaler for 30 seconds - 1 hour after a meal (any will do) for 14 days. If coughing occurs, have a small flask of mullein flowers and 1 stick of licqorice made up. Gargle a mouthful - then swallow. REMEMBER - the feeling that you can't breathe is certainly a sign of too much carbon dioxide in your body. DON'T panic. Carry out the breathing exercises
Elizabeth Fully Qualified Natural Medicine Practitioner
Larry (Uk) on 10/01/2016
Had the scan on the 12th Jan 2013 and saw the specialist on the 19th Jan to discuss the results. I saw the pulmonary nurse prior to seeing him and I was registering 44 breaths per minute. I entered the consultant's room and was told he had Bad News and that I was terminaly ill and should go home and put my affairs in order. I lost hearing and left in a daze. The delivery was brutal. I was 66, lived on my own and had never developed friends in my area, I cried all night, not for myself but as to how I was to tell my family.
I am alcoholic and was sober 18 yrs at this point and then I got very angry and shouted out at 5 am that I did not sober up to die of a silly lung disease ( I used another kind of language ) when I calmed down I googled the name of the disease and Naturopathic possible cures. I was directed to a website and thanks to their clinic the sent me the medication from the USA it was six different capsules and had to be taken 3 times a day.The Social/Health system kicked in straight away Hospice care took over all the paperwork for extra income which helps the terminally ill. I had just opened a new 1 man business 3 month prior to diagnosis. I used 1 day at a time to cope with the illness after 2 months I was able to return to work that was march 2014.
Today is 1st October 2016. When I next saw the consultant bless him I asked if he thought I was better but he concurred with 7 other specialists and they said severe honeycombing meant I would not live 12 months. I defy the odds and a day at a time is good for me. I know there is no cure but you can stabilise it and slow it down last function test he said no further deterioration.They don't recognise Naturopathic cures because they are not empirically tested haha. I cannot make any criticism publicly and don't wish to. All I say is take responsibility for your own health and go for quality of life rather time.
One last thing, after he said no further deterioration smart alec her stopped the treatment and became very ill with 4 weeks all the ridges on my nails had dissapeared but they were back without the Naturopathic medication. be guide by your heart and do not refuse medication offered. I tried all of them and they made me feel so ill I could not get out of bed.
About Gout, try honey mixed with apple cider vinegar. I take it with sparkling water this combination is called Malic Acid and it neutralises the uric acid and allows the kidneys to accept it and deliver it to the bladder it disolves the uric acid crystals. Google Sir Ranolph Feinnes and read his article
Andrew Hall Dc (Sonora, Ca) on 08/10/2016
The laser reduces inflammation with a photochemical process. When treating musculoskeletal problems it heals tissue faster and with less scar tissue. It could be that it is keeping more scarring from taking place, but it is not actually removing it. I still have a cough, but much less frequent and severe. I'm still working and playing hard though looking at retirement fairly soon. I'm 64. The dose with the laser I use is 10 watts, 4 minutes on the front of the chest and 4 on the back for a total of 4800 joules. I started with twice a week for the first month and then went to one treatment per week. I know this is working for me and I feel like I got my future back. If I don't get worse than I am, I can live very healthy for a very long time. My goal is 20 more years. If this post helps anyone else with this horrible disease I will be thrilled. It's wonderful to have hope. Dr Hall
Ben (Bremerton, Wa ) on 04/05/2016
Many here have tried hydrogen peroxide for this condition. Hydrogen peroxide is wonderful stuff but it is only a part of the solution and not a total cure.
Ignore the tissue fibrosis and you will not recover.
There is a component in the blood called fibrin. This is the substance which creates a blood clot when you cut yourself. Without fibrin a simple cut could be fatal.
In pulmonary fibrosis, the lung tissue is under constant attack from a mycoplasma infection and the response from the body is to deposit huge amounts of fibrin in the lungs. This fibrin decreases the available air space and you slowly suffocate.
That's it until you find the answer.
The infection can be reduced by drugs like doxycycline, hydrogen peroxide spray mist inhaled, nano silver mist inhaled, dmso plus crushed garlic inhaled, or gallium nitrate used orally at less than 1% strength. In addition other techniques such as eboo, uvbi, blood electrification, gcmaf, and eating lots of coconut oil all support driving a mycoplasma infection down
But this is still not the answer as none of these things address the tissue fibrosis.
To actually recover much needed airspace there is but one way in the universe to do that effectively. Nothing else works to dissolve tissue fibrosis except systemic enzymes. The strongest one called serrapeptase.
Most types of enzymes even digestive enzymes can help control pain and inflammation but it requires serrapeptase to actually clear the lungs up where fibrin deposits are blocking air space. other enzymes wont touch it.
More enzyme use = greater fibrin removal from the lungs. Less enzyme use =you keep the disease.
Biofilm a thick gummy mucus that coats the lungs drastically reduces airspace. Biofilm typically harbors more than 500 species of bacteria mold yeast fungus and virus plus heavy metals and toxins. We can use hydrogen peroxide to eliminate biofilm but enzymes can do a really good job of that plus break down the fibrin that fills the alveoli air sacs. Serrapeptase also interferes with viral and bacterial growth in a manner very similar to that of antibiotics. When people fail to get well it is often because they have a flaw in their treatment program. Not understanding the role of systemic enzymes in pulmonary fibrosis = no cure.
Barry (Boise, Idaho) on 03/06/2016
I was diagnosed with IPF in 2008. Incurable disease, unknown cause, no cure and regrettably not much interest from the medical community. I can think of many possible causes: dust, fungus, pollution, second hand smoke (I'm a lifelong non-smoker) or heredity. Actually again nobody except victims pay much attention to why it occurs. I always figure: figure out the cause; figure out the cure ( ah well...). Anyway I've developed several methods to keep myself alive, the best one of course is unpleasant: Taking a worthy expectorant and after loosening the gunk (fibrin, mucus) in the lungs cough it out; this can be exhausting, particularly in the am after it builds up.
Sharing is all we can do, it's such a battle one day at a time. Diagnosed with IPF for 7.5 years and still only 64, it's been grueling for my family. Keep fighting the good fight folks and "live".