Dietary Changes for Polycythemia Vera

5 star (3) 
  75%
1 star (1) 
  25%

Sharon (Wellington) on 07/22/2018:
5 out of 5 stars

Polycythemia Vera - while what to eat is important, consider not eating for a while and letting the body do some repair work while not having to concentrate on digestion. I have started down this road - doing fasts of just over 4 days and each time my numbers come back within normal (JAK2+). I want to know more about if this is going to work as an ongoing thing and what the maintenance # of fasts and length of fasts may be required.

I have just managed to get hold of a copy of Jason Fung's fasting book - so hopefully, more info is on hand.

One of the things I had heard from a cancer doctor - was when fasting for cancer - water only, and then distilled water at that. Having been eating ketogenically for a while - fasting is not a hard thing to do!

REPLY   3      

Crystal Mcgraw (Arizona) on 09/14/2017:
5 out of 5 stars

My test results have also changed drastically with a VERY strict diet. After 6 small strokes in May, my NMD put me on a vegan like diet. I was getting phlebotomized every 3-4 weeks. Staying low on iron and vit k is a must, but you also eat to clean your blood. Vegis until you can't eat anymore. We looked up a ton of vegan recipes on a website called knifesoverforks and eventually we added very little organic poultry and wild caught salmon along with goat or sheep cheese. This makes it much more sustainable for our family. I haven't had a phlebotomy in 3 months now and my tests are normal. Foods can heal. 🌹

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REPLY   7      

Alicia (San Diego, Ca) on 08/23/2015:
1 out of 5 stars

Hi, I was diagnosed with PV 4 years ago and am seriously allergic to hydroxyurea. I am a Registered Nurse and understand the progression of PV but have no knowledge of holistic foods/ medicine to relieve burning/itching skin that keeps me awake at night. Please share any experience/knowledge others have experienced regarding reducing high RBCs, Platelets and WBCs headaches and burning/itching skin. I was diagnosed at age 51. Thank you, Alicia

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REPLY         



Bonnie (Florida, US) on 11/07/2014:
5 out of 5 stars

I was diagnosed with Polycythemia Vera in 2010. My red blood cells were at 1 million and normal is 200,000 to 400,000. My cancer doctor started giving me phlebotomys and hydroxyurea. The lowest my red cell count ever got to was 800,000. Two years ago I looked up foods that thin your blood and started eating them. I was visiting my dad at the time and went to his doctor after two weeks being on this diet. He did a blood test and my count was 300,000!!! He asked if I was sure about being diagnosed with PV and I told him I had a bone marrow biopsy and was positive. He couldn't believe it.

If you want, just look up foods on the internet that thin your blood and avoid the ones that thicken your blood. I no longer take hydroxyurea or get phlebotomys and am normal!!

REPLY   40      

Dietary Changes for Polycythemia Vera

5 star (3) 
  75%
1 star (1) 
  25%

Sharon (Wellington) on 07/22/2018:
5 out of 5 stars

Polycythemia Vera - while what to eat is important, consider not eating for a while and letting the body do some repair work while not having to concentrate on digestion. I have started down this road - doing fasts of just over 4 days and each time my numbers come back within normal (JAK2+). I want to know more about if this is going to work as an ongoing thing and what the maintenance # of fasts and length of fasts may be required.

I have just managed to get hold of a copy of Jason Fung's fasting book - so hopefully, more info is on hand.

One of the things I had heard from a cancer doctor - was when fasting for cancer - water only, and then distilled water at that. Having been eating ketogenically for a while - fasting is not a hard thing to do!

REPLY   3      

Crystal Mcgraw (Arizona) on 09/14/2017:
5 out of 5 stars

My test results have also changed drastically with a VERY strict diet. After 6 small strokes in May, my NMD put me on a vegan like diet. I was getting phlebotomized every 3-4 weeks. Staying low on iron and vit k is a must, but you also eat to clean your blood. Vegis until you can't eat anymore. We looked up a ton of vegan recipes on a website called knifesoverforks and eventually we added very little organic poultry and wild caught salmon along with goat or sheep cheese. This makes it much more sustainable for our family. I haven't had a phlebotomy in 3 months now and my tests are normal. Foods can heal. 🌹

 View Entire Thread

REPLY   7      

Alicia (San Diego, Ca) on 08/23/2015:
1 out of 5 stars

Hi, I was diagnosed with PV 4 years ago and am seriously allergic to hydroxyurea. I am a Registered Nurse and understand the progression of PV but have no knowledge of holistic foods/ medicine to relieve burning/itching skin that keeps me awake at night. Please share any experience/knowledge others have experienced regarding reducing high RBCs, Platelets and WBCs headaches and burning/itching skin. I was diagnosed at age 51. Thank you, Alicia

 View Entire Thread

REPLY         



Bonnie (Florida, US) on 11/07/2014:
5 out of 5 stars

I was diagnosed with Polycythemia Vera in 2010. My red blood cells were at 1 million and normal is 200,000 to 400,000. My cancer doctor started giving me phlebotomys and hydroxyurea. The lowest my red cell count ever got to was 800,000. Two years ago I looked up foods that thin your blood and started eating them. I was visiting my dad at the time and went to his doctor after two weeks being on this diet. He did a blood test and my count was 300,000!!! He asked if I was sure about being diagnosed with PV and I told him I had a bone marrow biopsy and was positive. He couldn't believe it.

If you want, just look up foods on the internet that thin your blood and avoid the ones that thicken your blood. I no longer take hydroxyurea or get phlebotomys and am normal!!

REPLY   40      

Sharon (Wellington) on 07/22/2018:
5 out of 5 stars

Polycythemia Vera - while what to eat is important, consider not eating for a while and letting the body do some repair work while not having to concentrate on digestion. I have started down this road - doing fasts of just over 4 days and each time my numbers come back within normal (JAK2+). I want to know more about if this is going to work as an ongoing thing and what the maintenance # of fasts and length of fasts may be required.

I have just managed to get hold of a copy of Jason Fung's fasting book - so hopefully, more info is on hand.

One of the things I had heard from a cancer doctor - was when fasting for cancer - water only, and then distilled water at that. Having been eating ketogenically for a while - fasting is not a hard thing to do!

REPLY   3      

Crystal Mcgraw (Arizona) on 09/14/2017:
5 out of 5 stars

My test results have also changed drastically with a VERY strict diet. After 6 small strokes in May, my NMD put me on a vegan like diet. I was getting phlebotomized every 3-4 weeks. Staying low on iron and vit k is a must, but you also eat to clean your blood. Vegis until you can't eat anymore. We looked up a ton of vegan recipes on a website called knifesoverforks and eventually we added very little organic poultry and wild caught salmon along with goat or sheep cheese. This makes it much more sustainable for our family. I haven't had a phlebotomy in 3 months now and my tests are normal. Foods can heal. 🌹

 View Entire Thread

REPLY   7      

Alicia (San Diego, Ca) on 08/23/2015:
1 out of 5 stars

Hi, I was diagnosed with PV 4 years ago and am seriously allergic to hydroxyurea. I am a Registered Nurse and understand the progression of PV but have no knowledge of holistic foods/ medicine to relieve burning/itching skin that keeps me awake at night. Please share any experience/knowledge others have experienced regarding reducing high RBCs, Platelets and WBCs headaches and burning/itching skin. I was diagnosed at age 51. Thank you, Alicia

 View Entire Thread

REPLY         



Bonnie (Florida, US) on 11/07/2014:
5 out of 5 stars

I was diagnosed with Polycythemia Vera in 2010. My red blood cells were at 1 million and normal is 200,000 to 400,000. My cancer doctor started giving me phlebotomys and hydroxyurea. The lowest my red cell count ever got to was 800,000. Two years ago I looked up foods that thin your blood and started eating them. I was visiting my dad at the time and went to his doctor after two weeks being on this diet. He did a blood test and my count was 300,000!!! He asked if I was sure about being diagnosed with PV and I told him I had a bone marrow biopsy and was positive. He couldn't believe it.

If you want, just look up foods on the internet that thin your blood and avoid the ones that thicken your blood. I no longer take hydroxyurea or get phlebotomys and am normal!!

REPLY   40      
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