New to blog and have polycythemia vera

Posted By Ananas (Canada) on 03/13/2014

Hi everybody I am new to this blog and I have polycythemia vera. I am looking for alternative medicine or healthy ways to manage my disease. The doctors have given me Hydroxyurea for the past 5 years now and I am not getting better. Can anyone help me please, thank you all.
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Replied by Mike62 (Denver) on 03/13/2014

Ananas: Living in the 21st century is 90% of the people are either sick or not functioning at peak performance, 9% are slick, and only 1% are well and happy, like the good folks here at wonderful E.C., the best place for folk medicine, like Mama, Dave, Tony, Tim, Bill, Ted, OM, Robert Henry, and many more. You fall into the 90% category. But you don't have to stay there. You can graduate to the 1% category and function optimally. The first thing you do is just completely ignore the condition. The second thing you do is don't believe the people who say the condition is a genetic defect. Eating cooked conventionally grown food that is low in nutrients and high in pollutants caused the gene to malfunction. All you have to do is eat food that is high in active nutrients with high energies and low in pollutants and the gene goes back to functioning. If you would like to try a complete best foods program reply back and I'll be glad to give the products and dosages.
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Replied by Ananas (Ontario, Canada) on 03/27/2014

Mike62, I have been away for a while but I am glad I saw your response. I would love to know more about the right foods and brands I must consume. Thank you very much for steering me in the right direction. I am glad to have found you and look forward to your reply
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Replied by Mike62 (Denver) on 03/27/2014

Ananas: A complete raw organic and grass fed whole food program is not only going to fix all your problems very rapidly but is also going to make the body buzz like a bee. The best carb is activated barley, best proteins are the super foods, Hawaiian spirulina, chlorella, desiccated liver, non denatured whey, and raw cocoa powder. For every 100g activated barley take 8g expeller pressed coconut oil and 24g black chia seeds. The carbs and oils have to be in the proper ratio. Take the carbs, proteins, and fats together every 2 hours with water. The best supplements are colostrum, skate liver oil, 17 mushroom extract blend from Washington, 90,000hu cayenne, unrefined sea salt, freeze dried 4:1 concentrate goji, high potency fresh harvest maca, and freeze dried wild harvested acerola. 500 million years ago the ancestor of all vertebrates made a communication system that encouraged the tissues to cooperate with each other. CBD oil repairs this communication system. Take 1 cap cherry flavored 1500mg CBD oil every 10 days. You can drink shade grown coffee with vanilla extract, 32oz jar.
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Replied by Will65 (Louisiana) on 05/08/2014

Hi Mike62, Recently diagnosed with polycythemia (or in the process of verifying). I am not sure which version, yet. I am interested if anyone else has had your success using your method. If I choose to move forward with it do you think I should consult with my doctor, inform my doctor what I would like or just go at it alone without the doctor?

Thank you for all the advice you have provided on the board!

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Replied by Mike62 (Denver, Colorado) on 05/08/2014

Will65: I got bit by a dog today and did not go to the doctor. My doctor is the herbalist. Doctors are reductionists. If reductionism worked then everybody would be well. Presently I am taking organic bananas, watermelon, and pineapple for fruit. For more carbs I take activated barley. For more nutrients I take refrigerated rice bran, raw cocoa powder, desiccated liver, non denatured whey isolate, colostrum, skate liver oil, Hawaiian spirulina, home brewed water kefir from refrigerated whole flours, expellar pressed coconut oil, black chia seeds, and some herbs.
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Replied by Carol (Fullerton, US) on 06/27/2014

I am very interested in a nutrition plan to help with my newly diagnosed PV. Having a hard time digesting all the information out there. I believe nutrition can change and heal the body, so I'm willing to give it a try!

Take care, Carol

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Replied by Joe (Ghana) on 09/08/2014

Hi all, My girlfriend is 24 and she has had Polycythemia Vera for a while. Is it normal to have had it so early in her life? And more so in a tropical country like Ghana. She's almost giving up on trips to the doctor as these haven't helped much. Any advice or tips would be helpful. I really love her and would like to grow OLD with her.
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Replied by Becky (Oberlin, Oh) on 12/27/2015

I have PV. You mentioned eating better foods. Please let me know what I should be eating
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Replied by Barb (Syracuse, Ny) on 03/23/2018

Greetings! Just discovered this blog. I discovered I have PV about 12 years ago. I am currently taking Hydroxyurea, four pills a day. I have been playing with my diet over the years and that has helped. I have a lot of food allergies. So I try to avoid gluten and the night shade family (potatoes, peppers, eggplant) and my labs have been much better. My labs in the past have been all over the place. My last two labs have been as close to normal as I can get!!! So I think for me, this might be working!
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Replied by Sherry (Mo) on 04/10/2018

Hi, I have a swollen spleen and was diagnosed with polycythemia this year. I've just started taking cbd oil 750 mg organic non thc. I need a diet and other supplements etc to take with it. I am so fatigued can barely walk and very dizzy and sleeping most of time. All suggestions etc are so appreciated. Blessings, Sherry
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