Replied by Anniesummer (Denver, Co) on 10/25/2009
I also suffer from a form of vasculitis called Cryoglobulinemia. Rash on lower legs, numbness of feet, Raynaud's in hands. The biggest help to my symptoms, especially the rash, has been a supplement called Pycnogenol, which is an extract of french maritime pine bark. I read of the studies that showed great success in strengthening cell walls in a book called The Inflammation Syndrome by Jack Challam. I take 100 mg 2xdaily. I noticed a difference in about 2-3 weeks, and now rarely suffer from the rash (and it was pretty bad at times).
I hope this helps. The other things I take are fish oil and vitamin E, which are all good for the circulation. And dont forget how important exercise is. I read a while back about a study where vessels that had been severed in mice rerouted themselves and restored the blood flow to normal levels with regular workouts on the treadmill. So keep moving!
Replied by Val (Ny, Ny) on 11/10/2009
Thank you Annie! Much Appreciated! ValReplied by Jaspersmom (Bassano, Ab, Canada) on 02/01/2011
Thank you I will try that. I already use the fish oil but am up to try anything new at this stage. Also wondering if you suffer from an auto immune disease other than vasculitis?Replied by Lisa09calgary (Kelowna, B.c.) on 03/13/2011
Does anyone have remedies for Sjogren's Syndrome combined with vasculitis?Replied by Hope (West Coast, Ca, Usa) on 04/18/2012
Vasculitis with pernio or chilblains (rash when warm after cold)- zyfla mend has helped me with energy that is zapped from the vasculitis. I do take a heart medication, but am looking for additional solutions that are natural. I also have Sjogren's Syndrome Primary. Best to you all!Replied by Christine (Whitby, North Yorkshire, England) on 07/25/2012
I have been told by GP that the rash which occurs after severe stress on the skin graft on my lower left leg is Vasculitis? However it has been very much worse & extending beyond the graft to normal tissue of the leg & very painful. For the third time in 6 months, a blood vessel has ruptured in my left eye but this time, the whole 'white' of the eye is solid dark red. (My daughter told me I look like something out of a horror movie)Right eye ruptured once in same 6 month period.
Is this related to the Vasculitis?
I have thyroid disorder. Radio-iodine treated in December 2011. Been on Neo-mercazole for 9 years but told have advanced Graves disease which has been undiagnosed most of my life, (60 yrs).
Any advice or help would be appreciated. I prefer natural remedies where possible. Had bad reaction to Prednisone last year.
Replied by Karen (Gainesville, Fl) on 08/28/2012
Do not take Pycnogenol if you have an autoimmune disorder. It strengthens the immune system which would make your disease worse.Replied by Caessence (Eureka, California) on 12/26/2012
You migh try looking into thyroid supplementation and iodine. I was reading about thyroid having an effect on cardio vascular system and related to heart disease.Replied by Zaki (Patna Bihar) on 09/11/2016
I am suffering from ANCA associated vasculitis. My both lower legs become red spots. I mean rashes. I am taking wysolone 7.5 mg. daily &folitrax25mg week ly is there any other herbs or supplements I can take. l am taking this for the last 4 years.Replied by Kraig (Phoenix) on 09/12/2016
Minimally, start with blood purifying and anti-inflammatory herbs. Ginger is both anti-inflammatory and blood purifying. Turmeric addresses inflammation as well. Supplement with Omega 3 oil and detox with key herbs.
The difficult facet is knowing what you eat and a general understanding of your background health. But those mentioned above would be core to the 'herbs' you think you need to reduce auto immune inflammation and blood purification. In using herbs, it's not the quantity you take but the repetition you take it, which should be 3-5 times a day given your chronic condition.
I'd make a tonic of fresh ginger and turmeric from the grocery store. Blend 3 tablespoons (use cheese grater) of each in 16 ounces of apple cider vinegar. Start taking a teaspoon of it 3-5 x a day. This is not an exact science. Herbs rarely will harm you. Key is you minimally make the effort and devote the time.
Burdock root, cilantro or dandelion tinctures will help clear toxins from body. How you take them depends on your commitment. If you aren't serious about spending time to really attack the issue, than buy herbal liver detox pills. Otherwise use fresh herbs in your food, teas or make your own tinctures.
Supplement with Omega 3 fatty oils. Flax seed oil is a good start. Add to food or any hot beverage. A tablespoon at least once a day.
Please don't ask for more support unless you are willing to commit.
Replied by Nafisa (Durban South Africa) on 06/10/2017
I have vasculitis on my feet with blisters.
