Katie (Avon, Ct) on 03/12/2013
14 years ago I became very sick (25 yrs old). After 2 years of struggling with severe debilitation I was diagnosed with lyme disease (and co infections). I spent years off and on antibiotic treatment with limited improvements. One of the most annoying symptoms was skin burning at night. From my knees up to my chest it felt like I was on fire. Then about 4.5 years ago I developed symmetrical burning in my feet. Pain like I simply can't described (as I'm sure most of you know). I kept having to increase Gabapentin and have spent the past 3 years at 3100 mg's. Over the past year or so I've had breakthrough pain and it's showing me that the disease has progressed far past my feet. I have it up to my knees with knife like pains in my calves, numbing all over my feet and now pricking in my fingers. I've had 4 ports an taken months of IV antobiotics to attack the lyme since lyme can cause neuropathy. It clearly isn't working (if it did, it didnt last). I am now on IVIG and am still not improving. The neuro said I should see improvement after 2 months- it's been 5 and im only getting worse. It now wakes me up at night and most nights, prevents me from falling asleep. I've never had it this bad before (where it's interrupted my sleep). I don't know if the Gabapentin isnt working and/or if it's just progressing? I have stopped and started supplements 100X but have never stayed with anything long term bc I've always been on one treatment or another AND bc the doc's assume it's from lyme (but there's no way to truly know) and blow off the power of supplements. I'm a mom of two very little girls and am terrified. Truly terrified.. I don't know where this is going or what will become of my life. ANY suggestions would be beyond appreciated-
With gratitude-
Katie
Replied by Steve from Las Vegas, Nv Nevada on 03/12/2013
Magnesium oil should bring some relief to the areas of pain. Also my brother has had some success using a laser therapy pen to relieve his neuropathy pain. SteveReplied by Timh from Louisville, Ky, Usa on 03/13/2013
Katie: According to our leading authority on Parasite disease, Dr Hulda Clark, we all have parasites or stages. For many people this isn't a problem, for others, however, it creates chronic diseases that do not respond to treatment with any significance. Parasites excrete all sorts of bacteria, funguses, and viruses as a byproduct of their metabolism. Heavy metals, or zenobiotics are also possible with you. Look a few yrs back in your life (recapitulate) and try to find any particular moment when you got out of your element (routine) and became "suddenly" ill. Something is dragging your immune system down.First, do an herbal parasite cleanse, as well as any methods of general detoxification (info here on E.C.)
Second, boost your immune system by supporting your Thymus Gland. Here is a previous post I made for this: The Thymus gland is like the brain of the immune system as it is involved in both production and regulation of immune or white blood cells. Thymus function decreases significantly w/ age so any method to augment it is definitely recommended especially those suffering chronic infections. To boost the Thymus do these little exercises on a daily basis and significantly boost your immune power. First, use some type negative pole magnet (the side that sticks to metal) over the Thymus, which is directly between the lower neck and heart area; a common refrigerator magnet will do just fine; do this for approx 15 minutes. Second, do the "Thymus Tap" by making a fist and gently bump the T area a few times and wait a little then bump again several times daily. Thirdly, supplement Raw Thymus Glandular as recommended on label. " Also, if I might add, Zinc Lozenges will boost the Thymus.
Here is a link for Lyme Section: https://www.earthclinic.com/cures/lyme_disease.html
Hope this helps. Come back and update us how you're doing.
Replied by Connie from Slc, Utah, Usa on 03/13/2013
Hi Katie;http://b12d.org/b12-signs-symptoms-assessment
This website provides alot of information about the signs and symptoms of B12 deficiency. Neuropathy is a primary one. Treatment of B12 deficiency neuropathy is intensive and life-long. Healing can take many months, even years.
Replied by Karen from Tampa, Fl on 03/13/2013
Katie, Dice a whole lemon, skin and all then liquify it in a blender.. Strain if you want and put in glass... Add one tablespoon of X-virgin olive oil and one tablespoon of lecithin and drink everything either at once or spread out over the day... Also put more lecithin - up to 4 tablespoons in the drink if you want to... It is most important for nerves... Do this for one month... You will see improvement and maybe resolution.Report back to this site if you are so inclined... God bless.
Replied by J from Ny on 03/20/2014
Try r - alpha lipoic acid 300mg 3 x dailyReplied by Laura from Newark, Ohio on 05/21/2014
Hi, Check out MMS and Jim Humble. I really think this can help and possibly cure your lyme's disease. Let me know if you try this.Replied by Whisperingsage from Northern Ca on 09/21/2020
If B12 deficiency goes on too long, it can be permanent.Replied by ANNA from Pennsylvania on 10/16/2024
i hope anyone here knows if CORYDALIS really works for neuropathy as they say....Replied by Wanda from Spring, Texas on 07/09/2025
Wow! That sounds so painful, my heart goes out to you. I personally don't like gabapentin for a drug. I'm not telling you to get off of it, I'm not a doctor.
