Art (California) on 03/11/2024
https://pubmed.ncbi.nlm.nih.gov/38460474/
Here is a relevant quote from the study :
Melatonin had the potential to mitigate inflammation, oxidative stress, and apoptosis in SGs of pSS by inhibiting the IL-6/STAT3 pathway through receptor-dependent mechanisms. This intervention effectively prevented glandular damage and preserved functional integrity.
Art
Diamond (Ma., US) on 11/22/2014
I have used a natural remedy for over twenty years-called black cohosh, it has been a God send for all these years. As for dry eyes, it's just the greatest, it also supports the whole system. Black Cohosh can be bought in almost any drug store and some of the leading stores. I thought I would add an extra alternative for many others to use. Good Luck...
Rachel (Lewes DE) on 04/17/2023
Angela (Englewood, Kansas ) on 07/31/2022
I agree with the post from 2015 about using coconut oil. I brush my teeth with toothpaste maybe once a week, all other times I just brush with water to clean them well. Then I brush them with coconut oil, and leave it on them. I've noticed a better tooth condition, more moisture in mouth, and healthier looking gums.
Nancy (Los Angeles, CA) on 05/22/2021
I still plan to try the sea buckthorn oil, mainly to see if I get any of the skin benefits, but it's good to know how powerful something as simple as cod liver oil can be (good for vit D, too, which I'm borderline low in). Cheers!
Shabana (TX) on 03/09/2021
In clinical study on Sjogren’s and Sea Buckthorn, twenty-three female patients with typical symptoms of dryness, pain and itching in the genital tract mucosa took Sea Buckthorn oil for three months. Conditions of the genital mucosa were evaluated using a visual analogue scale method before and after each treatment period. It was found that the use of Sea Buckthorn oil resulted in a higher rate of improvement in all symptoms of the twenty-three patients. In another study, researchers recruited 100 adults with symptoms of dry eye syndrome.
For three months, participants took two grams of sea buckthorn oil or a placebo each day. By the study’s end, those who’d taken sea buckthorn oil showed a reduction in several dry eye symptoms (including redness and burning). These results suggest that Sea Buckthorn Oil may present a promising alternative for improving the condition of the mucosa of Sjogren’s Syndrome patients.
Peggy (Saskatchewan) on 02/07/2020
Bill J. (United States) on 06/05/2019
The thing that made me consider all the moisture issues is that I almost have never sweated except for peri-menopause that was severe sweating most of day/night and lasted for about 5-7 years ending in 2004. Could some people just not be "Sweaters" or are "Low Secreters" due to a single FUT 2 defect and don't have Sjogren's? One with 2 defects would be a total "Non-Secreter" and have serious lack of mucous if the gene expressed. Could they be connected? Or FUT2 may be the cause for someone without Sjogrens who still has moisture issues. Regarding Detoxing. If one can't open up the channels of the Lymphatic System, it seems dangerous to attempt detox. Maybe Liver or Colon Cleanses might be safe, but some other Detoxing seems risky.
Any thoughts? Is there a connection of Mercury to lack of sweating? If it gets released and doesn't exit, it can really wreck havoc.
Castor Oil for Dry Eyes Mary (Utica, New York) on 12/03/2020
If your eyes feel bad enough you will do this, and be happy you did. ðTrust me I’ve tried EVERYTHING, I know this works.
Nora (Stockholm) on 11/18/2018
Holly (New Hampshire ) on 05/06/2018
I have used this for about 2 months or so and it relieves the dryness and lately have noticed a huge improvement in a lessening of grit which is more easily remover without scratching or tearing to my lower lids. I'm still working on the dry mouth I'm increasing my fluids to 12-14 cups daily, small amounts of coconut oil for dryness as needed and xylimelts. I'm just starting borage oil, as directed on bottle.
Grace (Portland) on 12/16/2015
Oil pulling helped me. Oil pulling is where you swish an oil ( I use sesame oil or coconut oil) in your mouth for 15 minutes, then spit it out, and brush your teeth. I do it once a day.
Also, my salivary gland was enlarged may be clogged, and putting a tea bag between cheek, and gum for few hours, seems to unclog it.
Erica (Benton, Ky) on 09/13/2015
Fyi, I was also able to go off of my meds for hashimotos and am hoping one day to also rid my body of scleraderma morphea. I do not do any speacial diet or supplements, I go gluten free temporaraly if it starts bothering my stomach. But no other restrictions.
I have also done a parasite detox through hummaworm.
I HOPE THIS FINDS YOU WELL AND BRINGS YOU HOPE. SJOGRENS IS CURABLE!
Judy (Tampa, Fl) on 09/02/2015
Claudia (Conifer, Co) on 02/10/2015
Anyway, I would like to share some of the things that I am doing that have given me some relief. I have been taking (daily) fish oil, potassium, and vitamins C and D.
I have also been drinking organic unfiltered apple cider vinegar mixed with raw unfiltered local honey (about a tablespoon of each mixed with 12 oz of water). I have noticed a difference in my energy level, as well as some relief from my dry mouth. (And, I am no longer on high blood pressure medication. But that's for another post.)
For the past 2 months I have used something that my ophthalmologist recommended: serum tears. These have been a real blessing. I had started off using OTC replacement tears, with dismal results - no relief. Nothing seemed to provide lubrication in my eyes, and each time I applied the artificial tears, my eyes were left burned and painful; I tried every brand on the shelves; nothing helped. (On a scale of 1-10, my tear production was tested to be a "1", so... hmm, my eyes are very dry).
Anyway, serum tears could be a natural alternative for someone with severe dry eyes. They are made from your own blood, so they are unique to each person. Several units of your blood are drawn, and the red blood cells are separated out, and then the clear (white) cells are mixed with a saline solution, and put into small eye droppers. The solution must be kept frozen until ready to use, and then when thawed it lasts only 30 days under refrigeration. But, I can honestly say, these have given me my life back. I still have dry eyes, but the serum tears give soothing relief, where nothing else did. The serum puts back MY OWN cells in to my eyes, where they are needed. Serum tears are not offered by every eye doctor... you may have to check around. They can be expensive - and they are not always covered by insurance (mine aren't). The science behind these drops is a couple decades old, but it may help some of you who have severe dry eyes as I do.
At night, I am use a simple, pure, organic coconut oil. This has been far better for me than any chemical gel or ointment for night relief. I scoop (with a sterile knife) a small amount of solid oil, and put it in to an empty dropper. Before bed, I run the base of the dropper under hot water for a minute, and then put a couple drops of the barely warmed oil directly into my eyes. Bliss. Coconut oil is naturally antibacterial and anti fungal, which seems more safe than some synthetic chemical based gels or ointments.
Blessing to you all - I hope that that my experience helps someone. There is hope out there.
Diane (California, US) on 01/19/2015
For fatigue, mine went almost completely away when I switched to drinking ONLY mineral water (not the sparkling kind). I get it delivered now. It's expensive, but I no longer have the horrible fatigue where I couldn't even stand to wash dishes or make it up the hill to where I park my car. After only 2 days of drinking only mineral water, it was all gone. My hip, shoulder, and foot pain also have no reappeared. it's been over 7 months now.
Dietary Changes Cured Sjorgens Syndrome Gokhals (Ca, US) on 12/29/2014
My Sjorgens Syndrome was cured from some combination of these.
Diamond (Ma., US) on 11/22/2014
Gwen (Cleveland, Ohio) on 09/28/2014
I'm a very active, lean, 56-year-old who was experiencing several Sjogren's symptoms for months and they were significantly debilitating -- dry mouth, dry eyes, lung soreness plus heart palpitations. I refuse to seek out the help of traditional doctors because of their reliance on chemical cures. I did, however, engage a Sports Nutritionist that came highly recommended by an active, lean colleague of mine, who is 57 years old. I'm mentioning my age and my colleague's age so women who are of the same "vintage" realize that there is post menopause hope as one's body changes. When I shared my symptoms with the Sports Nutritionalist he said "Have you been tested for Sjogren's?" He also said, "At a minimum, you should be consuming 3000 mg of high grade fish oil per day." I was consuming 1000 mg per day. Interesting.
I next went online, read your comments, and did the following: increased my fish oil soft gels consumption to 3000 mg per day (Carlson Norwegian Salmon Oil), started taking 2 Solgar Flaxseed Oil 1250 mg soft gels per day and started taking 2 Solgar Super GLA Borage Oil 300 mg soft gels per day. The next day, my dry eyes and dry mouth significantly improved! The day after, my eyes and mouth felt normal again. I am still experiencing lung soreness plus heart palpitations, but I have noticed slight improvement there as well. My thought is that it may take longer for the rest of my body to get "fully lubricated" once again. I truly believe that I'm on the right path, so I wanted to share my experiences in case it may help others. As a side note, my Sports Nutritionalist also told me to switch multi-vitamins -- moving from a tablet to soft gels because they are absorbed into your system whereas tablets can pass right through you. One of his clients was being x-rayed for some type of condition, and the doctor saw the multi-vitamin in the gentlemen's intestinal tract, e.g., it hadn't been absorbed into his system. I am going to make this change as well.
I would recommend that if you increase your oil intake, you make sure that you're not over-doing it by eating fatty foods. Too much fat could cause other problems. Eat healthy!
Steenie (Florida) on 09/03/2013
First of all, mine came from having a toxemia as a child as well as a genetic predisposition... I had been food combining and vegan for years but I didn't find help until I got OFF the Prednisone eye drops I'd been doing for years for my Uveitis (I guess, I should tell others to work caution and check w/ a Naturpoath, uveitis is a serious condion, as well)... I actually tapered off of them as well as (diluted w/ distilled water and more over a period of a month), I had found the ultimately, Eyebright in the eye (would recommend, now, checking Weleda or a homeopath as the way I did it caused infection), but infection or not, the body was then able to heal... Also, around that time, I did a liver cleanse using only milk thistle tea with a juice fast over a period of time. I would also recommend that anyone with Sjogren's take out any nightshades from their diet or regime, sincerely, my uveitis would flare and I also didn't realize that tomatoes were a culprit, I knew I reacted to all other nightshades... I know that I have been successful w/ potatoes, but don't remember doing them around the time I got rid of it.
I got in a less clean environment and the Uveitis crept in some and began use in the eye of the Pred drops again (should've stuck w/ the eyebright, really)... But, thought I was "normal"... Many eye surgeries later, more Pred and not keeping up w/ the natural diet, doing more man made things (it's hard, you need the right nutrients when you have both these conditions, if vegan, you really need to supplement w/ a quality D3 and B12 supplement as well as having a great source of calcium)... and the Sjogren's came back... I'm going to try my former regimine and see how it goes, if that doesn't work, I'm moving where the air is cleaner. Hope this helps someone else! :)
