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Dysautonomia

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Thiamine, B Complex, Cayenne for Dysautonomia

Daiva (CA) on 11/02/2023
5 out of 5 stars

Vitamin B1, B complex, and cayenne for dysautonomia

B1 (thiamine) deficiency is a common cause of dysautonomia. Unfortunately, for some people injections or cream will be needed as their genetic makeup doesn't allow them to assimilate it. Putting some powder under the tongue and allowing it to melt bypasses digestion as well.

I had bad heartbeats after getting up and some shakiness, especially bad at night, if I had to go to the bathroom. It took a week or so to become better when putting some B1 powder under the tongue 3-4 times a day. But I also took cayenne 2 capsules 2-3 times daily, which I felt helped a lot too.

I also take B complex, B2 (for migraines) and B12.

Mine was triggered by 18 day juice fast, and severe stress.I think that made bad B1 status even worse. I haven't tried Butcher's broom herb, but that is supposed to be good as well.

REPLY   3      
Butcher's Broom + Helping Son With Dysautonomia

Thewozi (Charlotte, NC) on 12/28/2022
4 out of 5 stars

Work in progress...

My teenage son was recently diagnosed with dysautonomia. We are at a functional neurology center that, despite my skepticism, is helping. I don't have enough mileage to call any of these a 'cure' but we are experimenting with - butcher's broom (herb) 2x per day, building up calf muscles to better move blood, hydration drinks, and red light therapy behind the knee.

REPLY   5      
Treating Dysautonomia

SandyS (Palm Bay, FL) on 04/10/2022
5 out of 5 stars

The Dysautonomia Project has published a book and has a website for this hard to diagnose condition. Their goal is to educate patients and general practitioners. Their website is https://thedysautonomiaproject.org/ One of the doctors that helped write the book, Dr. David Goldstein, MD, PhD will send a free copy of a separate book he wrote if you email [email protected]. I’m just reading The Dysautonomia Project book, so I haven’t emailed, but it was in the notes for the doctor profile. The book is very thorough and has lots of traditional and complementary treatments.
REPLY   6      


Treating Dysautonomia

Sam (Miami) on 06/28/2020
4 out of 5 stars

Dysautonomia is a label, an umbrella for many syndromes. One won’t find remedies for dysautonomia here. Dysautonomia international is the source for all your questions. True POTS, a type of dysautonomia, is an elevated heart rate upon standing that won’t go back to normal while blood pressure remains normal. Blood pools into your legs when you stand. This is classic pots. Hypovolemia is often present, but it is not accepted by doctors since they don’t measure the volume of blood, they say that based on your blood work you have no hypovolemia. Which is not a fact, but an assumption. Measuring blood volume could not be done at every clinic or hospital. Hypovolemia is probably secondary to autonomic dysfunction, but it could lead to a syncope..

If blood pressure drops, it is not POTS. POTS comes with many other debilitating symptoms. Not only teenagers get it. Cervical cancer vaccine causes POTS. Managing pots is very difficult. There is no one size fits all.

I have tried everything there’s to try in alternative medicine field, from supplements to modalities, nothing worked for me. I have it for 10 years. Only atenolol allows me to semi function, but it only addresses heart rate elevation, not the other 50 symptoms that come with POTS.

REPLY   3      
Trying Various Remedies For Dysautonomia But Seeking More Help

Heyjamieboy (New York ) on 12/22/2017
3 out of 5 stars

Dysautonomia: Learning about this illness from Lyme disease:

  • feet are numb tingle
  • neck and head pain
  • mornings are hell with palpitations shortness of breath body ache.
  • Excessive urination at night, 1.5 liter or more
  • - exercise intolerance
  • colld and heat Intolerance
  • disturbed sleep
  • brutal pain. after sittting more than an hour

taking many supplements, eating clean

b vitamins nerve support

After leaky gut from Lyme

Loooking into plasma exchange and hyperbaric oxygen treatments

Desperate for help and feedback and support and ideas on anything

REPLY   2      
Ted's Suggestions for A Fib with POTS (Dysautonomia)

Janet (Indiana) on 02/09/2016

P.O.T.S.Fluctuating blood pressure.... here is a great post from Ted that I found while researching A Fib and related heart issues Dysautonomia

Janet

REPLY   2