| 5 star (1) | 50% | |
| 4 star (1) | 50% |
Sam (NY) on 01/04/2012: 
I was told that there is no cure - but I had been better for 13 years - back then I also suffered from urticaria as well. Via an elimination diet I have identified all the foods that trigger the angioedema - for me it is all proteins, some fruits and veggies. In addition, I take L-glutamine (1 tsp first thing in the morning and last thing at night). This is due to leaky gut syndrome - there is a lot of information on the internet about this.
As I have said before, my doctor told me there was no cure but I have been fine for 13 years. By not consuming the foods that irritate my intestines it can then regenerate itself. Therefore. I eat generous amounts of predigested (hydrolyzed) protein, fruits, non-starchy vegetables, and olive or coconut oil. I found this link - hope it is ok to post it. http://www.betterbodycare.com/Solutions/Causes/LeakyGut.htm I have been following this regimen and every so often - I test myself my eating protein (normal meals) to find out whether I am better or simply because I want to eat again like a normal person. I then have to take anti-histamines to reduce the angioedema which is not a good thing as my kidneys are then affected. I have learnt not to be hasty.
As I am currently living with this condition and I am not yet well - it would be great to learn how others are coping and whether the information I have provided is useful.
All the best,
Sam
Sylviag (Vista, ca, Usa) on 10/05/2011: 
I actually think I may have had a backlash from the oracea which I tried for 3 weeks and I am doing ACV, coconut oil and also the lime/bs in 4 oz of water twice a day. No open sores but still lots of red, dry flaky. shiny tight skin (think- looks like a gottee! ).
I also tried hydrogen peroxide last night for the first time and that did seem very soothing. I have used H2O2 for yrs but never for this and I'm also thinking about ingesting it if I don't get a better handle on this--I don't think I have ever had as severe or prolonged flare as this episode. Food "diet" is going well---just don't eat anything that "might" be a trigger.
Also started back on the glutamine -a very knowledgeable guy from Henry's suggested that be the last thing you take at night so it lays in your intestines.... hope he is right! There almost are not enough waking hours of the day for me to DO all of this stuff---and work too! I am feeling better-just in case my cheerier mood isn't showing?!
Anyway--I'm fighting the good fight and thank you all so much for your input--I'm praying that this too shall soon pass....thanks!
Sylvia
