Christi (LA) on 09/12/2024

I was led to try zeolite for interstitial cystitis. Got a jar of it, and tried a small 'pinch' in water on an empty stomach when I first woke up. I waited an hour to eat. Within less than an hour my constant 'urgency' was gone for the first time since the home with mold in 2019. (At my worst, I got to 23 bathroom trips per day). The pain that I recognized as well as the lack of energy was improved. It even helped my IBS! (found a research study that can happen as well, but it didn't 'cure' the IBS). I have since increased the amount to around 3 pinches with water (then I have to wait a couple hours to eat). I notice I need to be consistent with taking this. I personally believe that I need to

*Also, I've been on a mold protocol diet and if I go off of it, I don't improve. Zeolite was one of the things listed to help with mold detox. Additionally, there needs to be a supplement for Candida: when my IC had gotten worse as I began trying to eat off plan and then became open to antibios since early 2023. The last UTI I refused to go to get antibios because they seemed to make everything insanely worse! I began taking GSE liquid, colloidal silver, and also corn silk tea (read about that on here). I drank that tea all day long for a week until I got the zeolite showed up. The prescription I read for mold recovery (which I have had others say they theorize their IC was caused by mold as well): a binder that works for you (turns out mine is zeolite and it's one of the top ones I find recommended); 2. rotate a Candida supplement: colloidal silver, GSE, berberine; 3. keep detox channels open; 4. make sure home is free of mold; and 5. mold protocol diet until everything is sufficiently detoxed.

So, here is the journey I went through:

First, I had chronic UTIs since 2019. I tried homeopathics for UTIs with only a little improvement. I dearly wished I'd done something (even antibios) for those at the time because I ended up with interstitial cystitis. For the next 4 years, I had chronic UTIs, constant urgency and pain. My energy levels were harmed from this as well (I thought it was my fibromyalgia).

End of 2023, I decided to try to add potatoes back in. I did okay the first time with a little bit. Afterwards, I had to go get saline and antibiotics due to a severe IC bout with dehydration.

Twice more, I tried to add in another food that wasn't on the mold protocol and had the same thing happen. I required far more antibios and it came back right away when I got hot over the summer.

Then, the miracle was in me trying the zeolite (I was always afraid of it tho I knew it was potent). So, I'm so grateful I did!

Zeolite and mold diet protocol. I got another mold exposure and it came back on strong again. Immediately, back to the zeolite and doing better. I'm gradually working up to more.

Rose (Brighton, uk) on 07/26/2023

for Cystitis

2 tablespoons Apple cider vinegar with bicarbonate of soda add water

Quarter flat of teaspoon cinnamon powder mixed to a paste warm milk added

hot water bottle between thighs is comforting

do not drink cranberry juice only drink lots of water

keep feet and kidney area warm

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Lugol's Iodine + DMSO for IC

Audi (Minn) on 07/24/2023

FOR INTERSTITIAL CYSTITIS:

Thought I had a UTI…. I never ever take antibiotics or any other drugs. I had tried all kinds of things - wasn't getting better.
Finally went with antibiotics. Took one round didn't fix it. Thought I needed to take another round, started taking it, looked into my symptoms - read everything I could and came across this recipe.

I did this once in the entire thing was over!
Bada bing - Bada boom!

2 tablespoons distilled water
10 drops iodine (crow's Iodine 2%)
10 drops DMSO.
(All available on Amazon)

Took a glass eye dropper and lying horizontally applied this vaginally, held it in there like 10 minutes did it again, until all of the solution was gone.

And that was that. 👍😃

Feeling cautious a week later… I did it one more round - just to play it safe.

I have never experienced it again, nor had I ever experienced it before.

If you're suffering with this - I highly recommend giving this a try FIRST.

Best Wishes!

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Serrapeptase for Cystitis

Billyjean (Temperance, MI) on 06/29/2023

I have suffered with Cystitis for the past 10 years. I tried most everything, changing my diet, drinking more water, and any natural remedy I could find. Until I stumbled upon Serrapeptase. I only needed to take it for a couple of months. That was about a year ago. I have felt great ever since.

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Angelica Tea for Interstitial Cystitis

mommacita (Michigan) on 05/08/2023

Angelica Archangelica Tea for rebuilding bladder wall

I have had IC for over 6 years. I finally found a cure, thanks be to God. I began using Angelica Archangelica. It has rebuilt my bladder lining wall. Every day the window of pain is getting smaller and smaller. I've been on it 9 weeks and I'm 90% healed! There are several people on the IC board on Facebook that are healing up too. Give it a shot and thank God, if you have bladder wall issues..this is the cure.

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Re: Baking Soda for Interstitial Cystitis

Shabdagirl (CA) on 04/01/2023

I've used baking soda successfully as well, though with a larger dose of about 1/3 tsp. in a lot of water. I don't use a lot of salt, so this wasn't excessive sodium for me. It took me a long time to discover baking soda though, and I seldom use it. Before that, two things made a big difference, in addition to having an acid-avoidance diet. The first was an herbal formula, Marshmallow and Fenugreek by name, only available through Nature's Sunshine; it also contains Fennel. Buying the herbs separately didn't work for some reason. The second thing, which actually made the biggest difference and permanently reduced the tendency to IC, was Styrian Pumpkin Seed Oil from Activation Products. I read something about this oil specifically helping IC, and after I started taking it - about 1 tablespoon/day - after three weeks the tendency towards IC went away by over 90%. If I'm careless with diet it may come back, but I went from having to avoid most foods to being able to eat very normally. I'd experienced IC for about three years before finding Styrian Pumpkin Seed Oil, so I'd tried quite a few things by then. It's pricey, but worth every penny in my case.

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Re: Baking Soda for Interstitial Cystitis

Carole (Connecticut) on 03/30/2023

Been using it for years, I swear by it. People with IC are sensitive to acids and the baking soda is alkaline and calms things down.

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Styrian Pumpkin Seed Oil for Interstitial Cystitis

Holland (Los Angeles, CA) on 05/18/2022

Styrian Pumpkin Seed Oil for Interstitial Cystitis

For several years I suffered from interstitial cystitis brought on by a year's use of an anxiety supplement with low levels of an acid in it. The suffering was often intense, and initially I could only control it through diet, avoiding anything that was acid-forming in foods or beverages. I had a very narrow range of foods I could tolerate. The first thing that started to control it was an herbal formula with Marshmallow & Fenugreek as the main ingredients, with a little bit of fennel as well. But dietary lapses still brought the burning pain with a vengeance. To be clear, it was not a bladder infection as nothing for bladder infections made any difference at all, and I'm not prone to them.

I read an article mentioning Styrian Pumpkin Seed oil as a remedy for this. Desperate, I tried it and within about three weeks the cystitis was basically gone. I used one or two tablespoons/day of a high quality oil sold in a black glass bottle. I don't have to continue with the oil to keep symptoms away at all at this point, though if I eat very badly I can still have a rare reoccurrence of it. I've since discovered that about 1/2 tsp. of baking soda in water will eliminate a temporary flare up within about 10 minutes. My case wasn't as severe as some I've read about, but it was a daily concern, often awful, and I lived in fear of eating the wrong thing. Now, that is all history.

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Marshmallow Root for Interstitial Cystitis

Kristine C. (North Canton) on 10/01/2021

After figuring out, on my own, that I had IC, I of course came to Earth Clinic to see what remedies were out there. My doctor kept telling me I had a bladder infection, only to call me the next day to tell me that I didn't have a bladder infection after the lab results came back negative. The next thing they tried to tell me I was experiencing was overactive bladder and then after that it was nocturnal dysuria. I did a food elimination diet and came up with a long list of foods that would set my bladder on fire. I list them here to help others help with their elimination diet; anything with tomatoes or tomato products, green tea, black tea, coffee, red wine, chili powder, gluten, vitamin C, and certain chocolate products (not all, thank God). After eliminating those foods I thought I would try to rebuild or repair my bladder lining, I started taking Marshmallow Root in capsule form.

After taking it for about two months, I no longer had any burning whatsoever! It was great! Life was great! I thought it was because I was being really restrictive on my diet and thought that the marshmallow root wasn't doing anything -- so I stopped taking it. About two days after my last marshmallow root capsule my bladder started burning again, even though I was still being restrictive with my diet. I eat really bland foods; rice, mashed potatoes, yams, vegies, eggs, etc. and still my bladder was burning? The marshmallow root WAS doing good for my bladder and I, like an idiot, stopped taking it. I have immediately reordered my marshmallow root. I was taking a brand that had 960mg in each capsule and I was taking two a day and my bladder felt NORMAL.

I will never again be without my marshmallow root.

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Bone Broth for Interstitial Cystitis

Tyler A. (CA) on 05/17/2021

I was diagnosed with I.C. two years ago. Only in the last year has it become unbearable with my flare ups lasting for 6 weeks or longer. I eat extremely clean! I do not eat grain, sugar, or dairy. I only drink water and still the flare ups come. I just started drinking grass fed organic bone broth this weekend and OMG it is working! It almost immediately takes my pain and symptoms away. Starting today I will be doing a three day fast only drinking bone broth to really help my lining to heal. I will start to slowly add my lean protein and veggies back to my diet. This is such disease is horrible and only people that have it can possibly understand how depressing it is. I'm sharing this information in hopes that it can possibly help someone else.

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Baking Soda for Bladder Pain

Mama (TN) on 03/24/2021

I have had trouble with bladder pain for the last year. Many things have helped, but baking soda has been the easiest, cheapest, most effective cure of all.

Red raspberry leaf tea helps if I drink at least 2 strong cups a day.

Marshmallow Root and Usa Urvi capsules help.

Quercetin and Bromelain help.

I was drinking the juice of a lemon for digestion and realized it was helping my bladder pain. I realized it was probably helping to make me more alkaline and perhaps that was what was helping.

Now I take some baking soda in water (1/4-1/2 teaspoon baking soda in 1/4-1/3 cup water) 2-3 times a day or as needed and rarely have pain.

I am thrilled to say the least. I hope others with this issue will have relief as well!

~Mama to Many~

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Eva (England) on 04/28/2020

I was diagnosed with Interstitial Cystitis 10 years ago after many unsuccessful rounds of antibiotics for a UTI. At my worst, I was house bound and could not leave the house. I was searching for another remedy and realised that I had never written down what helped me recover and so thought I would pass this along to anyone else who needs help. Supplements I used: Marshmallow Leaf Tea Cornsilk Tea Iron (I was anaemic) Probiotics D-Mannose I went on to an acid free diet and ate lots of lettuce and cucumber, which helped. I also used exercises from Amy Steins - Heal Pelvic Pain. It was slow at first, but I gradually began to improve. I went back to my normal life and diet eventually, although would limit foods like oranges and coffee. If I get ill or run down it flares slightly, but I can quickly get it back on track. I live normally and for the most part do not give it a second thought, so if you are struggling- remember it is not forever. I would also have bad days in the beginning by trying to do too much, but when I rested I would feel better than before. Good luck!

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Julie (Oregon) on 04/24/2020

After much trial and error here is what tamps down a flare up of IC for me every time. Hope it works for others as well. Here is what I take: Grapefruit seed extract: 2caps. ( I think this works as an antibiotic.) UVA Ursi: 2 caps Prelief: 2 caps (I order from amazon but hear Walgreens carries it). D-Mannose: 2 caps ( I now buy this in bulk from bulk supplements on amazon. Way cheaper. Take a Tlb.) AZO 2 tablets. ( for the pain and urinary urgency) Aspirin, ibuprophen or Tylenol ( for the pain). I either lie down with a heating pad or I buy from dollar store a stick on heating pad.

One that heats up when air touches it. Has round disks embedded in fabric that heat up. There is no medication in it. Just warmth which lasts for hours. I usually can only find the kind that goes on shoulders but I put it on my lower stomach and it’s held in place with the two self stick ends and my own pants. Feels very comforting. Usually I just have to do one round of this but occasionally I’ve had to do two rounds in a day. This works every time and stays away until something triggers it again. Sometimes I use it right away before symptoms flare up if I know I’m going to be triggered such as after intimate relations. This works as a preventative in that situation.

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Cheryl (Missouri ) on 04/19/2019

After trying several remedies and acupuncture that would temporarily relieve the pain but would not prevent flare ups, I finally found one that worked. I haven’t had a flare up in 5 months! First thing when I wake up in the morning, I dissolve 2 tablespoons of Diatomaceous Earth in 1/2 cup of water. I will drink coffee but won’t eat breakfast until 2-3 hours later. This allows the DE to sit in my bladder and absorb any inflammation.

This was a game changer for me! When I first started taking DE, I was in the middle of a bad flare up. It took a week to fully subside the inflammation but I could tell it was working. I take DE every morning. If I start to slack off, I begin to feel tingles in my bladder.

Don’t miss a dose.

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Antidepressants Caused IC

Anne (USA) on 02/26/2019

It took about five days after stopping SSRI antidepressant Sertraline for my IC symptoms to clear up.

Researching this issue, I found plenty of medical evidence that SSRI medications along with other common medications are notorious for causing IC and bladder contractions and symptoms of IC. Please check your medications and see if bladder or urinary symptoms is listed as a side effect.

I have suffered chronic pain and infections for over nine months and it all cleared up in five days after stopping Zoloft/Sertraline.

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Anne (USA) on 02/16/2019

Colloidal Silver

After 9 months of antibiotics and Doctors visits for interstitial cystitis and biofilms, I drank one quart of colloidal silver 10-15 ppm and ate 9-12 cloves of garlic which I chopped and swallowed each day. I spaced the silver and garlic out for three or four doses a day not exceeding a quart of colloidal silver a day. I was advised to use this protocol for three months. After one month, I am symptom free unless I start missing doses. I will complete the 3 months.

Online I found a video on how to make a colloidal silver generator cheaply using three 9 volt batteries, two .9999 silver wires, distilled water and two dual ended alligator clips. It costs me about .37 cents a guart to make a quart in 45 minutes using two 10 gage silver wires. I started out slow and increased my dose of garlic and silver until I was at the full dose.

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Aaron (Los Angeles) on 01/04/2019

Interstitial Cystitis and DNA Testing One place to start is to rule out an infection however although culture techniques have improved since first adopted in the sixties they aren't always accurate and/or effective and can miss a surprisingly large majority of pathogens. However today's technological advancements in science have allowed labs to merge microbiology with DNA in order to accurately identify the unique genetic code of over 30,000 known pathogens (bacterial & fungal) along with susceptibility testing which leads to better treatment outcomes and less antibiotic resistance. There is a company called Microgen that specializes in this very field and is used throughout the US by savvy physicians. This test was once very expensive upwards of $700-$1200 but with continued advancements in DNA testing price points have considerably dropped. Microgen in particular will accept most insurance carriers and if for whatever reason your insurance refuses to cover the cost, they charge patients a very reasonable cash price (just under $200). This is at the very least something to do utilizing cutting edge modern science before tumbling down the IC rabbit hole. It could save you alot of suffering and aggravation not to mention countless prescriptions of needless antibiotics that can do more harm than good.

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Great Results with Peppermint Oil for Interstitial Cystitis

Celestine (Berkshire, UK) on 07/16/2020

I realised quite recently that I have suffered from interstitial cystitis for a long time. It has been aggravated at times when I was on the pill and again now that I am on HRT. In the past I thought it was straight cystitis - but often the urine samples came back as negative for infection.

After it became bad again recently, and I was getting up in the night a lot - even though I was only doing a tiny bit of wee each time, I decided to research further. I found a research paper online. It was a very small study. The key learning was that women who DON'T suffer from interstitial cystitis have more menthol in their urine than women who do have IC. Menthol is a by product of kidney function I believe. Peppermint is the plant that contains menthol.

Immediately I started to drink peppermint tea which helped somewhat. Then I bought some peppermint oil capsules. Mine are the High Strength 100mg soft gel capsules and I take one in the morning and one before bed. I'm in the UK so I get the brand Nature's Best. Complete gamechanger! I am getting up only once in the night now. Going much less often during the day. Also just less aware of bladder pain. They are not very expensive so perhaps worth a try?

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Multiple Remedies for Suspected Interstitial Cystitis (IC)

Lynnann (Florida) on 04/28/2018

After two weeks of misery and what I thought was a UTI, I came to the conclusion it's something more serious. After reading up on IC, it seems like this is what I have, and after two rounds of antibiotics plus tylenol, ibuprofen and AZO around the clock I was still in extreme pain. I have cried more in the last week than I have in the last 3 years. I was beside myself. I realize now that long hours of sitting at my desk and working a stressful job where I am overloaded were clearly contributors to my condition. Since the antiobiotics weren't working, I did some research here and found much helpful info from all you folks! Thank God so many people get on here and report what works for them. I went to the health food store and loaded up: uva ursi extract, marshmallow extract, a powdered berry drink called UT Vibrance, colloidal silver, tumeric caps, cinammon caps, parsley caps, quercetin.

The first thing I did though, was ACV and baking soda, and this did seem to help right away. 2 Tbs ACV, 1/4 tsp baking soda (I tried 1/2 Tbs and it was too much, I got diarreah! My bladder did feel better though), and 8 oz of water. I ran out of Stevia so put a little honey in there. It wasn't bad.

Yesterday I stopped all meds, including pain meds, and I did the extracts, the powder and the colloidal silver on an empty stomach, then ate some healthy greens and such a while later and did all the caps. Today I've done a couple rounds of extracts and caps with food, and I am still pretty much pain free! I have hope again! I still feel a little discomfort, but I am not writhing in pain anymore. I do the ACV an hour after I've done the extracts. Don't do this with food as it interferes with digestion.

I am convinced that some of the problem is that my pH was terribly out of balance, and that was a lot of the problem. But stress and sitting for too long were definite contributors. Time to change my life! I truly thought I was a goner, I was in so much pain. I'm going on a trip to Italy with my family in a little over a week and I was afraid I would not be able to go. I have hope today! So don't give up trying, folks. Try these remedies or others on this site to see what works for you, especially if you've tried antiobiotics and have no relief. Also, eat foods that make your body more alkaline, consider juicing (guess I'm going back to this good habit! ). Don't give up. You will find what works. My best to you all!

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