Anne (California ) on 05/03/2022
Many folks with AS test a piece of food with iodine (do not eat test piece). If it turns from amber brown to black it is starchy and then you do not eat it. If the food does not change color then it is not starchy.
I have read many testimonials about how a no or low starch diet is helpful. Beans are starchy and might cause inflammation.
Robert (Ct) on 11/28/2016
Ramesh (Mysore, Karnataka) on 08/03/2016
Take these
Singhanad guggulu tablets twice a day af ( for pain and inflammation)
Chitrakadi Vati tablets twice a day af ( this is for proper metabolism and digestion, since all most all the diseases have there roots from stomach because of improper digestion which leads to accumulation of toxins in between joints causing inflammation)
Curcumin tablets( turmeric) twice a day af ( works excellent for inflammation and pain)
Vatari Churna powder 1/2 tsp twice a day af ( for pain and inflammation )
Shilajit tablets twice a day ( for maintaining high energy levels)
Liv52 tablets 2 tablets 40 minutes before food
Apple cider Vinegar 2 tsp with 2tsp of Manol tonic morning 30 mins before food
Omega 3 tablets 500 mg twice a day
B Active multivitamin tablets twice a day.
Rejoint ( Glucosamine ) tablets twice a day along with food.
Take trice a day ginger tea ( boil raw ginger and add 1tsp of honey) after food. This is a natural pain killer and anti inflammatory.
All these above mentioned are Ayurvedic medicines and Supplements with zero side effects.
Along with I take..
Sulfasalazine SD tablets 1000mg + Voveran Sr 75 mg twice a day.
Folitrax 20 mg once a week.
I do 2 hours of weight trading exercises 5 days a week which very much keeps me fit and mobile, as you know that more muscle mass in your body will helps in better metabolism.
I also do 30 minutes of Pranayama Kapalbhati and Anulomb vilomb each daily.
Drink at least 10 glasses of water every day and sleep for at least 8 hours a day only in the night. Sleeping during day time will impair your metabolism and digestion which is agin a cause of all types of arthritis. Have your food in a fixed time every day.
Sit calm for alteast 15 mins a day only focussing on your breath, you will see how you automatically start breathing deeply.
Avoid these...
Gluten, Milk, Fried food, Sugary food, white flour, Smoking, Drinking, Cold water bath, cold weather. Unwanted stress ( mild stress is in fact good for human beings) and negative people and thoughts.
Try following this regime and have patience for the results will start showing.
I am almost leading a normal active life now, my sex life is also very active.
Apple Cider Vinegar for Ankylosing Spondylitis Bee (Vancouver, Bc) on 03/30/2016
I kept a large 1.5 L bottle of water at work and I would add about two or three tablespoons of ACV in it. I would drink it throughout the day. Well I noticed almost immediately that my symptoms subsided. I was still getting discomfort at night but nothing like before. The improvement was about 70%.
On the days I would forget to drink the ACV, the pain returned with a vengeance at night. One night before going to bed u panicked because I realized I had forgotten to drink the ACV earlier. I panicked and grabbed a tall glass of water with ACV in it and just chugged it down before going to sleep. That night I had zero pain. I realized that the key was to drink it within 20 minutes of going to sleep. I now sleep painlessly! It's a miracle. I use organic acv.
I hope this helps someone.
Judith (The Netherlands) on 03/27/2015
A.S. is an auto-immune disorder. It has everything to do with a bacterial imbalance in the gut. And of course our genetic sensitivity for this disease. Getting diagnosed with this doesn't mean we cannot change anything. We can. I proved it to myself and I am happy as a child now!! I can walk again, ride my bike. No more pain and misery. I want to ask people with A.S.: please give it a try! Read more at KickAs.org.
Sean (Uk) on 10/29/2014
Really interesting to hear your stories.
I have been treating my Ankylosing Spondylitis - drug free with diet for over 22 years. I am now 48.
I fully subscribe to the Klebsiella theory of Ebringer... but the work by Dr. Fasano regarding tight-junctions in the gut and gluten has made we see that control of gut permeability is "everything" to this disease. I can eat most foods but avoid gluten based foods (including drinks, beer / lager) like the plague - in recent years (last 2) - I have taken not 1 single NSAID - even when I have had a headache / migraine.
I take Vitamin D, Magnesium, Zinc, Selenium and Manganese.
I am in the best shape regarding controlling my AS than I have been for over 10 years.
Knowing what I know and my result - I can see that low-starch / modified paleo is a gold-standard but start with reducing foods that cause leaking gut and then progress to the stricter regime if you need to.
BTW - I got here searching for PRONASE - as I had read a medical study about Streptococcus infections. I have a friend with Psoraisis and Psa.
I read too that Pronase can inhibit the immune response to Strep that can fuel some forms of auto-immune disease. But again... gut barrier is always key.
Mike (Pittsburgh, Pa) on 06/09/2014
OK I wanted to share my story. I'm 46 male and have suffered from back pain for years. For those of limited attention here's my verdict: it works! I can't tell you what a relief it is to have MULTIPLE days pain-free. I wake up thinking I will be in pain but it's just not there anymore. This after 15 years of constant pain. I'm almost hesitant to report it because I don't want to jinx myself.
Anyway, at about 30 I was diagnosed with herniated discs, degenerative disc disease, and possible ankylosing spondylitis. I was told that I would have to learn to live with arthritis pain and take NSAIDs. I did this for years and finally upgraded to narcotics. This didn't last long because I didn't like falling asleep all the time.
A few years ago my dad had back surgery and was diagnosed with AS so I'm sure I have the gene too. I have suffered from back pain since a young kid but was told I was just chubby and to suck my tummy in. That was an actual diagnosis from a doctor too!
So I learned to grin and bear it. Literally I took nothing for years - not even NSAIDs because they were ineffective. But every year the pain got worse. So somehow I stumbled on EC.. I don't even remember how but I just started reading and was hooked.
I found the baking soda remedy and tried it with limited effectiveness. Then I kept reading EC and learned about black strap molasses and ACV...VitaminShoppe and GNC became my new hangouts. I tried lots of cures for pain/inflammation and had some success. But what I am currently doing has been nothing short of miraculous and I will tell you exactly my regimen further along. I am so happy I made the investment of time in order to learn about my ailments. I could have done it without EC but it would have been so much harder on my own. I owe a debt of gratitude to EC for putting this together for people like me.
MY Ailments:
Arthritis - lower back and SI joints
Anxiety
Depression
What I tried:
Niacin
Apple Cider Vinegar pills (careful with these)
Bragg's ACV
Baking Soda (temporary relief)
Ginger
Garlic/Cayenne
Tumeric
Vit D
Fish Oil
Copper
Boron
BSM
H2O2
Borax
L-theanine
L-thyrosine
Ashwagandha
5-HTP
My current regimen:
Boron 12Mg daily (until relief - currently not taking)
Borax 1/4 tsp per day diluted (every day not just 5 days)
Bragg's ACV 2 TBSP diluted x 2-3 per day
Ashwagandha x 3 per day
5-HTP 1 x per day
Magnesium
Low starch diet
BSM 1 tsp in my coffee
Copper 3 x per day for my gray hair... still under review
What was effective for my arthritis:
Borax/Boron
Ashwagandha - awesome for inflammation
After reading up on the borax cure I realized that you need high doses in order to be effective. Please do your own research but 10-30Mgs will not hurt you. Yes it tastes like crap. I mix mine with only a limited amount of HOT water. If you mix it into cold it does not dissolve completely. Then I mix it into juice or iced tea and do a shot, followed by a H2O chaser. This is how I like my ACV too. Get it into you and chug water. I don't know about all this "can I sip it throughout the day" people out there... I don't like it short-term why would I like it long-term? I'm getting off track...
My pain kept me laying on the floor most of the day and it was a real hardship to do anything. After 3-5 days of taking high levels of borax I found relief. At first I thought it was just OK... and waiting for symptoms to return. But they only came back when I abuse myself. That is - I either stop taking my supplements or I break my diet. The other day I ate a really starchy meal that was served to me. I flared up and for me it starts in my feet... everyone is different. But I know the cause and that is POWERFUL. I can control my disease now.
So, while Borax has been effective for me, I can't discount the effect of diet. Anyone suffering from arthritis should review the effect of diet on inflammation. I am currently trying to do a low-starch diet and this was only after talking to people on EC. Good luck being starch free in this world - everything you look at is made from it. And wheat of some form. Ugh.
Anyway. Google it - but what I found was that there is a school of thought that arthritis pain is caused by a microbe living in the lower intestine. They are there naturally but when your diet consists mostly of wheat and starch the population explodes! The idea is - reduce the wheat/starch that feeds these microbes and you will lessen your arthritis pain. So far it's working for me!
Any questions I will be happy to answer...
Wendy (London) on 02/07/2014
I do take issue with the posters who say Cod Liver Oil is bad. My husband has Ankoloysing Spondolitis (sorry not sure of spelling) arthritis of the spine. This first came on when I first knew him age 29. Sometimes he could hardly walk for the pain. He read about cod liver oil and started to take it off of the spoon. Within 3 months the pain had gone and he has taken it every day since and he is now 70 years old.
Zark (Emerald City, The Land Of Oz) on 11/07/2013
I have had Ankylosing Spondylitis for well over a decade now. It gots so bad at times that I would think about my bleak future, that I didn't want to live that way in constant pain and unable to move... well, I just wanted out if you know what I mean.
One day, quite a few years ago, after having terrible food poisoning I couldn't keep my food down so I decided to fast on water until things calmed down. I was puking and getting bad diarrhoea too. My body just cleared everything out of my gut in both directions. There is a stark memory of me throwing up one last time and there being nothing left in my system.. minutes later the pain and inflammation in my obdy started to clear!
This pain had been my constant companion for years, and only strong drugs could ease it. In fact the disease had gotten so bad that even potent anti-inflammatories (NSAID class) could only do so much for me as the dosage becomes too toxic at higher doses, so there was a limit to how much I could take.
Well, that experience of no pain after clearing my gut out was fascinating to say the least, as was the physical, emotional and mental effects of fasting (all good! ). And when I started eating food again the pain came back :-( Well, to cut this long story short, my experiences proved to me that food was somehow triggering the disease.
It has taken years of carefully observing my body to really understand what works best for me. But to put the diet in simple terms:
== I can't eat these ==
Starchy foods (including buckwheat, quinoa, spelt, etc); All grains (flour, wheat, corn, oat, except oddly enough glutinous rice); Potato, Bread, Starchy legumes such as peas and lentils; Beer :-(
== Safe foods ==
All oils, All leafy greens, All meats, including seafood, Soy sauce (starch gets fermented), Most vegetables - broccoli, carrot, garlic, onion, ginger, long green beans..., Tofu (starch is removed in traditional processing), Coconut
Brad (Providence, Rhode Island) on 01/12/2012
Anyway I finally caved in yesterday and went to a naturopath who truly believes that the triggers are probably the wheat and dairy for I was so young when I contracted this affliction. At 5 I had no stress, no mercury fillings, no toxic mold, no nothing. Talking to my mother yesterday she said when I was 2 years old I was allergic to milk. Well with my perserverance and the help of the n.d., I damn well hope I am about to turn the corner. I want to say goodbye to 2011 the worst year of my life even though I learned so much about candida, leaky gut you name it.
If I could do the holistic approach over again my first step would be to see an allergist then a naturopath. Sometimes reading so much can set you off course. Day 2 no dairy no wheat absolute cake walk. I am expected to see results in a month and substantial results in two months said the n.d. Well thanks for all who read this, love E.C.- read everyday and 2012 gonna keep it simple and spirits are high. God bless and screw big pharma.
J (Lucknow, India) on 09/07/2006
