Lou Gehrig's Disease

Most Recent Posts

Apple Seeds and Oil for ALS?

john (PA) on 02/06/2024

Apple Seeds and Oil for ALS?

(found in an old health pamphlet Secrets of Youth by Robert Collier from 1941)"Portland, Oreg. Aug.12,1940. Apple seeds are rich in a muscle regulating substance, probably a vitamin, whose discovery was described today at the University of Oregon Medical school."Eating ground apple seeds, or drinking the oil which is pressed from them, both caused remarkable recoveries in animals near death with wasted muscles. The muscular diseases from which the animals suffered were experimental, but were precisely the same as a serious class of human ill, Loou Gehrig's trouble is ONE ... of this kind..........

"The oil was a complete preventative for the muscular paralysis even when all Vitamin E was removed from diet." (copied verbatim from the small booklet 50 pg. from 1941

perhaps the oil relates somehow to the myelin sheath of nerve tissues as was demonstrated many years ago with the use of a Vitamin E fraction called Octocosanol and its protective and healing potential regarding MS).

REPLY   5      

ALS And Potential Help From Fecal Microbiome Transplantation (FMT)

Art (California) on 07/05/2023
5 out of 5 stars

This recent case report (January, 2023) Involves a woman with Amyotrophic Lateral Sclerosis (ALS) / Lou Gehrig's Disease. It is just one case report, but I wanted to mention it because of the treatment used, Fecal Microbiota Transplantation (FMT) and the results gotten from FMT.

Here is a link to the report :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9898040/

It is worth mentioning that they used the newest form of FMT, Washed Microbiota Transplantation (WMT) in this woman and the results were fairly impressive compared to just about anything else that might be used for ALS.

The woman suffered an accidental trauma to her scalp after starting WMT, which her doctors treated with antibiotics, unfortunately the antibiotics caused the ALS to deteriorate significantly again. WMTs were deployed again after the antibiotic regimen as a rescue treatment which quickly reduced the worsened symptoms again and stopped the progression of the disease again. She received a new WMT every two to three months and this stopped the progression of the ALS as long as she continued with the regular application of WMT, though they weren't very clear on that point.

During the course of WMT, symptoms would reverse and then plateau in a sequence during the course of WMTs. The report reached the following conclusion based on this single case report :

' The stool and blood samples from the first WMT to the last were collected for dynamic microbial and metabolomic analysis. We observed the microbial and metabolomic changing trend consistent with the disease status. This case report for the first time shows the direct clinical evidence on using WMTs for treating ALS, indicating that WMT may be the novel treatment strategy for controlling this so-called incurable disease. '

I felt that this case study illustrates the potential of FMT/WMT as a viable treatment for ALS and possibly other diseases. Currently, FMT in the US is used almost exclusively for Clostridia Difficile (C-diff) infection that does not respond to standard antibiotic therapy and in such cases, can be fatal, so FMT is more of a last ditch effort.

With this new form of FMT, referred to as WMT, the transplants are filtered and cleaned or washed to make them safer than ever before. It isn't mainstream yet, but with future studies, WMT appears likely to become the new standard for FMT.

There are currently no known treatments that can stop the progression of ALS, but this case report is showing the potential of FMT/WMT to do just that. Given that ALS patients have an average life expectancy of just 3 to 5 years, this is huge and important news for people with ALS, but this case report received little if any news coverage.

My impression from this case report of an ALS patient using WMT as a treatment is that starting treatment immediately after diagnosis is important because while WMT may have stopped the disease progression and significantly improved symptoms, it did not completely reverse symptoms, so starting before there are very significant symptoms may offer the best chance for the best quality of life and outcomes for ALS patients.

Art

REPLY   6      

Re: Need Advice for Mother Recently Diagnosed With ALS

Charity (Faithville, Us) on 10/27/2020
5 out of 5 stars

I was just watching Eric Berg on youtube teach help for RA and he was talking about how low potassium is behind it and then he said low potassium can cause cortisol issues. So that is interesting. I read years ago on some graph that low potassium was noted in ALS and another crippling disease. It stuck in my brain. Not sure what that site was it was so many years ago, it was a graph of minerals in different diseases. I was circling trying to solve my own health issues, the graph was made from using hair analysis.

This cortisol link with potassium is huge. Most people are cortisol resistant due to too much trauma overload and insulin resistant due to too much sugar but also can be caused by stress and not diet. I read in one site that a diet with no refined sugar but loads of stress made teeth rot out below the gum line from cortisol/

Cortisol production drains the whole body of minerals and hormones and nutrients. I guess that is why the bible says fear is a sin. I hope this opens a window for you for some fresh air.

Blessings, Charity

REPLY   6      



Need Advice for Mother Recently Diagnosed With ALS

Sherry (TN) on 10/20/2020

Hello, I am gratefull for all the help I have received on this site!!

My Mother was recently diagnosed with ALS. So far she's only lost some use of arms. Now I am needing help in knowing how to proceed. I ordered supplements to begin Ted's basic ALS treatment-Lysine, threonine, glutamine, zinc, lithium carbonate, beta glucan, vitamin C, ascorbic acid, and BCAA. She will also go on sugar and gluten free diet.

I have a list of medications and supplements and am needing to know if any should be discontinued or anything added:

Riluzole 50mg 2x a day

Olmesarton-HCTZ 20/3.75

Progesterone 200mg

Synbiotic 365, Aleve gel, Womans Alive Vitamin, Vit. C, Elderberry, Omega Q10, Glucosamin Condroitin1500/1200, Red yeast rice, Lutein, low dose aspirin, Melatonin 10 mg, and Unisom Sleep

All help appreciated and I would love to hear Ted's recomendations!

REPLY         

Multiple Supplements Not Helping ALS

B.B. (Dallas, TX ) on 03/13/2019
3 out of 5 stars

Hello Ted, I am a 53 y/o woman that was diagnosed with ALS in 2018. I have lost use of my hands and have muscle atrophy in both hands and shoulders. My gate is now extremely shuffled. I also suffer from muscular twitching upper and lower body. My speech is slurred and I also have dysphagia when attempting to consume meals. My labs have revealed that my metal toxicity in my blood is extremely high. I have tried an abundant of supplements however nothing appears to be helping my symptoms. Is there anything that you can recommend.
REPLY         

Ted's Remedies for ALS

Janet (In) on 02/25/2017
5 out of 5 stars

ALS.. time and effectiveness are critical in your challenge. Here is Ted's chapter of emails responding to many folks needing help.

We have found Ted's remedies to be spot on with many serious illnesses. Almost every single thing is available on bulk suppliers, google bulk supplements, Amazon or ebay. The critical types of b vitamins for the most effective help I will mention is Swansons Activated b they sell 2 strengths buy the higher strength. Because you need to have the most bioavailable b. This is the only affordable one I have found.

Only buy powders and capsules you will get the best results. No pills.

I make my remedies at once. Usually in the morning for the day. For instance my lysine, threonine aspirin, methylene blue, sodium ascorbate, I put 4 doses in a bottle of fluoride free spring water. They are 10 to 12 oz. I mark 4 doses on the bottle. I pour out some water to make room. Add the ingredients. Shake and take teds recommendations of timing.

Methylene blue comes as a powder in a bottle. You fill that bottle with water, shake. Then you take 1 2oz dropper bottle, Amazon. Droppers usually only fill 1/2 way. Take 2 droppers of your original solution into dropper bottle add water carefully to a little below top you need room to put the dropper back in. Make this on a glass plate as it stains. If it spills, citric acid or lemon juice take it out easily.

Here is Ted's chapter. Janet

https://ted.earthclinic.com/cures/als-natural-treatment-supplements8.html

REPLY   7      

Dietary Changes, Supplements Helping Father With ALS

K (Florida) on 06/03/2016
5 out of 5 stars

My father was diagnosed with Bulbar Onset ALS.

He has been having great results with a combination of a strict gluten-free diet, no sugar, and supplements.

We did our own hair toxicology test from test country labs. His results showed he had 3 heavy metals in his system and also a deficiency of iodine and potassium. He is now using a feeding tube formula called, 'Liquid Hope' made of organic food. We have been doing green juices, ingesting 8 oz of coconut oil per day, msm powder, vit c water (bought powder form), and added filters to all our water sources.

Please test for heavy metals and test for proper liver function.

One friend has stopped his ALS symptoms by adhering to a strict sugar-free, gluten free diet and detoxing his system. We are seeing results as well.

My father was diagnosed by Mayo who promoted the Deanna Protocol..no significant changes or slowing of the disease. It seemed like a profit maker as anywhere the Deanna Protocol name was, it was followed by a trademark symbol. Our doctor had no clue what half of the supplements were and there was way too much creatine involved. Most of the DP supplements were synthetic.

Some naturopathic drs have been able to provide liver flush type treatments.

Please test for toxicity and liver function. If doctors won't do it, tests are easily purchased on amazon or directly from the website.

We had instructions and did ours at home. Don't wait for these experimental tests...because half of the people are given a placebo. It's such a waste. Diet and exercise. Keep moving and never give up!!!

Surround yourselves with supportive people, not victim-minded ill people who have already given up mentally.

REPLY   13      

DMSO and Colloidal Silver Questions for Brother With ALS

Roger (Charleston, Wv) on 10/06/2015

My brother was diagnosed with ALS in June. What r some of the treatments that u make and how to use them, ie colloidal Silver and what is DMSO, if any other. I have been told about the coconut oil.. How does that work, do u drink it or put it on your skin. Thank u anything to help him PLEASE
REPLY   2      

Dietary Changes, Supplements Helped Possible ALS

Alon Shomer B.sc. N.d. (Jerusalem, Israel) on 02/02/2015
5 out of 5 stars

I treated a person that came to me several years ago.

He complained that he is progressively losing control over his legs making it difficult to walk, and that he has lots of muscle twitching in his left shoulder.

Since I believe that most of the CNS diseases are caused by funguses, I treated him for candida:

Mainly - no sweet beverages or drinks of any sort ( including fruit juices) at any time.
Large amount of probiotics. Very little sugars including fruits.

Diet: as much as he wanted vegetable salad with olive oil.
Semi hard yellow cheese or camembert (made with rennet and bacteria). Green drinks (green vegetables with one carrot only). Rice (small portion). Meat that was cooked or grilled for about two hours (moderate amounts). Eggs - two to four a week. Almonds soaked in water over night. Miso soup with wakame. Nuts and seeds

Supplements: (5-6 days a week all supplements) multivitamin and minerals. + zinc picolinate 10 mg + fish oil (3 times more EPA then DHA) 300 to 500 mg + vitamin E 200 mg mix tocopherols +1000 mg lecithin + B12 (4000 microgram a week) + vitamin C 500 mg + probiotics several strains, 2 capsules 4 times a day.

(He was instructed to wear copper bracelet, but today I will replace it by using on top of the one mg of copper in the multi, 3 mg of copper twice a week separated from any other supplement).

Exercises - at least 20 minutes a day, whatever he wanted to do in order to burn up calories, preferably before going to sleep.

In few months all his symptoms disappeared and all functions became normal.

I am unable to say for sure that it was the beginning of ALS but it is definitely worth the try.

REPLY   22      

Re: Natural Treatments for ALS/Lou Gehrig's Disease

Nm (Usa) on 10/30/2014
5 out of 5 stars

For Neurological diseases, ALS, MS, etc... try Plumbum homeopathic 30 or 200, Causticum is a huge central nervous system remedy, Calcarea Carb, Arsenicum in some cases... Bryonia is another... Main ones to try though are the first two... Search "homeopathy +als or ms and read the descriptions of each remedy and find the one that fits your symptoms... I got great assist from plumbum & causticum... Calc Carb also helped.. Try to be happy because mood can affect these diseases as well.
REPLY   4      

Re: Natural Treatments for ALS/Lou Gehrig's Disease

Medicineman (Harrisburg, PA) on 09/01/2014
5 out of 5 stars

Treating ALS:

Coconut oil is fine. What you want is an overall healthy diet of real foods. No processed, no farmed fish. As wholesome and close to the land as possible. It should be a lifestyle.

The biggest contributor to mucus is dairy. Eliminating dairy from the diet would be my first go-to.

Run with this iodine and vitamin C (and take a multi for safe measure).

You need to detox. Iodine will detox heavy metals and help get systems back online. Vitamin C acts as like a shuttle service for the iodine going in as well as the toxins going out.

My father died of ALS years ago and suffice it to say - you'll get nowhere with the standard medical procedure. Rilutek is a joke.

ALS is caused by toxicity, stress, and degradation of the systems. All of which can be brought back to working order, I believe.

Dosage wise take 1-2 grams of vitamin C every 1-2 hours. Maybe stop closer to bed time as it can keep you up at night and rest is important.

Iodine you'll want to aim for around 1000 mcg. Gauge yourself at maybe half that or less. Iodine will produce detox effects that are flu like and depression.

If you're getting heavy detox symtoms just dial it back a while or take a day off.

Iodine is about the long game, it can take a year for it to do its work fully.

I like kelp as a source, because it's in its natural form with other companion nutrients that will help absorbtion. Sea weeds also have addictional detoxifying elements in them ontop of iodine.

But that's the gist of it. Health is a natural, organic process. It doesn't happen overnight and won't come from a pharmaceutical drug.

We come from nature and our road to wellness is a natural one.

Namaste', C

REPLY   10      

Consider Antiviral Remedies

Dave (Fountain Inn, Sc) on 01/14/2014
5 out of 5 stars

In reply to:

Posted by Mr Don (Gold Coast Australia) on 01/14/2014: My 70 year old wife has ALS for at least 8 months she is finding it hard to talk now and has trouble eating and sometimes breathing She is also losing strength in her arms She has herpes virus for many years. What can you suggest as a treatment I have been told that rhinacanthus root powder can reduce the amount of glutamate your body produces. Is this correct? Where can I purchase this product? It is widely used in the Bangkok uni. Regards Mr Don

If you google search "ALS herpes simplex" you'll find a number of articles on the possible connection. "Pub Med" has one such article. That article has connect with a specific type of ALS. You said that your wife did indeed have the virus long prior to the ALS onset.

The point is, if I were suffering from ALS I'd consider the possibility of a virus as either a trigger or the underlying cause of the ALS and would at least try to rid the body of the infection. I use a number of anti viruses, my favorite being Colloidal Silver; also Echinacea, tea tree oil... lots of "go to virus killers."

On the CS, I'd take orally three tablespoons daily for three months. I'd also do the CS as a nasal irrigation.

I know your wife must be very frightened. Encourage her never, never to lose hope. Same for you, "Mr Don." This is a terrifying disease to combat and I'll be praying for you to have wisdom and strength through it all.

Your friend here in America,

Dave

REPLY   6      

Re: Father in Law With Als

Timh (Louisville, Ky, USA) on 04/11/2013
5 out of 5 stars

In reply to:

Posted by Sarah (Carlyle, Illinois ) on 04/10/2013: My father-n-law has recently been diagnosed with ALS. We are having a really hard time to figure out what to do to help him. His progression is coming way to fast he is really having a tough time sleeping, problems with saliva, constipation and he is also very depressed. He has doctor appointment this Friday at the ALS clinic in St Louis. Ted, I need your help.

Sarah: I'm not Ted and cannot offer any specific recommendations, BUT I just watched an ihealthtube video of Professor Garth Nicholson of the Institute of Molecular Medicine speaking of his successes treating degenerative and chronic diseases with Lipid Replacement Therapy (LRT). He mentioned only recently using LRT in degenerative neurological diseases with success.

REPLY   2      

Branched Chain Amino Acids for Als

Angela (Modesto, Ca) on 04/05/2013
5 out of 5 stars

Hello all! This question is for Ted

It's been a while since I posted, I have been busy with the care of my dad who is healing from als. He is being called the 'new' miracle man. Ted has been of major and effective assistance in this arena and my family and I continue to be grateful for his contributions. I wanted to ask Ted if he knew of any side effects of branch chained amino acids for someone like my dad who is not on any medications - except for acid reflux and constipation which are both PRN. He breathes room air (never been on oxygen) and continues to seek natural ways to help his muscles repair and rebuld themselves. What is your opinion on BCAA's positive and not-so positive?

REPLY   9      

Coconut Oil for Als/Lou Gehrig's Disease

Jacques (St-georges, P.Quebec / Canada) on 02/02/2013
5 out of 5 stars

TO MR TED, I am treating a case ALS presently and I found at many sites on the web that the coconut oil ( or MCT OIL) is very helpful with many positive results. You write on your pages to do not use ANY OIL ?? What do you think about these very good results and are you encouraged to use it ?? Your opinion will be very appreciated.

Also from all information, you put on your pages in regard to the colitis ulcerous, please be informed I treated 4 cases with 100% success without any recidive. Thank a lot to you.

Waiting yours comments,

Jacques from Canada

REPLY   10      

Mnd Connected to Epidurals

Janice H (Eastaboga, Alabama, Usa) on 10/10/2012
0 out of 5 stars

Ted, I followed your guidelines on the mixture of enzymes for my brother-in-law who was recently diagnosed with ALS after a process of elimination for other causes of MND. He said his kidneys seem to be overactive and after 5 days of treatment he was exhausted from sleep deprivation due to trips to the bathroom all night and day. He was drinking fluids yet still feels dehydrated. Is this normal when starting enzyme-treatment? Other concerns: He was water skiing (on one/two ski) this time last year, and rode his bicycle 500 miles in Jan (2012) when he had lower back pain & knee pain; his doctor recommended a regimine of 3 epidurals beginning in Feb (2012). Immediately after the first epidural he had severe muscle cramps and pain; his doctor recommended potassium and continued with the other 2 epidurals. Soon after he began to stumble and fall; loose strength and use of his hands. He continues to have pain in limbs, and recently fell injuring his shoulder; so he doesn't have paralysis; he just can't control his limbs. He has no problems eating or talking. His doctor refused to connect the epidurals with his sudden loss of control of his limbs. Recently there has been a recall of medication used in epidurals for back pain due to contamination resulting in "fungal miningitis epidemic" in the USA. NO DOCTOR WILL ADDRESS THIS ISSUE WITH MY BROTHER-IN-LAW; he has always felt this sudden onset of MND is related to the epidurals. What would you suggest his next approach in this matter? Thanks so much, I read all you material! Janice H
REPLY   2      

Lysine and Threonine for ALS

Chris (Pueblo, Co) on 06/09/2012
5 out of 5 stars

Warning

I have been helping a friend with ALS/Lou Gehrig's through the treatment recommended starting with the Lysine and Threonine as foundation. The Threonine dramatically increased mucous production in my friend and her breathing, which was strong before, had suddenly become labored. I did some more research on the Threonine and discovered on the WebMD site's description of Threonine side effects stating:

"Amyotrophic lateral sclerosis (Lou Gehrig's disease): There is some concern that threonine might decrease lung function in patients with ALS. In one study, ALS patients taking 4 grams of threonine per day had significantly reduced lung function compared to patients who did not receive threonine..."

And this is exactly what we saw. With all the symptoms of ALS she showed, the reduced lung function has not yet been one of them. But the introduction of Threonine directly coincided with a dramatic effect on her breathing. She said it felt like an elephant sitting on her chest.

On the positive, she previously had a clenched feeling in her throat that was pinching and really wearing her down. Since taking the Threonine, this has noticably relaxed and made it much easier to bear. But the thick mucous increase and belabored breathing is a bit scary, especially since many ALS sufferers die from this aspect. We are stopping the Threonine in hopes that her breathing will return to normal. If it doesn't I may counteract it with arginine, but I know this supports the possible viral function that we are attacking with Lysine. So I want to be careful and take it one day at a time.

I just felt it important to share this experience in case it is of help to anyone else out there.

REPLY   3      

Medication Combinations and Lou Gehrig's Disease

Heather (Sudbury, Ontario, Canada) on 10/22/2009
5 out of 5 stars

Warning

Many people who are on a combination of diabetic medications and cholesterol medication find that they develop symptoms that mimic Lou Gehrig's Disease.

I know of at least 5 women in my town who have been mis-diagnosed by their doctors. One had gotten to the point of all her muscles collapsing and her lungs and heart were stopping working. Luckily, a new young surgeon at the hospital's emerg. department realized what was happening and took her off the cholesterol medication. She went from almost comatose to up in a wheelchair in 3 days, and walking by day 5. Apparently diabetic medications or cholesterol medications by themselves are fine, it's the combination that's terrible.

REPLY   9      

Remedies of Lou Gehrig's Disease

Crystal (Centerville, IA) on 12/13/2008
5 out of 5 stars

ALS

Iodine tablets have improved my energy levels, lifted body temperature which runs low, helped my tired eyes and overall well being. I would add it to the list of 'musts' for ALS since I have been diagnosed with that 3.5 years ago. Also, Iodine is great for a natural heavy metal cleanse which goes hand in hand with so many health issues including candida, cancer.

The biggest thing with ALS is to stay away from medications like Baclofen. No medication will help ALS but rather will cause quicker deterioration of physical, mental, and financial health!

Baking soda taken as prescribed on the box is excellent for skin issues that won't heal and are cancerous looking. Research electrolytes and you will see what essentials are needed for our body to function.

I am 54 and going strong!

REPLY   7