Posted By Bkk (Bangkok) on 05/02/2012
Hi I'm an Indian living in Bangkok suffering from Ulcerative Colitis, which was diagnosed in Jan 2010, in Bangkok.
It has started with bleeding diarrhea and no other symptoms as such. Got colonscopy done and confirmed as UC. I was on mesalamine/anti-diarrheal/antibiotics for long. There was remission. Later, however, there were on and off flare ups but usually got controlled within a months time (I was asked to use hydrocortisone ano-rectal aerosol and mesalamine suppositories in between).
I kept reading about UC and told myself, I gotta live with it. However, I was always scared of the part where the flare up has to be treated with steroids, esp because of the possible side-effects. And recently (rather currently), I got a flare up after good 3 months remission, and gone haywire. I was admitted in hospital (fatigue/anemic). I was given drips/antibitocs/IV steroids for two days. Now I'm on tapered steroid (methylprednisolone) dose. As of now, I feel ok. Frequency of stools have gone down to a maximum of twice a day and bleeding has reduced to a certain level. However, the formation of the stool isn't normal, as in, not solid yet. The tapered dose ends in next 3 weeks. So in total, a months usuage of steroids.
1) I want to know if I need to be worried about any side effects? For which, the answer might be yes. So, I would like to know if there is any chance I can minimize those.
2) Any tips on having a longer remission (in my case) will be really helpful too.
3) If there are any UC groups/meet ups/community in Bangkok to NOT feel alone. Please advice.
4) Also, living in Thailand, with spicy food around, is not easy either. Food suggestions would be great too.
This forum sounds very helpful, so I thought this would be the right place for my first post ever on UC. Hoping for any feedback. Thank you. Bkk
Replied by Rsw (Uniontown, Oh) on 05/02/2012
BKK, Look into low dose naltrexone at www.ldninfo.org
It has been proven in clinical studies to help Crohn's disease and many other autoimmune diseases, without side effects and is non-toxic. The LDN site will tell you how to join the Yahoo LDN Group where you can read about the experiences of over 11,000 members and ask any questions you may have. Many with intestional problems say it changed their lives. It modulates the immune system. Best wishes!
Replied by Bill (San Fernando, Philippines) on 05/04/2012
Hi Bkk... I would go with Ted from Bangkok's remedies which are given in this link here. Ted has said that mycobacterium are always involved with UC.
Other additions which will help your condition will be the following;
* Tumeric herb(Haldi) -- See this link. Tumeric will both help to heal the UC and it apparently stops flare ups, reduces pain and reduces blood discharges. You can just add a level teaspoon of tumeric to Green Tea and drink this three times a day. Green Tea also helps stop diarrhea.
* Bentonite clay -- A tablespoon with a glass of water outside mealtimes. This clay works because each particle has a negative charge and attracts all poisons, bacteria, viruses etc in the intestines that have a positive charge and makes them safe for you to excrete. Bentonite also tends to constipate and harden up stools which would also help you. Bentonite(food grade) should be taken outside mealtimes and is usually enhanced by taken it together with psyllium husks s well.
* Alkalize your intestines using Ted from Bangkok's Alkalizing Remedies will also help you here.
If you prefer, since you also live in Bangkok, you could also arrange for advice or a consultation with Ted from Bangkok himself -- here is his email -- [email protected]
Replied by Gordon (Sunderland, Tyne ) on 05/06/2012
sodium bicarbonate has a plethora of uses, it can alkalise the body which will assist in healing inside and out, fight infections inside and out, combat fungus overgrowth which all occur when you are run down and ill.
I have heard 1/2 a teaspoon full in a glass of water (or more if required) on an empty stomach is all that is needed to see some results as long as you have no sodium restrictions.
hope that is a help?
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