Replied by D (Oz, KS, US) on 04/24/2009
would msm, collostrum, or noni juice help heal you? just google and read. wishing you well!Replied by Genevieve (Welch, West Virginia) on 07/05/2009
Hi, I have collagenous collitis my Doctor put me on Lialda it seems to be working for me. I will know in 6 to 8 weeks. I hope this is a medication I will not have to take the rest of my life.Replied by John (Cerritos, Ca) on 11/16/2009
for collogenous colitus: for immediate relief p.b. pink pills two twice or three times a day. Also a very good probiotic once a day (for the rest of your life.The p.b. should work in two or three days and you may taper off when the diarhea either stops or really slows down
EC: Ahh, Pepto Bismol pills. We thought for a moment there you were referring to pyridostigmine bromide pills (aka PB pills), which have been linked to Gulf War Syndrome!
Replied by Jeanne (Zephyrhills, Fl) on 03/22/2010
I used the pepto bismol and I have to say for collaginous colitis it really does work. Thought I would share that it works.Replied by Lucy (Louisville, Ky) on 08/09/2010
I was diagnosed with collagenous colitis 6/12/10. Have tried Entocort and Azacol with no success. Then three weeks of Prednizone which almost killed me. Changed to new Dr. who prescribed Pepto Bismol 2 tablets;8/day. Hasn't helped yet. Dr. Said it might take up to 8 weeks; how long has this treatment taken others?Replied by Zizzy (Washington, Dc) on 10/28/2010
Collagenous and Lymphocitic Colitis are greatly improved by first dealing with food intolerances. Most sufferers must follow a gluten-free/dairy-free diet. Sometimes soy and yeast-free too. Hundreds of people have gotten help from a group known as The Potty People. Most members go drug-free after they eliminate their food intolerances. MC is often found in celiac disease, so you should request testing.
Stool and gene testing from is extremely helpful, especially if celiac blood antibodies are inconclusive. During flares, Pepto Bismol tablets and Immodium (lactose-free varieties) are helpful.
Replied by Joyce (Bellevue, Wa) on 08/31/2012
Hi! I've been diagnosed with CC since 2007, just reconfirmed with a colonoscopy. Best routine for me is to stay strictly ON DIET: NO dairy, NO raw fruits or veggies, low fiber and low fat. I use Asacol, a probiotic, and a little Creon (not sure that matters); for flare-ups, Pepto-Bismol and Imodium A/D (the latter only if I'm flying or the case is really bad). I tried a no-gluten diet but, for me, it did not help. I'd suggest you write down everything you eat (with quantities), every day. Write down all bowel movements. It's a bother, but the best way to locate your food triggers. BEST OF LUCK!Replied by Linda (Alaska) on 08/08/2013
I just got diagnosed with collagenous colitis, and since entamoeba histolytica was found also during my first colonoscopy, we are thinking the colitis was CAUSED by the entamoeba. (the immune system trying to keep the bad bug from my bloodstream/liver/brain, etc.We are killing off the entamoeba, but I'm wondering if once the cause is killed, if the colon will start reverting back to normal: ie, the collagen decreasing. anyone know? Wonder if everyone with the symptom (diarrhea) gets tested for entamoeba? Unfortunately, I eat a very healthy diet including soaked nuts, avocados, raw foods, yogurt and fermented veggies, which all seem to be on the do not eat list. What gives? Natural, normal foods not good? I feel like my live just ended----what the heck do I eat---the SAD (American Standard Diet)???
Replied by Patty (Covington La ) on 12/18/2023
I have used the packet of powder that is actually for cholesterol. It's called cholesteramine. It helps me sometimes. It worked for a couple years, then stopped working. Bismuth is another that has worked for me. Maybe this will help you?
