Replied by Kc (New York) on 03/10/2011
Hopefully all who read advice on sites like this take it with a grain of salt. Pulmonary hypertension has nothing to do with fat, plaques or atherosclerosis. It results from a pathological condition in smooth muscle and endothelial cells of the pulmonary arteries whereby they proliferate out of control -a bit like cancer- and do not undergo the natural process of programmed cell death. Consequently, the arteries becomes increasingly narrow over time; the strain on the right side of heart to pump blood into lungs for oxygen leads to heart enlargement and eventually failure. Diet does not produce or cure pulmonary hypertension. There is no cure. Ther are, however, treatments that improve quality of life and slow progression of disease. These are, as stated by another poster above, prostacyclins, endothelin receptor blockers, and phosphodiesterase-5 inhibitors (like Viagra). This is a montrous disease, an orphan disease, and most commonly strikes young women.Replied by Dan (Whites Creek, West Virginia, Usa) on 03/10/2011
Kc from New York: are you sure you have not been merely brainwashed by the money launderer's in the temple ? Who wrote the the text-book you are quoting from ? [facetious question; don't answer it.]Replied by Kc (Ny) on 03/11/2011
Dan from W. VA: Conspiracy theories have their place, but it helps to have at least a shred of evidence to support them. Do you actually know what pulmonary arterial hypertension is? Can you point to even one person on the planet whose pulmonary arterial hypertension has been cured? I suppose you also think there is a simple cure for cancer which is being concealed from the public by a conspiracy between the AMA and big Pharma; right? Hope you've got the granola cure handy when you or your loved ones are diagnosed with a terminal illness.Replied by J In San Diego (Santee, Ca) on 03/23/2011
KC... You are correct. I suffer from PPH myself and it is a horrible disease. I must say I have one of the best doctor's and do take tons of medication. From what I have read on the feedback, the author was incorrect and I do agree.
This disease does not have a cure, only treatment, which my treatments consist of Tyvaso, revatio, coumadin, diarectics, and a calcium channel blocker. If you want to find out more about PPH check out this wonderful, supportive website. www.phassocition.org
Replied by Kc (Ny, Ny/usa) on 03/30/2011
J in San Diego: as bad as it seems there is reason for hope. There are some very exciting research results coming from labs that study rats and mice with PH created in the lab. These animals show the same cellular changes and heart and lung changes as patients. A research team in Quebec found a specific protein that is only found in pulmonary artery of rats and people with PH. The protein was shown to cause cells in blood vessel walls to grow out of control and block blood flow into lung. They used drugs that block the protein and found them to reverse PH in lab animals. The drugs are soon being tested for safety and it is predicted trials will start in human PH patients in less than two years.Replied by Alex (Singapore) on 06/12/2011
I myself suffer from this desease and always wanted it can be cured. I don't know about much on PH but I was wondering if there any research are going right now for the cure?Replied by Krunal (Mumabi, India) on 07/23/2011
Hi Kc, from where did your get the information about drug being tested on rats? Do let me know if any of such tested drugs are found for humans?Replied by Kate (Northumberland, Uk) on 09/07/2011
Hi my mother suffers from Pulmonary Hypertension and takes medication to help keep it at bay as there is no cure. Unfortunately 1 of the medications she was taking an "endothelin receptor blocker" really helped alleviate the symptoms of PH but was damaging her liver so she had to come off it.
I would be so interested in hearing about the research that has been done on rats could the poster tell us where he read about it.
We have been told the pharmaceutical companies are not intested in researching for medications for this terrible disease as there are not many sufferers so therfore not enough money to be made from the medication.
Replied by Mary (Palo Alto, Ca, Usa) on 10/07/2011
In answer to someone's question, "do we know of any one person who has been cured of pulmonary hypertension?" go to YouTube and watch the video HAS THIS WOMAN BEEN CURED OF PULMONARY HYPERTENSION parts 1 & 2..... She is the daughter of the owner of a biotech that has made tens of millions selling their product to people sick with the disease. Supposedly she has had PH for twenty one years, and she LOOKS like she is HEALTHY HEALTHY HEALTHY! Maybe SHE is the only one who has been cured!Replied by Nerdman (Northampton, Northants Uk) on 10/08/2011
Hi everyone, someone asked for proof, that vitamin c works, as promised, by Pauling. On December 10 2010 I went to our out of hours surgery, who promptly sent me to the cardiac unit, at the hospital, where I was diagnosed, with Atriol fibrillation, left bundle branch block, and pulmonary hypertention. I was given Fusemide to clear the enormous amount of water in my lungs, beta blockers, and ace inhibitors, plus wolfrine.
Next day I researched everything on the internet, and decided to do my own thing. Vitamin C 18 grms daily. L-Lycine 6grms daily L-proline, 2 grms daily, magnesium, and lecithin. Result.... My Asthma, which I have had, since 1939, has gone. I can now breathe properly, sleep on one pillow, and my blood pressure is normal.
Replied by Amy (Jackson, Ohio) on 12/14/2011
What if you was diagnosed with PAH but it was hereditary? Will these remedies still work?Replied by Laura (Plymouth, Ma) on 08/01/2012
Good tidings to you all. I have been struggling for some time with debiliatating fatiuge, shortness of breath, and a host of cardiac symptoms. Unfortunately, I found out too little too late that I have sodium flouride poisoning and as I started to detox the flouride from my body, I have overwhelmed my system. I now have all the symptoms of Pulmonary Hypertension from the detox. So, pulmonary hypertension is not just from fat/plaque, there are autoimmune diseases and chemical/environmental factors that also relate to PH. Just thought I would put this out there.Replied by Trop (Cairns, Australia) on 05/07/2013
I too have pulmonary hypertension, I believe caused by water fluoridation. First symptoms at 18, then remission when I moved to a non fluoridated town, another move at 22, another episode. then 33 years of good health, then exposure to water fluoridation which created a major health crisis culminating in a diagnosis of ph.
I told my cardiologist I thought fluoride caused it, to which I received a blank look. He told me to take calcium channel blocker and warfarin. I consulted an antiaging dr plus various naturopaths and take armour thyroid meds, dhea, ginko biloba, various fish oils, magnesium and anything else I think might help.
I have no idea what the ph is doing, since cardiologist told me to come back in a year. unimpressed with him, but feel OK.
