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Peripheral neuropathy causing cold legs feet

Posted By Karen (Tampa, Fl) on 10/16/2012

I have peripheral neuropathy and hepatitis C. I currently have very cold legs (from the knees down) and EXTREMELY cold feet. My toes and the top of my feet are turning black. Don't know what to do. I cannot take cayene as it makes my tinnitus increase too much. Any suggestions would be greatly apppreciated. Thank you for reading.

Replied by Andrea C (Cardiff, Wales) on 10/17/2012

Are you able to prop your legs above your heart?? LAY ON YOUR BACK and prop your legs ABOVE YOUR HEART. If you are able LAY ON YOUR BED AND PUT THEM UP AGAINST A WALL or on any furniture with a wall you can do this xxxxxx Also try magniesium. I am not trying to scare you, but you REALLY need to try to get that circulation going again. Is there any one that can help you?? I live on my own so I crawl, around when no 1 is here in agony, just to do simple things xx But will your self to live!!! It helps also xx Many times I wake up feeling very negative, then argue with MYSELF!!! LOL XXX Wether it be inside my head, or if I can I shout at myself in a mirror as well xxxxxxx hope this helps you sweetie I KNOW how afraid you feel and the pain you are going thru xxx I get days when I think SOD THIS!!! But that's when I shout at myself, and force myself to do what I need to do xx I am not always succsesful, but I KEEP ON TRYING!!!!! NEROPATHIC PAIN IS A BITCH!!!! I know, I have had it for years, but if you can do something to distract your self that will help too. Sitting thinking about the pain makes it a LOT WORSE because you become 'trappped' by that thought xx I am still learning and I am not saying its easy love, but the more you dwell on it or tell youself it's coming the worse it will get. I don't see many people so I have to keep my mind occupied so I do things like 2x2 in my head to give me something to think about and tell the pain to ^%$##@!!!!! I hope this helps love xx I know how bad it gets, even typing, etc. Have you tried CAYENNE in a much smaller dose at all?? J ust a tiny bit on the edge of a teaspoon?? You don't need to take loads of it for it to work xxxxxxxx Hope I have been of some help Love Andrea c xxxxxxxx

Replied by Mmsg (Somewhere, Europe) on 10/17/2012

Karen, can you try putting cayenne externally? I've heard it helps too.

Replied by Karen (Tampa, Fl) on 10/17/2012

Andrea, I thank you for your great concern and thoughtful suggestion. I am trying to get over the constant pain and numbness and electrical shocks etc. Etc. I will survive although it's a day to day thing...Bless you

Replied by Karen (Tampa) on 10/17/2012

Mmsg, I'll mix some castor oil with cayenne and put a small amount on one foot and see what happens... Thx for advice.. Bless you

Replied by Connie (Slc, Utah, Usa) on 10/17/2012

Hi Karen; This sounds like a potential Emergency to me. Blackening of toes and feet may indicate gangrene is occurring. Please Go to the Emergency Room. The infection could spread quickly and threaten your life!

The ER may have to use IV antibiotics, but it may be necessary because of this type of infection.

This infection could be from high blood sugar, diabetes. Take very serious measures to lower blood sugar.

Many people have had success with Alpha Lipoic Acid for lowering blood sugar.

Replied by Bess (Calgary, Alberta, Canada) on 10/17/2012

Andrea - I love your attitude and spirit... You go girl!

For Karen, I was wondering (along with Mmsg) if she couldn't put some cayenne into lotion and massage it in. There are even creams you can buy at the health food store containing capsicum (although it's cheaper to do it yourself - starting with a small amount of cayenne and working up gradually). My Dad has bad leg circulation and he has to sleep with his feet/calves on pillows. If he doesn't, he's in severe pain in the morning. Good luck! Bess

Replied by Wayseeker (Modesto, Ca/ Usa) on 10/18/2012

Hi Sweetie: I also had creeping numbness, agonizing chronic pain in my legs, and some muscle wasting, and electric shocks and brain sloshing. I was on a popular serotonin re-uptake inhbitor that nearly killed me, and left me bleeding from my eyes and ears: signs of liver shut-down. The doc only wanted to give me more and different. I quickly titrated down and off instead, which saved my life. Had I followed his orders, it would have killed me... And he didn't even recognize the clear signs of liver failure. I ended up with full-blown fibromyalgia due to the stress the drug caused me. People have sued. The stuff is potentially deadly.. And handed out like candy... With very little indication of its neccesity, and super-fast, no-test diagnoses. Of course, docs get a substantial kick-back, and even trips to Tahiti, and own stock in the big pharm that makes the drug, which you then stay on for life, paying residual income to them. That's a conflict of interest if I ever heard one!

Now, solution time. The thing that helped me most of all, was an ancient Native American recipe called Ojibwa, what we call Essiac tea, or Floressence tea. I also researched Guaifenisen thoroughly, and followed the protocol. This removed lactic acid and took away 1/2 of my pain. However, I now believe such stressors and drugs gobble up ravenous amounts of Vit. C, which leads to a downward spiral. Hot baths and keep moving when on your feet. I had a circulation problem somehow, too. An initial diagnosis of peripheral neuropathy was proved incorrect by a mild shock-machine nerve-test by a top neurologist, showing the problem was not with my nerves at all. I have now healed about 3/4 of the way, by natural means. And I surely am fine mentally, and always was. Go for it! --T.

Replied by Patricia (Washington State) on 09/02/2017

I have a spinal cord injury in my neck, C6 & C7. So I'm paralyzed and my issue is that my feet, legs and now has progressed to my buttocks. To the touch they all are warm to hot. I've had an ultrasound on my legs to see if it was a circulatory problem and / or a blood clot formation, but it wasn't the problem. So I Googled my symptoms and I found out that it was a neurological disorder from my spinal cord injury. The craziest thing is that now it's summer and in my home we have no air conditioning and my room can get very warm and you'd think that having this condition I'd feel relief as if I was in very cold water from my feet to my torso. But it's not helpful for me. I use these hand warmers a person would use in the winter is keep your hands warm. I put them inside my socks to warm up my feet. The warmers last about 6-7 hours. Sometimes the symptoms last a few days and other times I have no symptoms for days as well. Exercising doesn't help either. I'm hoping that they're other people who have this same problem and have some feedback on my condition. Thank you!

Replied by Charity (Faithville, Usa) on 09/02/2017

I've had some spinal issues and some cold issues and gut issues and some trauma issues. Not sure your age or what meds you might be on but ginger will warm you up and increase circulation as will cayenne pepper on your food. Some minerals that we lack in our diet will heal hormones and heat us up . You want to get the right balance of minerals. Boron makes me get sweaty when I first start taking it. My progesterone cream makes me hot when I first put it on, like a hotflash. Then it tapers off. I think niacinamide will make you hot as it increases circulation but it can be scary at first. Magnesium citrate warms me right up daily. No more cold hands and feet. lugol's Iodine might warm you up as it heals hormone systems. I'm not a doc so you'll have to go read some more to find what might work for your situation.

Making rice packs in long tube sox, you can heat in microwave in place of those hand warmers. Less chemicals and some moist heat.

garlic is a natural blood thinner, alpha lipoic acid helps stop nerve pain, and msm also helps cut pain signals

John Bergman on youtube may give you some tips on your spine health and help you understand how to get natural help .He teaches in easy to understand terms. He was hit by a car and later became a chiropractor and studies other topics.

Replied by Mmsg (Somewhere, Europe) on 09/03/2017

Patricia, read up on Clay poultices for that area of your spine.

Replied by Timh (Ky) on 09/03/2017

Pat: Immobility can have a bad effect on the circulatory system, so here's a good remedy that will fix this.

Nature's Way herbal Cayenne/Ginger caps as directed on label. 1grm Vit-C between meals at least 1x daily, and 1grm Lysine with meal 1x daily.

Looking forward to your results & reply.

Replied by Dave (Fountain Inn, Sc) on 09/03/2017

Hello Patricia,

Re: your problem with cold limbs/torso

My heart really goes out to you in your condition. I'm assuming you mean by the spinal cord injury you literally mean you are paralyzed...paraplegic?

Well, I have only a bit of overlapping information that may help but it's just what I'd try if in your situation. First, I wonder how long you have been paralyzed from the injury. If the injury was years ago and this "cold" sensitivity is a later onset, it could be that there is something in addition to the spinal injury at work. Cold limbs can be from a number of causes. Diabetes might be something you will want to make sure you are checked for....(onset I mean).

Are you getting plenty of massage for your legs and arms; blood must be kept flowing and if you are in a basically sedentary condition you may not be working muscles enough to keep blood flow going.

Vitamin E (natural and NOT synthetic) is vital to keep good blood flow. I once had a 92 year old friend in an assisted living facility and he had many vitamins he took but had not been taking his E and I visited him one day and he had edema very severely. After he got back on E, the edema left in less than two weeks.

By all means, try ginger root/and ginger tablets. Buy real ginger and grate it (three tbs) in a pot of water (three cups) and drink as an herbal tea. Ginger in Ayurveda medicine is a driver and increases circulation. I'd look around the internet (Earth Clinic may have some posts on blood circulation, too.)

Finally, as I brainstorm, I'm thinking this is sounding possibly like an infection....maybe blood related. If you are seeing rashes at different places on your skin that might indicate an infection. For that; easy solution: Take colloidal silver every day, three tablespoons morning and night on empty stomach and if you improve (rashes will go away gradually over a few weeks) then .... ah ha..... a virus at work maybe.

Do you have someone that can work your legs back and forth; I know you said that exercise was not the problem but just thinking if you are not getting good blood flow including legs then this might be an issue.

Also, are you ok on any issue relative to congestive heart problems?

I'll probably wake up at 4 am thinking of some other things. You've written to the right place...there are tons of really caring people who write (and own) Earth Clinic. This site has saved thousands of lives.

Just don't give up. Every problem has a solution. Just keep trying; keep thinking; keep praying. There is always an answer.

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