Replied by Margaret (Chula Vista, Ca- Usa) on 01/19/2012
My doctor found a lab in San Antonio, TX that makes a Verapamil compound. (PDLabs) About $200./mo. Has been a continuing headache with Medco that it is or is not covered for reimbursement. Had to buy 6 mos worth at $1215. (credit card.... ) If it is covered, then my monthly co-pay would be $60. they will reimburse me $140.
My foot is better. Had 2 of the plantar fibromatosis on the bottom of my left foot. "Think" they are about half their size. Have to put the medicine on every 12 hours or so. Has been 6 mos. PDLabs says average use is 9-12 mos. I see now why they say that with mine about half the size.
My dr did say, if anyone suggests surgery- he said RUN, not walk from them. What I've read: There is a higher return of the fibrodes with surgery and the injections (2 of the 3 options to help fibrodes) or the 3rd is the medicine. I need my feet, I am on my feet 12 hours a day.
I am considering either not purchasing more. Or maybe 3 more mos worth. I may just have to live with the lumps since they are better. Just have to have 'spongy' insoles that absorb the lumps. I only feel them now at the end of a long day when I am overly tired.
Good luck!
Replied by Kay (Destin, Fl) on 09/02/2012
For reference, recently some patients are reporting noteable success with PF (and Dupetryns) via Cryotherapy. There is an active and very responsive group of patients researching, reporting thier experiences at the Yahoo Groups for Dupetryns and Plantar Fibromatosis at http://health.groups.yahoo.com/group/plantarfibromatosis/
This group talks about issues pertaining to Plantar Fibromatosis which is also called Ledderhose Disease. The goal is to find a cure. These diseases are related to Dupuytrens Contracture of the hand.
