Niece diagnosed with myasthenia gravis

Posted By Che (Roxa City, Philippines) on 03/10/2011

I want to address this to Ted, Bill or anyone here who could help me. After more than a year of expensive treatment and trips to ICU my niece is finally diagnosed with MYASTHENIA GRAVIS a rare auto immune disease. I went over on the ailment list here at EC but theres none. Anyone of you here please do share your remedy for this rare disease. The hospital bills and prescriptions are beyond our financial capacity. She visits the ICU 4x a year which is now impossible for another trip to ICU should she have another attack since the father has no permanent job and we are all now financially exhausted. My niece who is 16 year old had stop scholling because of this disease. Pls do help us. May GOD continue to bless us and support us.
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Replied by Tommy (North York, On, Canada) on 03/10/2011

Hi Che,
There is no such thing as autoimmune disease. This name is just fancy name to hide the truth from people. The immune system is smart enough to not attack itself. That happens in the thymus where the immune cells learn how to distinguish between the self and the other antigens.

A lot of these so called autoimmune diseases are just so kind of chronic infections. Usually protozoans and bacterial infections.

There is evidence now that Alzheimer is caused by bacterial infection and so does Parkinson disease, MS, CFS ect.

You should try natural antibiotics like Lauric acid, caprylic acid and some biofilms busters like Nattokinase, EDTA. If you cannot afford these supplements, try to find a doctor who can prescribe for you niece Doxycycline.

Best regards,

Tommy.
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Replied by Granny Laura (Waco, Tx Usa) on 03/10/2011

Re Myasthenia Gravis: After my husband's son was diagnosed w/ALS my husband, knowing I was really into alternative medicine asked me to buy whatever was necessary and see if it would help. The best reference I had at the time was Adelle Davis's book Let's Get Well. And the closest thing in it w/symptoms like ALS was MG. So I went to the local health food store and spent all the money my DH gave me and some more of my own.

I got Twinlab Allergy Multi and their Allergy C. I got the best vit E, and Co Q10 that I could find. I got some vit A, and some individual B vitamins, a good acidophilis and everything that was recommended for MG.

Within a week to 10 days he could speak plainly again and was better able to swallow his food. He was getting much better, symptom wise. Then the doctor he was seeing decided to put him in a medical study but he would have to stop all health supplements to get in. Guess what? He went back to being like he had been in a week. And he never improved again, even though they gave him shots in his stomach for more than a year.

They actually had another study using supplements but he wasn't put into that group. No, I don't think supplements would have cured him. But, it was obvious they helped.

If I recall right w/o going and looking it up, Vit E was extremely important for MG. Don't get the regular synthetic Vit E. Get one that contains tocotrienols. Those are the full spectrum of vitamin E. Good Luck, I hope that this helps.
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Replied by Che (Roxas City, Philippines) on 03/10/2011

Hi Granny Laura, Many thanks for your post. I will consider these remedies for my ailing niece of Myasthenia Gravis. I don't have any idea where to get this broad spectrum of vitamin E. Vit E here in the Philippines are being sold at our local drugstore but I'm sure they are not the one you're referring to, so with other supplements. I will still have her take it though it will not give that much effectivity compared to that kind of vitamin E you're referring to. God bless and if you can, please update me with the remedies you might feel it could help.
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Replied by Che (Roxas City , Philippines) on 03/10/2011

Tommy, many thanks for the hope and enlightenment. True, we at the moment cannot afford to purchase these supplements but I would strongly consider and find means in the coming days for its been more than two weeks now that she's still in the hospital bed. I'm not even sure if I could find these here in our country. Is the EDTA you're telling me is the same EDTA used in soap making and other products? Please send me more info regarding this disorder each time you have. God Bless!
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Replied by Tom (Regina, Sk) on 03/11/2011

Che:
Unbeknownst to most, a few autoimmune diseases are on record as being triggered by an imbalance of trace minerals, and/or that which then causes an immune system imbalance.

And also in the medical record is that this can happen after a course of antibiotics.That would mean it should be reversible given the correct regimen!

From one of Dr. Pauling's sites:

www.orthomolecular.org

Hit the SEARCH bubble in the molecule structure, then just Enter 'myasthenia' for the term.

www.orthomolecular.org/library/jom/1983/pdf/1983-v12n04-p270.pdf

(PAGE 4)

-------------------------------

When copper toxicity (or tissue overload) is
suspected in symptomatic individuals the level
of body copper load can be estimated by
measuring the amount of copper removed from
the body through the urine in a 24 hour period,
utilizing the oral chelation agent D
Penicillamine (D-pen).

-------------------------------------------

Proteinuria has been described in up to 20
percent of arthritics on D-pen therapy (Crawhall,
1981). This is usually reversible on discontinuing
the drug. Rare complications include acute
nephritis, myasthenia gravis and systemic lupus.
It should be pointed out that the side effects are
documented in the main for treatment of
rheumatoid arthritis. Side effects are far less
when diseases such as Wilson's and cystinuria
are being treated (Camp, 1981). It is possible that
in rheumatoid arthritis excessive copper is being
removed from the tissues, creating a mineral and
possible vitamin imbalance which give rise to the
side effects. It has been documented that D-pen
induces autoimmune disease (Dawkins et al. ,
1981). Mechanisms may include destabilising
the delicate balance between cellular immunity,
humoral immunity and lymphocytes.

---------------------------------------------------

Verification of this dirty secret:

www.orthomolecular.org/library/jom/1975/pdf/1975-v04n01-p002.pdf

(PAGE 3)

Microbiology
All primitive organisms require manganese,
iron, copper, zinc, and some need boron, cobalt,
molybdenum, and vanadium. Many antibiotic
drugs are chelating agents. Could the action of
some antibiotics be due to binding an essential
metal in a strong chelate?

------------------------------------------------

I would try a good quality fulvic/humic acid mineral supplement daily, for a few months first. Most people are deficient anyway due to depleted soils, junk foods, and just plain poor diet. BTW, "fulvic" just refers to the lower molecular weight fraction(better bioabsorbed) of the entire humic acid mineral chelate.

A very good quality fulvic mineral liquid will cost about $1 USD per ounce, which is about the daily dosage, but any amount more can be taken. It could take a few months to replenish body stores all the way to deep tissues.

www.bing.com/images/search?q=fulvic minerals&go=&form=QBLH&scope=images&filt=all
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Replied by Che (Roxas City, Philippines) on 03/17/2011

Tom, my appreciation for your latest post @ info. I am really willing to try the supplements you're suggesting. But at the moment I still can't afford to have one of these products because we're still finding means to have her discharge from the hospital because of the huge bill. Thank you so much for the effort. I believe this will greatly help my niece once she will take the suggested supplements. God Bless. serlche(at)yahoo(dot)com.ph
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Replied by Diane (Boise, Idaho) on 02/09/2012

Responding to Myasthenia Gravis:

At age 55 I was diagnosed with this ailment several months after a severe car accident in 8/2000. First signs were waking up and not being able to lift my right eyelid for a couple of hours. Then a tic started under both eyes. Being under doctor's care for the accident, I complained enough to have an extensive blood test that revealed this information. Next step was to investigate "why" because I had been very healthy before the accident. The only difference was the medications I was on.

READ THE FINE PRINT OF YOUR MEDICATIONS!! They list possible side effects! I was on Neurontin and Celebrex and Hydrocodone. Not having it in front of me, but I believe the culprit was Neurontin that has as a possible side effect... Myasthenia Gravis! What a shocker for me. I believe in natural healing, and immediatetly started weaning myself off of the medications, using natural herbs and supplements for arthritis and joint pain, (fish oil and MSM w/Glucosamine) and mental clarity (Ginko Biloba), and all symptoms stopped. I never had another blood test to confirm it, but 12 years later at age 66 I am in excellent shape, no tics or droopy eyelids or progressive ailments. No prescribed medications for anything! Good Luck.

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Replied by Christin (Oklahoma City, Ok) on 03/12/2012

I have MG and I have been in remission for 4 years. I received help from the Muscular Dystrophy Association (MDA) they are a non-profit organization that has paid for all of my doctor visits. While they did not pay for my thymectomy or medicine I saw the doctor for free. There are clinics in every state. Something to look at. www.mda.org
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