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Lifelong RLS (Restless Leg Syndrome)Posted By Nightowl (Manchester, Tn) on 07/19/2015
The only thing that worked for me for almost 2 years was Sinemet 50/250. I had a sleep study done after being on Sinemet and it showed a PLMD index around 7 an hour. This proved I had PLMD, although after taking the Sinemet I woke up feeling as if I slept and the covers were'nt all over the bed. Unfortunately, I had to quit taking the Sinemet as none of their medicines for RLS and PLMD would work and I took a pill every night until my body built up a resistance And started noticing as I was falling asleep, my arms was twitching, which never happened before that I can remember. I did try taking it again after 5 years but the arm twitches came back, so I quit. At 51 now, I find myself lying in bed trying to go to sleep and that's when my legs start bothering me. Unfortunately, they are worse the longer I'm up. I finally put a pillow on both sides, as I'm a pillow hugger & to prevent from dragging the sheets with each turn & end up having to wake up and straighten my covers. I find it often takes about 2 to 3 & a half hours before falling asleep. I usually end up getting up for a while then try again and most of the time the 2nd time works. I have had to get up again after lying in bed for another wasted 2 to 3 hours.
When I was younger, my grandma would lay down during the mid day & take a nap. I was so excited when she asked me if I wanted to lie down with her & of course I wanted to sleep next to grandma for a nap. She ended up kicking me out of the bed after 20 minutes & her telling me to sit still, which only made it worse.
I've been up for 27 hours, after trying to sleep the 1st time. Hopefully, I'll get some sleep. The bags under my eyes are bad and big enough to put groceries in.
Replied by Rsw (Uniontown, Oh) on 07/20/2015
I am a Nightowl, too, with RLS since I was a child. Interesting that you mention this Grandma experience, because I have often thought the RLS developed after having terrifying nightmares as a child, where I always lost my voice after waking up, and had to go down the dark hall to my parents' bedroom (I am very much afraid of the dark) and tried to get into bed with them. My Mother would only allow me to stay if I didn't move, and invariably, I would be told to go back to my own bed because I had moved my legs too much. So back down the hallway, yikes! Wonder if this is a common denominator for some of us?
Replied by Mmsg (Somewhere, Europe) on 07/20/2015
Replied by Dave (Fountain Inn, Sc) on 07/21/2015
What a terrible malady.
I've had RLS also. Mine directly associated with sugar consumption.
Also mine can be brought under some control with application of baking soda ... 2 teaspoons dissolved in a half cup of water...and then that liquid is applied to knees and remainder consumed. RLS is also related to acidic body condition. So if RLS is "kicking in" I'd alkalize. I am concerned with too much carbs...especially sugars. So experiment with radical reduction of carb intake, especially white breads, colas etc.
Try experimenting with that and see if it helps.
Next try this; Use Dead Sea Salts and Epsom Salts for a "Salts" bath. I use four to six tablespoons of Dead Sea Salts with a half cup of Epsom Salts. Dissolve in warm water. Run bath water ... nearly hot. Pour in the salts solution. Enjoy the nice soaking for 20 minutes or until the bath water is no longer warm. Do this again two days later.
I've found a salts immersion bath is enormously effective on resting agitated nerves and help with sleep.
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