Have suffered for over ten years with burning mouth syndrome

Posted By Karen (Australia) on 09/05/2014

Hi , I have suffered with Burning Mouth Syndrome for over ten years now. It is all consuming and have at times really wished I was no longer here, so I did not have to live with this crippling affliction.

I am a 57 yr old post menopausal female in perfect health otherwise and on no medication.

It astounds me what this is and how to cure it. I have spend 1000's trying to get help.

Even having $1200 worth of implants thinking it was oral. OBVIOUSLY NOT! That was two years ago. Please HELP SO OVER IT.

Our daughter is to be married in 6 weeks and I want enjoy the most important day in her life BMS relieved at least.

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Replied by Lynda (Australia ) on 09/05/2014

Hi Karen

Get your B12 tested as a deficiency can cause serve burning of the mouth...if it is a B12 deficiency it will help almost immediately. Again if it is a deficiency regular B12 injections guided by your doctor will keep it away,

I have had this ... regards Lynda

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Replied by Dave (Fountain Inn, Sc) on 09/07/2014

Hello Karen from Australia,

I googled "Burning Mouth Syndrome Virus" and found a number of sites that speculate the possible relationship with BMS to viral infections.

Any "mystery" illness, my first "usual suspect" is a virus... I want to get that possibility off the table right off. Other things can cause BMS...chemicals; vitamin deficiencies and you didn't mention any other symptoms you are having.

Nor did you mention any other clues to help you figure this out...like the onset of the BMS and if it came after beginning to consume prescription drugs (BP meds for instance)... or exposure to toxins of any kind.

So with no other clues...back to a virus.

If me, I'd get Colloidal Silver and hold three tablespoons in mouth and spit out...do this three times daily for a week. If a virus the burning will go away within five or six days.

I'd also try tea tree oil held in mouth or garlic oil in mouth (same thing...hold in mouth)...any anti viral... Echinacea for instance....IF CS is not available.

Now, also try this; Get a quality Aloe Vera gel (or liquid) and hold in mouth...again three times daily for a week.

Try this apart from the CS so you can tell which is helping.

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Replied by Joanne (Pasadena, California, US) on 09/07/2014

Re: Burning Mouth Syndrome, Dave, I've had this condition and you have to be very careful not to put any substances in your mouth that will increase the burning. Your suggestion to put tea tree oil or garlic oil would only increase the terrible, terrible pain. The colloidal silver sounds like a great idea, however. I swished with baking soda and water a few times a day to get my tongue as alkaline as possible. It's truly a nightmare condition to deal with. People can't imagine the pain.
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Replied by Dave (Fountain Inn, Sc) on 09/07/2014

Hello again Joanne,

Re burning mouth syndrome;

If an infection, as I suggest and as the googled sites suggest, then the Colloidal Silver could ALSO increase the stinging and burning. In fact, when applying to an infected sinus condition I usually warn that the application would likely produce an intense stinging sensation as the virus is killed.

How about the Aloe Vera suggestion?

Also I noticed you didn't answer any of the questions that might help widen the hunt for causation.

I'd think anything that might be an anti viral could cause a sensitive condition to worsen while it is killing the virus. But if the cure is worse than the condition you are certainly right in rejecting any suggestion. I'd just extend it to the CS also.

So only my suggestion of the Aloe Vera might work in relieving the burning. But likely will not eliminate the underlying cause. Of course, if it helps with the burning then you might be able to tolerate the other remedy...my highest suggestion being CS.

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Replied by Sharon (Birmingham, UK) on 09/09/2014

Hi Karen

This is my first post after reading these forums for a while now. It would be nice to give something back to the community.

I really sympathize with you after suffering myself for about 20 years. Doctors prescribed antibiotics, antifungals, steroids and strong pain killers, but nothing worked. I gave up going back in the end and just suffered it. It would flare up for weeks at a time and it was pure hell.

It wasn't until my partner got diabetes and developed the same condition that I noticed the link. It was the aspartame in the diet sodas I was drinking, and in the artificial sweeteners he was using.

Since I religiously check for aspartame and other artificial sweeteners in everything we eat and drink now, it has never reoccurred. It has probably been 8 months now. I was also having problems with nausea and fatigue after eating. This also disappeared when I quit sweeteners.

I'm not sure whether this will apply to you, but it might help someone.

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Replied by Barbara (Las Vegas, Nevada) on 10/13/2014

I have had Burning Mouth for 7 years now. It is a Horrendous illness with no cure but all I at least wanted was a control. I have been to Doctors from A to Z. I do have MS. I tried magic mouth helped a little finally got my neurologist to out me on Clonazepam. I have been on it for over a week and has really helped. I can no longer eat anything without having a reaction. I eat no Carbs , no sugar , no spices the only thing I can eat is scrambled eggs with cheese and a Whey Protein drink because I have lost so much weight. I wish someone had the answer the doctors do not seem interesting to help. Good luck to you...Barbara
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Replied by Prioris (Fl, US) on 10/14/2014

Could you list all the natural remedies you have tried in those 7 years. It's good to know what didn't work with some people.

I assume you tried at least 200 mg to 300 mg Stabilized R-ALA.

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Replied by Celina (Florida) on 10/19/2014

I just found this site today and have been reading all evening. I had the burning mouth and roof of mouth and I was so desperate I went out and cut a fresh Aloe and used a teaspoon to eat some of the gel from inside, no green. The burn went away as I put it in and swirled. I swallowed it and then worried that it might hurt me and I went to the Doctor and he said it would not hurt me. I got the terrible burn about a month ago again......it was first thing in the morning and all I had put in my mouth was toast with orange marmalade. I checked the jar and thought it was too old and it said product of Egypt and I thought it might have some hot pepper in it and read it and no mention of pepper. I threw it out. It felt like I had eaten acid. This evening I ate some fresh avocado and I got the same burn. I thought I was alone in this. Thank you all for all your recomendations.
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Replied by Vicki (Fort Worth, Texas) on 10/27/2014

I have had Burning Mouth Syndrome for a few years now. Docs don't know. Have had a few say this or that or one gave me some concoction that had to be made in the pharmacy. No help. Here's where I think it gets interesting for me. It had gone away and I didn't even realize it. Until, the other day it came back. Have it going on right now. What has changed for me is that I just quit taking some supplements and a multi vitamin. I quit taking them due to a separate side effect. So, now browsing the internet, I see the possible link with vitamin B deficiency. I think I will go back on the multi-vitamin and see what happens.
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Replied by Alexandra (Cheshire, Uk) on 10/28/2014

Hi Vicki,

I have suffered from mouth sores and cracks in the corners of my lips for many years. Started taking B complex, (also folic acid, Niacin, B6, B12) a few months ago and I am now clear. Sometimes when I have eaten something with wheat (usually try to avoid wheat and dairy) my mouth becomes very sore. I use pure olive oil soap instead of toothpaste, and I try not to eat too many sweets.

When I did have these problems I found some relief from oil pulling with sesame, sunflower or coconut oil. Rubbing olive oil on the cracks on the corners of the lips seemed to help heal them quickly. Hope this helps someone.

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Replied by Vicki (Fort Worth, Texas) on 10/28/2014

Hi Alexandra,

My lips were cracked in the corners, years ago. A dermatologist gave me an ointment. (Unfortunately, I don't remember what it was, too many years ago.) It completely cured it. The corners of my mouth have not cracked since.

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Replied by Steven (Middletown New York) on 02/12/2017

When I brush my teeth I get that burning and stinging on tongue and gums no matter what brand of toothpaste I use...but get this..IT ONLY STINGS AND BURNS ON THE LEFT SIDE of tongue and gums and the lips....if I don't brush it eventually goes away..i had a bridge in the lower left arch it would still sting and burn...it was not a dental issue...mabey physcological....it comes and goes....
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Replied by Natalie (Seven Hills, OH) on 07/08/2022

My burning mouth syndrome was caused by whitening toothpaste. It was the peroxide. As soon as I stopped using that toothpaste, all burning stopped and the mouth healed. At dentists offices, sometimes they have you rinse with peroxide which can inflame the gum tissue and oral mucosa. Gotta be careful.
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