Replied by Diane (Cincinnati, Ohio) on 10/13/2011
It's not a natural remedy but the less invasive use of a drug called Diamox to help drain the fluid related to hydrocephalus. There is a clinical study on hydrocephalus as it relates to Ehlers Danlos. This study is being done by Dr. Diana Driscoll who has both Ehlers Danlos and Hydrocephalus. She is releasing study results early because she has had so much success with the drug. She did mention people self-medicate for the symptoms of this type hydrocephalus using Sudafed and I believe she said caffeine but I'm not positive about the caffeine. If you read some of her stuff you could find out for sure. Here is a link with details of the study: http://prettyill.com/downloads/Driscoll_Theory_EDS_-_Online3.pdf
