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Family history with charcot marie tooth diseasePosted By Abby (Cincinnati, Ohio) on 01/13/2010
My husband's family has a history of Charcot's. He is now 60 and in the last few years I have noticed a change in his gait (walks slower with possible footdrop). He has no pain as yet but has some tingling and weakness in his legs. Charcot's is described as a degeneration of the mylin of the nerves. He has not seen a doctor for this as yet but we are looking for supplements or other therapies that might slow or stop the degeneration of the mylin. I would appreciate Ted's advice on this but any information from anyone would also be appreciated.
Replied by Lutie (Louisville, Ky) on 03/11/2010
Replied by Lutie (Louisville, Kentucky) on 03/12/2010
Replied by Ruth (Glendora, California, Usa) on 01/21/2012
Replied by Kay (Destin, Fl) on 02/21/2012
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1271391/
http://now.aapmr.org/peds/neurological/Pages/Hereditary-Motor-Sensory-Neuropathy-(HMSN).aspx
Replied by Eastet (Batonrouge, La, Usa) on 05/04/2012
Paste from Google:
"Tumeric Herb extract "Curcumin" used to treat demyelination.
Annual Experimental Biology 2002 Conference New Orleans, LA April 23, 2002
Potential neuroprotective properties of curcumin (found in
turmeric spice) - Curcumin, confirmed as potent inflammatory agent, and believed to interrupt immune system attack on myelin sheath
Nashville researchers believe curcumin may interrupt the production of IL-12, a protein that plays a key role in signaling immune cells to launch their assault on the myelin sheath. - Mice with EAE (experimental autoimmune encephalomyelitis - an immune condition used as a model for MS, since it results in myelin erosion) recover movement after curcumin injections - in a 30-day study injecting mice with curcumin doses 3 times/week at doses roughly equivalent to the amount eaten in a typical Indian diet (E. G. In curry); In Asian
countries, where spicy foods, including yellow compounds like curcumin are eaten quite regularly, reports of M. S. Are rare;
NOTE: Dr. Mercola recommends adding black pepper capsules for better absorption (digestion)."
Replied by Eastet (Batonrouge, La, Usa) on 05/04/2012
In 2010, a study published in the Journal Science indicated that scientists had identified those proteins that control the thickness of myelin sheath. This discovery is expected to open the avenue to new treatments in the coming years.
http://www.sciencedaily.com/releases/2010/05/100518112649.htm
Something else interesting that I found on google, is that Vitamin B3 Niacin flush creates histamines which open up or dilate and oxygenate and clean the blood vessels and capillaries; which reduce inflammation (solvent, detox), improves nerve tissue and cell environment health. Also increases metabolism because it frees fatty deposits, and turns
them into energy. Might be worth a 1 year test trial ?
http://www.healingnaturallybybee.com/articles/niacin.php
http://en.wikipedia.org/wiki/Niacin
Mayo Clinic Vitamin B6 Necessary for Myelin Formation
Vitamin B6 (pyridoxine) is required for the synthesis of the neurotransmitters serotonin and norepinephrine and for myelin formation. Pyridoxine deficiency in adults principally affects the peripheral nerves, skin, mucous membranes, and the circulatory (blood cell) system. In children, the central nervous system (CNS) is also affected. Deficiency can occur in people with uremia, alcoholism, cirrhosis, hyperthyroidism, malabsorption syndromes, and congestive heart failure (CHF), and in those taking certain medications. Mild deficiency of vitamin B6 is common.
http://www.mayoclinic.com/health/vitamin-b6/NS_patient-b6
Replied by Micaela (America) on 09/07/2014
Replied by Zenobia (Oregon) on 10/22/2015
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