Diagnosis of Menieres Disease

Posted By Steve (NYC, NY) on 05/06/2012

I was partially tested for meniers diseases and came negative. I need to know more. and some remedies for the light headed feeling.
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Replied by Natalie (Detroit Lakes, Mn, Us) on 05/20/2012

Steve, I have lived with Meniere's Disease for 11 years now and I had a great deal of difficulty in obtaining a diagnosis. After an 11 month search, I found a world renown specialist in my state and have remained under his care. According to his research, ppl suffering incapacitating Meniere's symptoms may test negative about 52% of the time because any test is just a snapshot of the condition in that moment. The ENG or Caloric testing is the most reliable; postural testing is useless, although still utilized in some clinics.

I have gone the medical route in coping with Meniere's and I have tremendous faith in my Dr. I would advise that you research and go to the top specialist in your area - NYC will allow you many options. There is no telling what your future may hold as there are many variations and subsets of this disease syndrome and it is progressive in nature.

I now have total loss of bilateral vestibular function and have had one vestibular nerve chemically destroyed. In addition, and as an adjunct to the progressive nature of this disease, I now have persistent BPPV. This does not respond to the CRP procedures because the advanced Meniere's has caused damage to the Utricle portion of the semi-circular canals. (This is very complex stuff! )

I am constantly dizzy and while the vertigo is controlled with meds, I am imbalanced all the time. I happened upon this site while researching the issue of body pH and the possible benefits of increasing my body pH - with simple ingestion of Sodium Bicarb - to aid in dissolving the calcium carbonate stones that the damaged Utricles can no longer resorb.

I wish you the very best in obtaining a diagnosis and proper medical and alternative management of your condition. Meniere's is a tough road to walk and I hope that you have a simple form of the disease; a variation that is self-limiting.

Best wishes

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Replied by Syed (Miami, Florida) on 08/07/2012

I agree on the idea that since the inner ear is damaged that the crystals are now free floating inside the ear. I would like to invite you to a facebook page called "Living with Menieres" as it would be a good place for you to exchange medical therapies and ideas with others that are looking for some level of relief.
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Replied by Syed (Miami, Florida) on 08/07/2012

After taking the Sodium Bicarb how do you feel or has it provided you with any benefit at all? Also, did your doctor provide you with this medical treatment and if you dont mind please share his name. Thank you, Syed
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Replied by Anonymouscat (Paradisecity, Ca) on 06/24/2013

Since your test was negative you need to look at other causative factors, one is low blood pressure, thyroid issues, hormonal issues heart valve issue and the most overlooked reason may be teeth infections, root canal in general wreak havoc on health. Wisdom teeth if infected or impacted even in the slightest are known to caused dizziness, since the ear maintains balance of our bodies and if the ear is anatomically close to the infected teeth this directly effects the balance. Also inner ear infections may cause dizziness. Also vitamin defienciencies such as iron or B12.
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Replied by Christina (Memphis, Tennessee ) on 12/12/2017

Hi, so is bilateral vestibular loss a total loss is that meniere's is that what that is?
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