Daughter just diagnosed with itp

Posted By Foofoo (Dallas, Tx) on 12/07/2010

My daughter was just diagnosed with ITP (super low platelets; hers are 8, should be 200-400). No known cause, no known cure is what the pediatric hematologist told me. NOT ACCEPTABLE. She also has low hemoglobin (9.7, should be 12-15), and low white blood count (4.0, should be over 6). She is not on any medications and has no other medical problems. What can I do to help her? She is almost 6 years old. I have her on B12, C, multi vitamin, thymus supplement, fresh organic carrot/romaine/parsley juice, NanoGreens, organic Goji juice, organic Acai puree, organic blackstrap molasses, acidophillus, no processed foods, no refined sugar (only a little panecho), little grain, all organic natural foods (If God didn't make it, she doesn't get it. ) No improvement so far. What am I missing?
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Replied by P (Nyc) on 12/08/2010

Look into beets, I read they build up blood count.
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Replied by Lauren (Oviedo, Fl) on 12/08/2010

How about giving her some fish oil and coconut oil? I know coconut oil can increase white blood counts. Good fats are extremely important for young kids' developing brains as much as all of the other wonderful foods you're already giving her.
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Replied by Brooke (Montgomery, Tx, Usa) on 12/10/2010

Wow - that is low! Has she been diagnosed with anything else? Anemia, and auto-immune disorder, or anything like that? Blood starts at the second and third sphincter muscle. Has she had an injury to her spine or her coccyx? I would start her on a Blood building diet - mostly liver, tripe, and things like that. The Offals is what they are called. I make a beef heart soup and my boys don't even know it! There are many ways to mask the taste of them. Do NOT fry them, but boil or broil them. Also supplement her diet with cod-liver oils and lamb instead of beef. If you want to give her beef juice that would be great -it supplies the body with a lot of iron - to make it - get an atlas jar and lid - put a low fat to no fat piece of red meat in that and put the lid on - but not too tight. Get a pot boiling with water and put a towel in it, then put your jar. Let this boil for about 30 min - to 1 hour and throw out the beef, keep the juice. Put any spices in it to make it taste better and have her sip it really slowly 3x a day or more. What you are trying to do is have her body absorb the juice before ever getting into the stomach. Go online and look for it, and also look for the blood building diet.
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Replied by Foofoofoo (Dallas, Tx) on 12/20/2010

Yes, anemia, no auto immune. MD thinks she was exposed to a virus of some kind and it settled in her blood. No confirmation on anything without a bone marrow test. To invasive. No, no injury to spine. Sees chir regularly. Everything I've read says that liver is bad for ITP. Not to much meat, either. To hard to digest. Omega 3's are o. K. , but not omega 6's. Hard to find accurate info on internet on what to eat and what to avoid. One site says load up on blueberries, another says avoid them like the plague, for instance.

Since western medicine can do nothing for her, I've taken her to an eastern medicine doctor. We did NAET to clear her allergies and are now working on "body talk". Strange to a person used to western medicine, but I'm open. Anybody have any experience with these? Any other suggestions from ITP people?

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Replied by Foofoofoo (Dallas, Tx) on 12/20/2010

Fish oil is no good for ITP people. Coconut maybe. I've been giving her olive oil for added callories. Have added an avocado a day for good fat as well.
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Replied by Assad (Quetta, Pakistan (balochistan)) on 01/13/2012

My son he is also diagnosed with ITP, his age is 2years and his complete blood count (CBC) shows a low number of platelets 20000. And now I have started giving him iron syr and folic acid tab. and a diet plan for him 1 glass milk in morning, one egg after an hour one folic acid tab, brown rice or wheat in lunch and a iron syr, after that one date and some times orange, apple or banana, and at night beef, or white meat or meat fried in oil. And thanks God he is showing much more improvements. Remember I gave my son warm water not cold water.
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Replied by Judy (Seffner, Florida, Usa) on 02/21/2012

I am a 59 year old female. I was diagnosed with ITP back in 1968 when I was 15. My platelet level rose after a course of treatments with Prednisone, but went low again after lowering the dosages.

I guess, at the time, the treatment was to remove the spleen. In the spring of 1969 they removed mine, plus several "accessory spleens" which, I was told, was not uncommon.

My platelet levels immediately started to rise. I recovered quickly (oh, to be 15 again) and have not been troubled with it since.

At times, my white blood count is "slightly" elevated. I have not, to this point in my life, suffered from any lowered immunity problems and am in pretty good health.

My understanding now is that they treat this issue with antibiotics and/or steroids. Given the outcome of continued steroid use, I'm glad that things worked out for me with a relatively simple surgery.

Good luck to those who struggle with it.

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Replied by Robin (The Big Apple, Ny ) on 04/28/2012

I've had itp since 1993. My platelets usually don't get severe but I bruise and bleed alot. I believe the platelets I do have are not that strong. For some reason I know my platelets are low when I crave apples. I drink apple juice, eat apples and apple sauce. They rebound faster the more apples I eat. The doctor thinks I'm nuts but it works for me. I don't want to give anyone false hope, I'm just saying what helps me.

Hang in there, ITPers, and stay strong!

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Replied by Yogesh (Delhi, India) on 07/24/2013

To all the itp patients. This is to inform u that platelete counts can be allevated by intake of wheat grass juice and aloe vera juice plus anwla juice. Without any side effects. Totally natural cure
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Replied by Ladyfsgf (Missouri) on 12/07/2013

Judy from Seffner, Florida--my downfall is the antibiotics I am given. After antibiotics later check my blood and want to send me to cancer doctor. After 2 visit/2consecutive months last cancer doctor determined medicine related-antibiotics, over the counter pain meds, aspirin. Several years back frequently throughout year saw cancer doctor/blood work-never did anything other than check blood. Quit going after few years.
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