Daughter experiencing many seizures

Posted By 8children (Dayton, Ohio, United States) on 05/10/2012

My daughter presented with this two weeks ago and Atavan knocked out the seizures. Upon returned home she had 3 seizures a day. That continued for 1 week. On day 11 after 1st seizure and taking 312 mg. Twice a day of depacote she had 11 seizures. day 12 - 14 seizures. day 13 - 16 seizures. day 14, admitted for eeg study and given the depacote and kepra. Seizures continue to increase and now on day 16 she is having clusters of 2, 3, 4 or five seizures all in a close span of 5-10 minutes and all 20-45 sec in length. I plan on no sugar tomorrow as just feel the hospital food is worse than her diet at home.

What is your thoughts on the ketogenic diet and have you seen success with that in a child? She had a uti and strep with the initial seizure episode that took us to the hospital. Before that, healthy child, happy, smart and loving life. Now sweet as can be just hard to see her go through seizures.

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Replied by Bonnie Nelson (Tehama, California) on 05/16/2012

My daughter has been having seizures for 7 years, she is diagnosed with having Aicardi Sydrome. I began a blog to experiment with my own remedy for startle seizures.

As parents, we know our children better than any doctor. Here is my blog I started:http://seizureremedy.blogspot.com/

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Replied by Johnnyboy (Melbourne) on 07/23/2012

Your prob sounds like many trials on numerous medications that I endured. The side effects were worse than the seizures. I eventually ended up on 2meds, tegretol and keppra. Now, after many years I am aging and I'm tired of living with both seizures and side effects. Recently I began a Japanese water diet and I am pleased with my improvement in health. Why not look it up, you have nothing to lose.
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