Not all DC is inherited. There is not a soul in my family who has this terrible disease. Studies have shown that some long term lasting affects of taking phenobarbital can also cause DC. I started taking that drug in 1986 when I started having seizures. I've known others who have taken phenobarbital for a long time only to end up with DC. Research shows that long term use of the drug causes connective tissue disease. Just so happens, I've had adhesive capsulitus in both shoulders, RSD, and DC in both hands. I don't think this will be my last surgery. It's a vicious circle. With each treatment or surgery causes more scarring and lumping. This is a horrible disease and I don't wish it on anybody. If anybody learns of a new noninvasive treatment that actually works, please let me know.
Replied by Om (Hope, Bc, Canada) on 03/09/2015
Hello, Nancy --- I have the same disease in my hands. It started when I was young and took a long time to be where it is now being in senior years now.
A few years ago I had an operation for my pinky, both of which almost touched my palm. I am told it is inherited but I have no clue. Well the surgeon must have put a needle into and along my right index finger and now nerve damage is very evident. That prevented me from having the other pinky done. The doult.
I drop almost every lid and other things. The corrected pinky is still very bent and I know this is ongoing. I do not have a good impression from the surgeon and feel I was a means to make money on.
So there it is and I am sorry you have this problem and really no way of correcting it permanently. But I never take drugs . My other fingers bend somewhat as the very bent pinkies stop them from stretching out completely.
I hear this is more common than one thinks but with some people it does not bend that much because it takes more time to do so. For me it was almost most of my adult years.
Keep well. Namaste, Om
Replied by Anon (Anon) on 03/09/2015
Try googling Serrapeptase for Dupuytren's Contracture to consider this as a noninvasive treatment for you.