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Advice needed for multiple autoimmune diseases

Posted By Lori (Ny, Usa) on 12/01/2011

My son is a 27 years old and in pain 24/7. I am hoping to get remedies on how to begin to treat these autoimmune diseases. Graves disease started at age 16, thyroid radiated and have been on synthroid. Ankylosing Spondylitis started at age 20, severe pain in lower back and take about 8 advil a day. MS started at age 27, seven months ago, tingling and pins and needles in legs and tops and bottom of feet and started copaxone one month ago.

Are there any protocols for these autoimmune diseases?

Please help.

Lori

Replied by Rsw (Uniontown, Oh) on 12/01/2011

A very effective drug for most autoimmune disease that has no side effects and is especially good with stopping progression of MS is low dose naltrexone (LDN). The website to read about it is www.ldninfo.org. There is a Yahoo LDN group with over 10,000 members, many of whom have MS and other autoimmune diseases. You can join and post your questions. Members are always willing to help out and have years of experience with LDN and about half have MS. Please check these out. It is generally thought that the CRABS drugs, one of which is copaxone, do not work. Good luck. I hope this helps.

Replied by Jen (Bozeman, Mt, Us) on 12/02/2011

Gosh for some when it rains it pours. I have Graves disease and I know exactly what a difficult disease it is. I also have more than 20 family members who have been diagnosed with MS. I have researched both diseases alot and with the Graves have been able to treat the issue completely with herbal supplements and diet. Since your son has been treated with radiation for this issue the treatment is different but still possible. Even with low thyroid function or no function his immune system is still on attack mode. That is the root of the problem.

Your son possibly has a food allergy which could be temporary or something he will have to deal with for the rest of his life. When you have a food allergy for instance gluten intolerance. You ingest that food which causes your immune system to send out histamines. Those histamines attack the food that your body is unable to digest causing such reactions as stuffy nose, achy joints, etc... If your son had a normal allergy it could cause anaphylactic shock but with autoimmune diseases the reaction is different. I have done some research on the reasons why so many food allergies are becoming so prevalent in todays day and age. I believe it is curable in most cases. That the root of the problem is actually a disorder called Leaky gut syndrom. Google this problem and see if it is possible that your son might have it. If he has taken alot of anibiotics in his life it is very likely. The antibiotics cause a yeast infestation to start. If it isn't treated then the yeast takes over the intestines. This fungus causes lesions all over the intestines which causes particles of food to leak into the blood. Your immune system attacks the foreign pathogen and you now have a food allergy. Or what your body thinks is a food allergy. Get rid of the yeast and he may be food allergy free again.

Gluten molecules resemble thyroid cells so as you can immagine when you ingest gluten and you are allergic to it then the immune system attacks. Eventually the immune system cannot tell the difference between the thyroid and the gluten cells so the immune system is always on attack mode and the thyroid becomes ill. Either causing Graves disease or Hashimoto's disease. For this kind of disease it is best to avoid the food causing the illness but you can also attempt to calm the immune system down using supplements like Astragulas and Marshmallow root. Another remedy that helps is Ted's alkalizing remedy (lemon 2 tblsp and 1/2 tsp baking soda) 2 to 3 times a day. Make sure he is getting adequite iodine, selenium, magnesium, and Vit C as well.

For the MS the above will help the autoimmune system to calm down and stop attacking nerve cells as well. Another thing that I have found much research on is the possiblity of MS patients also having a copper deficiency. One of the things that copper is know for is to help form what is called the mylin sheaths. These sheaths are like blankets that surround the nerve cells. With MS the sheaths are not always present as they are being distoyed by the immune system. Focus on trying to find supplements that are known to help form the sheaths and possibly repair the damage that has been done. Some that I know of and take myself are Omega 3's (nourishes the fat in the sheath), B vitamins especially B-12(help to form and repair tissues including the myelin sheath), L-Glycine (Helps repair connective tissue including the myelin sheath)

Unfortunately I don't know anything about AS but I would hope that calming the immune system down would also help this. I used to take 8 advil a day and sometimes a few tylenol as well for my migraines and achy joints caused by the Graves. I don't have to take any now that I have gotten control of my immune system. I too had a few different auto immune diseases at the same time and if I stay away from gluten they all stay away. I also take many supplements. I am trying to avoid the MS diagnosis as it is so common in my family. I hope and pray that your son can find relief for all of his diseases. He is too young to have to deal with so much.

Replied by Lori (Ny, Ny) on 12/03/2011

Hi Rsw from Uniontown,

Thank you for your response. We are going to a doctor that prescribes LDN in about 2 weeks. Our neuro won't prescribe it but she is not against getting it from another doctor.

Thanks again for your input.

Lori

Replied by Lori (Ny) on 12/04/2011

Hi Jen from Bozeman, Mt, Us,

Wow, you have given me a wealth of information. I agree about gluten. My son was on a gluten free diet and it was extremely successful in reducing his back pain. He has been off the diet for several months and his pain is right back to where it was. He is working his way back to trying to eat that way, but he finds it challenging and when emotionally depressed. He gets comfort in gluten foods.

We will look into all the rest of your wonderful and thoughtful suggestions.

Thank you very much for your response.

Lori

Replied by Jen (Bozeman, Mt, Us) on 12/05/2011

Believe me I completely understand how hard it is to stay away from gluten. Sometimes all I can think about is pizza:) I want a slice so bad that everything I eat tastes terrible. It is very hard on the emotions and all I can offer is that eventually he may start to think of those gluten filled foods as evil. I can't say he won't ever want them again but eventually for me when I fall pray to the weakness for just one slice I take a bite and instantly associate the taste with pain. It doesn't mean I don't still eat and chew with supreme joy but in the back of my head I know soon I will regret this delicious mistake. I don't eat it very often but when I do I prepare myself for the inevitable and make sure my schedule is clear for the migraine on the way. I am currently trying to rid myself of the yeast I believe is the culprit to see if this helps. I will let you know if I make any progress.

Replied by Kayejayevee (Fort Myers Beach, Fl, Usa) on 12/07/2011

Bob's red mill gluten free pizza mix makes a really good crust. You can find it in most major grocery stores. I buy mine at publix.

Replied by Lori (Ny , Ny) on 12/07/2011

Hi Kayejayevee from Fort Myers Beach, Fl, Usa,

Thank you for your suggestion of the Bob's red mill gluten free pizza mix. I know my grocery sells Bob's products and I will look for it. I appreciate your input.

Lori

Replied by Mt (San Ramon, Ca) on 02/04/2012

Hi Lori, I stumbled on this video about a doctor that cured herself of MS with diet. I think she makes a lot of sense and the diet is a really healthy one for all of us. Good luck, I hope this video is helpful.

http://tedxtalks.ted.com/video/TEDxIowaCity-Dr-Terry-Wahls-Min

Replied by Lori (Great Neck, Ny) on 02/04/2012

Hi Mt from San Ramon, Ca.

Thank you so much for this information about MS and diet. This is fantastic. I can't thank you enough. I believe that food is medicine, and I take this very seriously. Our diet will change going forward. You have given us hope through this video. Thank you. I will keep you posted.

Lori

Replied by Holly (White River Jct, Vermont) on 03/08/2012

L, You may want to look up serrapeptase, www.serrapeptase.info, They use this in EU for disease, very effective w/ MS etc.... He has a tremendous amount of info on site and testimonials from people who take this product, as well as dietary changes, and you can E for more info and he has a book that gets all into this enzyme and what treatment plan to do for whatever the problem is called ' the miracle enzyme'. Very impressive stuff. I use this (hashimotos and FM w/ other ailments and improving) my husband (emphysema) so I'm not trying to 'sell' the product, I am just very impressed so far.

Replied by Lori (Ny, Usa) on 03/10/2012

Hi Holly from White River Junction, I have never heard of this product. How long have you been using it, what dosage, and what results have you and your husband had?

Thanks so much for your input, much appreciated.

Lori

Replied by Margaret (Texas) on 10/29/2023

Earlier this year I read a post by Ann Louise Gittleman where she stated autoimmune problems can be caused by the glyphosate (RoundUp) used in the process of harvesting wheat. It is in other foods too.

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