Replied by Tenderfoot (Las Cruces, Nm Usa) on 09/09/2010
Not familiar with the disease overall, but for fragile arteries as an isolated symptom you might investigate the benefits of rutin.Replied by Woody (29 Palms, Ca) on 06/08/2011
now the doctors are telling me that ontop of NF1 and Moya Moya that he also may have Glioma! This is the 3rd rare condition he has developed could there be some underling cause giving him the symptoms of all three? he has almost all the symtoms of all three to include high blood presure, and has had 2 strokes and he is only 4 yrs old so taking pills he cant chew is hard for him and some things you just cant give a kid that age at adult doses. Any ideas?Replied by Ynnis (Fayetteville, Nc) on 09/29/2011
Please google "health benefits of honey and cinnamon". You will find many helpful tips on how to mix honey and cinnamon to relieve this and that, and even cure many ailments, including heart diseases, strengthening of the immune system...
Also, a regular dose of 1 teaspoon baking soda daily will help! Preferably taken in the morning. It tastes bad, but it relieved my husbands asthma, which he had since birth!
Replied by Kotipup (Landenberg, Pa) on 07/10/2012
To Woody - I saw your thread was from 2010, but I wanted to reply because my daughter also has NF1 and MoyaMoya. She also has optic gliomas. We give her propolis for her neurofibromas, and Ruta6 and CalPhos for the gliomas. Daphne's STAMCA surgeries for Moyamoya went well (she had them when she was 15 months old); however, now she is 8 and the left side has become narrowed again. We're waiting to hear from her Neurosurgeon about whether he wants to do anything. Daphne also suffered two strokes before her Moyamoya was diagnosed. I hope your son is doing OK. Dealing with severe NF is very difficult and emotional. Email me at moyer305(at)comcast. net if you want to touch base.
