16 year old daughter with myoclonic dystonia syndrome mds

Posted By Karrob03 (Culver City, California, USA) on 03/25/2012

My 16 year old daughter was diagnosed with MDS, also referred to as alcohol responsive myoclonia. Her myclonic symptoms are not severe, but lead to social anxiety which in turn causes her myclonic jerks to increase. I have been trying to find hollistic alternatives for treatment as her doctor wanted to place her on benzo's, which my daughter refused. She is now trying a anticholenergic, but the side effects seem to be worse. She currently takes GABA, which helps her anxiety and we just started taking 5000mcg's of B-12, (some literature has suggested B-12 connected with a healthy nervous system). I would like to know if anyone has any suggestions or knowledge of a natural approach to the spasms she experiences. thanks, karen

Replied by Sue (Arl. Hts., Il) on 03/26/2012

I was having these types of symptoms... And turned out it was from fluoride and mercury poisoning. They went away almost entirely when I had the mercury fillings taken out, and used Ted's recommended way of detoxing from Flouroide with Borax - not Boron. I used the 1/8 tsp in litre of water, which is recommended for smaller women and children. I also found that Chlorella binds with these types of poisons and escorts them out of the system. So, I recommend that you search this sight for Ted's Fluoride detox (i think it is in the Lupus section) and look into the chorella here and on the Mercola website. I agree with you that you should NOT have her take those meds. Hope this helps.

Replied by Ted (Bangkok, Thailand) on 03/27/2012

Actually benzodiazepines actions resemble or rival alcohol in therapeutic activity of myclonus. You really have to notice whether the jerks are activated when the person feels very tired or not, if they do, then selenium and vitamin E will reduced it. I have a person with similar conditions, and it is helped by B3 niacinamide, 500 mg, that is known to reduce anxiety, but was also taking oral EDTA (to reduce heavy metals that causes jerking conditions due to metals) at 30% EDTA tetrasodium, 20 drops twice a day. He was also taking GABA too, magnesium chloride solution 60%, 7 drops twice a day.

Blood sugar seems to be a factor in inducing social anxiety, which is why gymnema slyvestre taking twice a day 400 mg. , taken at 8 am and 8 pm, seems to do the job, but was also taking chromium chloride 10%, 10 drops twice a day, which can be mixed with other supplements also. If virus is implicated, in the disease there is a simple test (since this condition can be misdiagnosed), by taking 1/4 teaspoon of lysine, 1/4 teaspoon of threonine, for hourly for four hours, and N acetyl cysteine 250 mg for two hours. If the symptoms get clearly better, then it is a misdiagnosed condition, and is due to a virus. This form of virus affects the Central Nervous System, and they are genetically vulnerable, not genetic cause as most literature suggests, and may be helped with urea (5 grams x 8 times a day) to possibly get rid of the virus, as well as other antiviral supplements, eg. 10% lithium chloride (10 drops in evening), zinc acetate, etc. , and may be helped with lysine, threonine, and N acetyl Cysteine.

Sugar and artificial sugar snacks seem to be the trigger into causing most of the jerky movements in inducing a classic hypoglycemia. The social anxiety causes the blood sugar to be high, and the resultant hypoglycemia is the insulin being shot up to cause it, when this happens, a quick remedy (but not in the long term) seems to be a little orange juice approximately 15 to 20 cc, should do it, and B3 niacinamide 500 mg will calm things down.



Replied by Karrob03 (Culver City, California) on 03/30/2012

I failed to mention that she has had the same symptoms since the age of two, we had thought it was tremors or a tic. Would you still recommend the test for virus? thanks so much

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