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Home > Ailments > Neurofibromatosis (NF) > Neurofibromatosis (NF) Q&A > 13 year old daughter with cafe au lait spots

13 year old daughter with cafe au lait spots

Posted By Sally (Winona, Minnesota) on 05/08/2010

neurofibermatosis: My 13 year old daughter has cafe au lait spot (10) on her body. No other symptoms of this disease. The doctors say the spots may increase during puberty. Is there anything I can do??

Thank you,
Sally
EC: For those unfamiliar with Café au lait spots:

"Café au lait spots or Café au lait macules are pigmented birthmarks.[1] The name café au lait is French for "coffee with milk" and refers to their light-brown color. They are also called "giraffe spots."  Source: http://en.wikipedia.org/wiki/Café_au_lait_spot

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Replied by Jeff (Wilmington, Delaware) on 12/02/2011

HI Sally,

We have something in common---my 11year old daughter also has these spots and is being evaluated in Boston next week for NF. Would you mind talking about what you are going through and any natural options that you are trying/considering?

Jeff...

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