She is currently being breastfed, and we would like to know if you recommend something to improve my immune system and therefore improve hers as long as she is breastfed.
Thank you in advance and hope to hear from you soon.
Replied by Jen (Northern California, Ca) on 12/24/2012
Since NF is genetic or a spontaneous mutation and people are born with it, there isn't much you can do to "prevent" future problems. Although, I am a firm believer that nutrition plays a huge part in everything that goes on in our bodies.Your daughter is only a few months old, the best thing you can do is get an excellent doctor who specializes in NF. I have NF, as a child I had the BEST Neuro Surgeon in the world (Dr. Michael Edwards in Ca.). If you can get him, you will love him.
Now, as an adult... With employee medical coverage, I'm lucky if I get annual tests (MRI scans. etc.) to see if all is well. I have most of my tumors inside my body... And quite a few on my skin. Thankfully, I'm not covered with them though. I've had many removed and will continue to do so as long as I trust the DR. It's hard going from the BEST Dr. to Drs. that don't care.
I've always heard that you either have problems with NF as a child or the problems start as an adult. I can't really tell the difference as the problems just seem different.
I'll pray that your daughter has the mild type of NF. The type that never gives her any problems.
