Replied by Nancy from Los Angeles on 05/25/2021

Just an update... I tried the sea buckthorn oil and, maybe it was a coincidence, but my tongue swelled pretty suddenly (not hugely, just enough to be painful pressing against my teeth) and my lips went all tingly. It was weird and scary, so I don't plan to take any more sea buckthorn oil. Which is a bummer because I thought it might really help. Anyway, just wanted to put that out there in case anyone else had a similar experience. Again, it could be coincidence... if the swelling and tingling isn't gone in a few days, then I'll look for other culprits (like Sjogren's itself), but for now, it seems sea buckthorn oil is not my friend. (This was the Seabuck Wonders brand, btw... the one with both seed and fruit oils.)

Also, I discovered that the fish oil is not something to take high doses of (i.e., 3 tsp/day) for any significant duration either... unless you're able to regularly test your levels of omega-3 vs. 6, AA vs. DHA, etc.. Apparently, when omega-3 levels get too high relative to omega-6, they can cause many of the problems I'm trying to eliminate. I feel like I need to get a whole battery of test$ to see where I am before I take one more supplement. This is becoming one long game of whack-a-mole. I'm going back to basics for now, only supplementing things that (a) I know, based on lab tests, that I'm deficient in, or (b) that I know have no undesirable effects when used in excess of necessary amounts. Good luck everyone... I know the answer is out there! (It just probably looks different for each of us.)

Replied by Art from California on 05/26/2021

Nancy,

If you haven't already, you might look into vitamin D and an absorbable form of zinc such as zinc picolinate or zinc gluconate.

Art

Replied by Nancy from Los Angeles on 06/21/2021

Hi Art:

Sorry, I just saw this. I think you are spot-on. Vitamin D has been hard for me to budge, but I've started taking cod liver oil, so we'll see. Zinc is actually more interesting to me because the last 3 times I had a migraine coming on, I've taken zinc and it resolved w/in an hour. (I can't take NSAIDs due to fluoroquinolone toxicity and was scratching my head for alternatives, when something in me told me to try zinc... it worked! ) And as zinc is so important to the absorption of so many other vitamins, I suspect it could be a game changer for me. Thanks for your reply!

Replied by Kathleen from Orange County, ca on 12/20/2022

Are you still taking cod liver oil. How do u take it? Teaspoon, etc? There are many remedies but confusing because no one discusses how they take it, how much, etc. I want to try the least expensive easy option. Please advise