Sam (Miami) on 06/28/2020
If blood pressure drops, it is not POTS. POTS comes with many other debilitating symptoms. Not only teenagers get it. Cervical cancer vaccine causes POTS. Managing pots is very difficult. There is no one size fits all.
I have tried everything there’s to try in alternative medicine field, from supplements to modalities, nothing worked for me. I have it for 10 years. Only atenolol allows me to semi function, but it only addresses heart rate elevation, not the other 50 symptoms that come with POTS.
Replied by Jane from Nevada on 12/04/2020
I have found the only thing that works for me is intermittent fasting and also doing an occasional water fast for 3 to 7 day water. Clean diet, daily meditation, detoxing the body via far-infrared sauna/Salt bath and acupuncture has helped me immensely however you have to be very disciplined with all of this. Just try.Replied by msmaia from usa east coast on 02/14/2021
When you say, "One won't find remedies for dysautonomia here. Dysautonomia International is the source for all your questions." I'm not sure what you mean because I thought this was a site that has ongoing conversations and knowledge building and personal experiences. I'm sure (and hoping) people will keep sharing insights and personal experience with this condition.Dysautonomia International has not provided me with any help with my condition due to their policies on medical advice. I'm hoping one day it will.
In the meantime, members are not free to talk on the social media page about actual cures so I will still be checking Earth Clinic which has already been a help to me in find cures to some of my symptoms over the years.
Replied by msmaia from usa east coast on 02/14/2021
I want to make sure that the misinformation posted here is corrected. POTS is not for teenagers only. See article from NIH. "Anyone at any age can develop POTS, but the majority of individuals affected (between 75 and 80 percent) are women between the ages of 15 to 50 years of age. Some women report an increase in episodes of POTS right before their menstrual periods." - NIHI developed POTS at age 44, I am now 47 and still have it. I also did a pole in a large pots group and was surprised to see a surprising amount of potsies 40-60. It's important that people are aware because I went 2 years not knowing what was wrong with me.
Replied by Ioana M from Chicago on 03/15/2022
For those that are looking for treatment for dysautonomia!! Have you tried functional neurology? They take a full person approach with an extensive initial exam of 3 hours that looks at EVERY symptom not just one. Here is the link to one of these offices! : https://neurologicwellnessinstitute.com/dysautonomia/Replied by Chantal from Milwaukee on 06/02/2022
What kind of clean diet do you eat? Also what ratio of fasting do you do? How long did it take you to make it to 3 to 7 day fasting? I would pass out lol! ThanksReplied by Mary Alice Silverthorn from Marquette, MI on 03/21/2024
Hello! I just received a diagnosis from functional neurologists in Grand Rapids. It was two hours. I feel a constant feeling of anxiety in my stomach area and had no idea that could be a PoTS symptom. I start treatment in a little over a month. Will update results...but happy to have some clarity. I was given some supps to try.Replied by Akira from South Africa on 01/07/2026
Please do keep us updated Mary, it would be really amazing to get this thread going and this appointment you had sounds really interesting..
