Replied by Mama To Many from Tennessee on 10/29/2016

Dear Lynn,

Every remedy is not for every person. Maybe borax is not for you. Or maybe you need much smaller amounts. (My husband uses only a tiny pinch a day or he gets side effects. Over many months though, we have seen results from that tiny amount.)

You might consider topical magnesium oil instead for your pain and stiffness.

I hope you feel better soon.

~Mama to Many~

Replied by Mmsg from Somewhere, Europe on 10/29/2016

Lynn, how about trying much less Borax?

Replied by Natural Hippy from Arizona on 12/11/2016

First Lower your dose till you can take it without any issues. Try going from 1/8 to half of that, 1/16.
If you still have issues half the dose again.

Also, add only a few flakes of Epsom salts. The magnesium will assist the Borax. You only need a pinch per table spoon of borax so a flake or two a day is enough.
Once you have found a dose that works for you start doing that for 3-5 days on the borax supplementation and 1-3 days off supplementation.

Lastly, It is important to consume the liter of water on your days off of supplementation. Putting water in your body is going to be one of the most important factors in assisting the borax. I recommend always using distilled water. If distilled is not available you want the cleanest water possible with no added minerals. The borax and epsom salts you added are the minerals you want.

Hope this helps! Remember your healing is in your mind and your hands.

Replied by Art from California on 12/12/2016

I have a friend who can not take borax at any dose, even a few grains of borax will result in intense itching that lasts for a day or two......possibly an allergic reaction, but borax is not doable for this person. Failing the borax, she tried using boron which started to help her arthritis, but within days of starting on boron supplementation she started to become depressed......the type of depression where you don't want to get out of bed or do anything. She tried decreasing her dose to just 3 mg per day and the depression persisted so she stopped taking it for a few months and tried again, only to return to that depressed state, so she stopped taking boron altogether.

As far as drinking distilled water always, there seems to be varying opinions on that idea. Here is what Dr. Mercola has to say on that subject, suggesting that always drinking distilled water may harm you in the long run and result in early death. I would tend to agree with his findings.

http://www.mercola.com/article/water/distilled_water.htm

Art

Replied by Robert Henry from Ten Mile , Tn on 12/13/2016

ART,,,,,,,, glad you have chimed in on the dangers of distilled water. What folks need to understand is that distilled water is a powerful solvent because the hydrogen bonding has an affinity for all positive minerals. It will leach them out of your body. Not overnight, but over a period of time.

I have written about this years ago and got beat about the head and shoulders. Thanks for your input.

=======ORH=======

Replied by Art from California on 12/14/2016

ORH,

Yes, I try to limit my distilled water intake to the colloidal silver that I use. For regular consumption I generally drink filtered water.

Art

Replied by Tim from Minnesota on 01/10/2017

Lynn, the directions I've found elsewhere are after mixing up the bottle is that you're only supposed to take an 1/8 tsp of what you just mixed up. Don't drink the whole bottle in 1 day!! I think you're only supposed to take around 7mg a day.

Replied by Austin from California on 01/16/2017

Lynn, I have the same reaction of feeling sunburn on my hands and face after taking 4 mg of Boron. It does mention a dose of borax of 1/8 tsp for fungal infections or other health issues, but that is a big dose to start with, 1/8 tsp will have about 50mg of Boron in it, I only took 4 mg today and I burned on my hands and face. I am considering reducing to 2 mg/day for a week, with added magnesium, and see if my burning reaction subsides, then increase. Have you tried taking it with aspirin as mentioned above - did it reduce the burning?

 

Replied by Lynn from California on 04/20/2017

UPDATE to my post from 10/29/16.

I tried again a few days ago with 1/8 tsp in 1 liter water and this time...no nerve burning pain! What is different this time is that I have gone off my daily multivitamin 2 weeks ago and have been taking a daily Ginger Root capsule (to help with heartburn and Fluoride detox from taking cipro last year). I don't know if these two things (or just one of them) is the reason I'm not having the nerve burning this time but I'm just glad I don't so I can continued on. This is day 3 of using it.

Replied by Elaina Jensen from Oregon on 04/23/2017

About distilled water.... I just remember being instructed by our dog's veterinarian to only give our dog distilled water at one point for a medical condition unrelated to anything neurological and the dog started having seizures. Our dog was then prescribed phenobarbital for those seizures - which really sedated him and we weren't happy about. We couldn't believe this was happening.

After about four days of distilled water and the phenobarbital, the seizures kept getting worse. We stopped the distilled water and went back to putting regular tap water in his water dish. The seizures stopped and we stopped the phenobarbital too. We never had a problem with seizures after that.

I learned to have a lot of respect for distilled water and to be very careful how it is used after that.

Replied by Kelly from Florida on 06/29/2017

Dr. Mercola is wrong. I've been drinking 1 1/2 gallon a day since 2014 and after 4 or 5 days I started to get a pressure headache, which was a detox symptom. After 18 to 30 days I had more energy. He also said it will leach minerals from your body, it will but only the bad ones, not the ones you get from fruit and vegs.

Replied by Stere from Florida on 10/24/2017

The increasing the pain is caused by the "HERXHEIMER EFFECT" (it's a reaction to treatment in which the symptoms of disease gets worse at the start of therapy a paradox sign that the infection source of the disease is under attack.....It's getting worse before getting better.

Please keep me updated....

Good luck....

Replied by Jill from Tx on 01/05/2018

Lynn, have you tried an autoimmune gut healing protocol like GAPS (gut and psychology syndrome/gut and physiology syndrome) or AIP (auto-immune paleo protocol)? I had symptoms of lichen sclerosis for years (it started more like interstitial cystitis) until my daughter was diagnosed with multiple food allergies including foods that are eliminated in both of those diets. When I adjusted the food our family ate to accommodate her food allergies my symptoms went away! Now if I eat much wheat/gluten (like if we're visiting relatives and I have little control over what I eat) my symptoms tend to start coming back. It could also make a huge difference to get the guidance of a functional medicine doctor too. A lot of FM docs are chiropractors. You can find an FM doc on a search engine.

Replied by Vicki from Missouri on 04/24/2018

Elaina,

You have to replace the minerals that were removed in the distilled water. Himalayan sea salt, the pink kind, makes distilled water the healthiest water you can drink. The exact minerals our bodies need are in this salt, all 84 of them.

Replied by Ann Duncan from California on 11/05/2020

I agree. I've been drinking distilled water since I got a MegaHome distiller nearly 5 yrs ago. I herxed the first week. My body appreciates distilled water. I get my minerals from my food.

Replied by Linda from Rogers AR on 11/22/2020

Hello Jill,

I also have lichen sclerosis and have for 4 years. I was excited to hear you controlled your symptoms by taking gluten out of your diet. I have currently gotten thru week 1 of no gluten ( but no changes yet).

How long did it take you and any other suggestions? Thank you for any help!

Replied by Sherry from Virginia on 08/22/2023

Perrin’s Blend is the best cream for LS that I have tried. I’ve had LS for almost 20 years. I am so sorry you have to deal with this also. I believe a vaccine in my seventh month of pregnancy may have caused mine. Only God knows. Within two weeks? Diagnosed. Never had issues until then. 😔

Replied by LIZ from Hilton Head Island on 04/08/2024

Lynn, dissolve 1tbsp of borax + 1 tbsp of bicarbonate of soda with +/- 1 cup of very hot water (borax will not dissolve in cold water). Once fully dissolved, you can add +/- two more cups of water. Place it in a large washing bowl and seat in it for about 20 to 30 minutes. If you are too seriously affected by LS as I was, do this procedure twice a day. Stay longer time soaking in this solution if you wish to. This is healing water and won't harm you at all. The longer, the better. You'll find immediate relief almost after the first bath. Then go on with it as many more times a day, a week or a month you need, until you're done with it. Apply a soothing oil in the affected area after each wash. I personally use organic apricot kernel seed oil. Do not use any body lotions or stuff loaded with harmful ingredients and chemicals. Make sure you use organic and natural products, more so for that extremely delicate and sensible part of our bodies.

It will help a lot to stop eating carbs and detox your body from harmful food too. Go walking or exercise each day and spend time enjoying the healing benefits of the sun as much as you can.

Distress, distress, distress.
Consider yourself healed!

Replied by Jessica from Idaho on 05/01/2024

Thank you for this! I have been suffering from LS for over 7 years and was told by the doc that it is something I will just have to deal with the rest of my life. I, of course, am choosing not to believe my doc, but thus far have not found a solution. Will definitely try this!