Replied by Robert from Norfolk, Va on 07/29/2017

I am curious to find out, once your lung inflamation was reduced, did it give you back air and the ability to run?

Replied by Joellyn from Atlanta, Ga on 05/05/2018

I was diagnosed with sarcoidosis about 5 years ago. At times it feels that I'm about to cough up a lung. So many times I am miserable. Poppy seed extract, where can I purchase it at and at what dosage should I take?

Replied by Intuitive Healing from San Diego on 10/31/2020

Thanks, this is very interesting because I had a dream telling me to find 'Norwegian Poppy Sticks" for my lungs. I have not found this specifically although I did find that Poppy seeds have been used successfully for inflamation of lungs, etc. I am aiming to ask my relatives in Norway if they know of this. Although this is how I found out about Sarcoidosis, since my search somehow took me here and I had never heard of it before so I immediately sent this info to my primary care doc, since I am still in the process of being diagnosed.

Replied by beverly from usa on 02/14/2024

Dr Trevor Marshall who has sarcoidosis is a biochemist and has developed a protocol for Sarcoid. My lung doctors just have prednisone and methotrexate in their bag of tricks. Both deadly but prednisone has kept me out of the grave for 35 years.......time to find something more gentle on this old body.

Replied by Art from California on 02/14/2024

Hi Beverly,

The multitude of healthful effects of melatonin may include being a useful treatment of sarcoidosis according to the following study :

" Melatonin is a safe and effective treatment for chronic pulmonary and extrapulmonary sarcoidosis "

https://pubmed.ncbi.nlm.nih.gov/16879313/

Here is a relevant study quote :

' Normalization of ACE, improvement of pulmonary parameters and resolution of skin involvement were found in the patients given melatonin. After 24 months of melatonin therapy, hylar adenopathy completely resolved in eight patients and parenchymal lesions were markedly improved in all patients; in the five patients with reduced diffusion capacity of the lung for carbon monoxide, the values normalized after 6 months of therapy and remained stable until month 24. After 24 months, Ga(67) pulmonary and extra-pulmonary uptake was totally normalized in seven patients and, at month 12 months, ACE was normalized in six patients in which the values were high at the baseline. Skin lesions, present in three patients, completely disappeared at month 24 months. No side effects were experienced and no disease relapse was observed during melatonin treatment. Melatonin may be an effective and safe therapy for CS when other treatments fail or cause side effects. '

It is worth noting that these results were obtained at relatively low dosing of melatonin at 20 mg/day in the first year and 10 mg/day in the second year.

Art

Replied by beverly from usa on 02/15/2024

thanks Art............I do take liquid melatonin and have for a long time.........maybe I need to look at my dosing. I just normally take a swig of it.

Bev

Replied by Art from California on 02/15/2024

Hi Beverly,

You asked for something more gentle and I suspect melatonin may be a viable option, but I feel certain it will take everyday use at a higher dose.

Look at this February 2023 study that only used 3 mg of melatonin every night to improve sleep in people with sarcoidosis :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9990518/

Here is a relevant study quote :

' There was a significant change in the GSDS (P < 0.001), PSQI (P < 0.001), ESS (P = 0.002), and FAS (P < 0.001) scores, which were decreased, compared to those of the control group. After intervention¸ global physical health and global mental health raw scores were improved comparing to the control group (P = 0.006, P = 0.02, respectively). The 12-item Short Form Survey evaluation showed that there was a significant difference between the melatonin (3.38 ± 4.61) and control (0.55 ± 7.25) groups in PCS-12 score after three months of therapy (P = 0.02). '

This is a significant improvement, but both 10 mg/day and 20 mg/day did significantly more in the other study. For me, being a person who tolerates high dose melatonin well and takes 132 mg/day everyday, I certainly would have started a bit higher than 20 mg/day. In this next study using 50 mg melatonin per day in people with Parkinson's disease, that 50 mg of melatonin each day was able to return oxidative stress levels back to levels seen in healthy controls and improve mitochondrial function and efficiency in 3 months, which would both be useful for sarcoidosis.

https://www.hindawi.com/journals/omcl/2021/5577541/

Here is a relevant study quote :

' At baseline, plasma levels of lipoperoxides, nitric oxide metabolites, and carbonyl groups in proteins were significantly higher in PD patients than in the healthy control group (Figures 1(a)–1(c), respectively). Conversely, the plasma activity of catalase was lower in the healthy control group than in PD patients (Figure 1(d)). These data suggest the existence of an active, persistent oxidative stress in PD. After three months of treatment with melatonin, the levels of lipoperoxides, nitric oxide metabolites, and carbonyl groups in proteins were lower than in the placebo group and were statistically similar to the levels of healthy controls. The activity of catalase was increased with the treatment with melatonin at levels similar to the control group. '

The four markers mentioned above are all indicators used to measure oxidative stress level and they were returned to healthy control levels which also means that elevated inflammation levels were decreased.

The following 2021 article highlights the role of oxidative stress in sarcoidosis :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8584035/

Here is a relevant review quote :

' In recent years, oxidative stress has been highlighted as an important factor in the pathogenesis of sarcoidosis, involving several enzymes and molecules in the mechanism of the disease. This review presents current data on the role of oxidative stress in sarcoidosis and its interaction with inflammation, as well as the application of antioxidative therapy in the disease. '

Art

Replied by Sophie from Paris on 11/11/2025

Bonjour

Avez vous trouve une alternative aux traitements conventionnels. Merci pour votre retour.

Sophie

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Good morning

Have you found an alternative to conventional treatments? Thank you for your feedback.

Sophie