Patsy (Liverpool, UK) on 09/27/2015
I was diagnosed with RA at age 27. I'm now 50 and for many years I took methotrexate and lived in denial. I've had surgery on my feet several times. I began trying to find a solution through diet 3 yr ago. I gave up meat followed by dairy.( I had read these were triggers) however my RA was creeping back so I did a workshop with a health researcher who 30 yrs previous had cured his own RA and told me it was either a deficiency, diet or a possible food allergy and recommended Patrick Holford's Say No To Arthritis. (I was now taking a variety of nutrients recommended: vit C, vit D3 10,000, MSM, Fulvic Minerals, and still it was progressing.
After reading his book, I was certain a food allergy was my problem. I paid ̣̉250 for a york allergy test (food) however the results weren't conclusive I was allergic to meat, fish oils, sea food. Mostly stuff I didn't eat. Milk weren't there so I started having milk again on my porridge. Then I discovered "The Borax Conspiracy" article. Again, I was convinced I had found the solution. I ordered the boron supplements and started on 9mg Triple Boron Complex (x3 3mg) as recommended reading all the testimonals and believed again I had found the solution. 5 days into boron and I had the worst herx, I struggled downstairs with every part of my body hurting like never before. I believed this was a good sign and continued meantime I included different nutrients so I'm now taking Vit C, D3, boron 9mg, sellenium, potassium, flaxseed, magnesium, vit B1,2,3,6,12, and folate. The herx didn't subside, it just sent my RA into overdrive and now I'm swelling and hurting in other places that weren't affected and has made it worse than ever.
Starting to feel deflated and defeated, I read about LDN, surely this is the answer my thinking was: I have had this condition so long my body doesn't know the war's over and 8 wks ago I started on LDN tbh. I didn't think it was doing anything and my RA is so bad my consultant wants me on medication (another trial) bc I have 20+ inflamed joints, and I'm really struggling.
Last week, I forgot to take my meds 1 night (LDN) and next day I was in pain so I do believe it's having an effect, however it's not putting me in remission. I am now so disheartened and don't know were to turn or what to do next I can't bear this pain. I'm waking through the night for pain killers it's just not stopping. I am so deflated and sick of pain.
I'm useless and can't do simple things, I can't plan ahead, my life is so limited I chose to stay in bc everything is a struggle.
I'm now trying ACV but it's soul destroying when nothing works. Any advice is welcomed. I'm struggling with depression now. Sorry this is a long thing.
Replied by Myway from Usa on 09/27/2015
Calming down the inflammation is key (as you know) so, here are my suggestions. My neighbor, who took methotrexate for a couple years, has RA but it is improving tremendously with the following regimen:1. Turmeric capsules 2X a day
2. Black seed oil (nigella sativa) 1 tsp 2x a day
3. Spraying magnesium oil on joints nightly and in morning
4. 1 Tablespoon of unrefined, organic, virgin coconut oil 2X a day (put it in food)
5. No sweets, no grains
6. Lugols iodine (I don't know the amount)
7. 4 mg astaxanthin, 2x a day
8. 8 glasses of filtered water a day
It has taken her about 3 months to get about 80% improvement with this regimen. She was taking boatloads of meds but was tired all the time. The meds were taking it's toll.
I hope this information gives you hope, Patsy....
:D MyWay
Replied by Anon from Usa on 09/27/2015
Perhaps the following would help but please google and read first before committing:D3/K deficiency isn't this a major problem in the UK? Did you take K with the d3? Jeff Bowles wrote a book on this and did his own study taking very high doses of D3 along with vitamin K. His book might be helpful to read or you could just read the reviews on Amazon.com.
Colostrum
Garlic would large doses of garlic perhaps in capsule form to rid the body of the bacteria that may cause RA?
Hydrogen Peroxide Food Grade
From Road Back Foundation Discussion Forum a reader suggests drinking small drops of HP in water or actually spraying food grade HP directly on the area of pain.
Magnesium
Iodine
Have you had a chance to read Overcoming Arthritis by Dr. Brownstein? Perhaps there might some nuggets of wisdom waiting for you to find that might be helpful.
WISHING YOU WELL!
Replied by Rsw from Oh on 09/27/2015
Patsy,I am so sorry you are suffering so terribly. Please know that LDN can take up to a year or more to achieve the full effect. Since it can be taken with anything EXCEPT opiate based drugs and it does seem to be working to a certain degree for you, perhaps you could continue taking it and use your pain meds at night if LDN is taken in the morning? (It can be taken at any time of day) Have you tried adjusting your dosage either up or down? Maybe add some Apres flex bosweilla? Some people take tramadol (sp?) for pain at a different time from the LDN with success.
Best wishes and I hope you find some relief soon.
Replied by Sp from New Jersey on 09/28/2015
Hi Patsy, I had full body arthritis. I went 100% gluten free, (checking all food labels and websites and celiac sites), for a different health problem. Going gluten free didn't do a thing for that problem, but it cleared up the full body arthritis. It was miraculous for me. It's hard to go gluten free, but it was so worth it for me.Replied by Alan from Hudson on 09/28/2015
Patsy, as a fellow RA sufferer I pray you find the blessed relief that has given me my life back. My RA had progressed to the point where most of life's physical needs hurt more than they were worth. I was near hopeless and imagining a life dependent on my wife and family at 60 yrs. old. After trying many things without success I tried Turmeric on the advice of an Indian grocer and the tide that had been rolling unchecked turned!! For me, 5 grams turmeric powder with 1 tbsp. walnut oil and 1/2 tsp. Rose hip seed powder in milk (I use cashew milk)...2x a day. I also eliminated most all wheat products. I buy the turmeric in 5lb. lots and it lasts quite a while...walnut oil is pricey but is high in Omega 3 and turmeric is best absorbed with fats and pepper. I still get stiff and sore when I rest but am able to handle the many physical demands of my farm. I hope this helps you find some relief.Replied by Susan from California on 09/28/2015
Try castor oil packs. I don't know if they cure the RA, but they are very soothing.Replied by Patsy from Liverpool on 09/30/2015
Thank you all so much for responding to my post there are some great snippets of advice from you all I do appreciate it.I will look into that book "Overcoming Arthritis" as for Tramadol, I can't take them they make me so dreadfully sick. I take the LDN at night before bed bc I read it's between 2am and 4am that our body produces endorphins. thanks tho :-)
I do have the magnesium spray and I have a foot soak with epsom salts which takes the pain away for a short while. I also take gluco/chond/msm magnesium, ptssum, gluten free I was dreading bc I know I will struggle and I weigh 7 and half stone my diet is very limited. Anyways will be taking up some of your advice for sure thank you all again.
Chevieman, thank you so much for that information it is invaluable and I will print this thread, what you say has restored some hope and as well as a few other things I'll go at the boron again bc that was the most disheartening I believed it would work and I did have a mega herx. It made me mad when it never did what it said on the label kinda thing.
I'll include vit K, some reishi mshrm, the probiotic deffo ordering these things right now so thankyou your posts have restored my faith and lifted the heavy cloud.
I WILL KEEP YOU UPDATED WITH ANY PROGRESS
xxx
I love this site it's awesome and I tell everyone who'll listen to check it out :-)
Replied by Erin from Bat Cave, North Carolina on 05/31/2016
Thank you, for all of the good information. This gives me hope.Replied by Meg from Tennessee on 07/06/2025
Hi Patsy, I know its 10 yrs later.. I wanted to see how you are getting along? Hopefully much better. I've had RA for 1 year now and it is progressing quickly I believe. Idk what to do. My pain is not as intense as you described; for that I am currently grateful. However it is progressing and it scares me and makes me depressed. Ive been trying supplements but Im still getting symptoms. I have 5mg prednisone I've taken a few times. I dont want to take pharmaceuticals, but I don't want to be crippled either. The side effects terrify me. Im praying that I will be given a path to recovery that is natural. I pray you are feeling better. I pray that all on this site are finding relief, and better health.Replied by Art from California on 07/06/2025
Hi Meg,Have you actually tried borax yet? If not, it may be worth considering as discussed here on EC :
https://www.earthclinic.com/remedies/borax.html
I have severe PA and it has kept me in remission for 17 years. If you haven't tried it yet, it is at least worthy of consideration or discussion with your doctor.
Keep us posted on your progress!
Art
