Jane (Burdenham, Somerset, Uk) on 06/16/2013
Replied by Seadragoness from Lakewood, Ca on 10/25/2013Thank you for your post. I was just diagnosed with polymyalgia yesterday 10-24-13 1 day after my 51st birthday! Im not sure about the rheumatica part yet but it looks that way. They are sending me to see a specialist. I do not want to take steroids. And since I am at the menopausal stage most likely I can replace the steroids more naturally or try what you suggested I have no idea what dhea is but I will research it. I guess I have alot of researching to do. Contact me anytime. Thanks
Replied by Ray Schilling, Md from Kelowna, Bc, Canada on 12/23/20137-keto DHEA is supporting the immune system. It is often very low in patients with autoimmune diseases including polymyalgia rheumatica. Your doctor could order DHEAS, which is the storage form of DHEA circulating in the blood. If it is low, I agree that 7-keto DHEA is the one to take, start with 25 mg and slowly increase to not more than 100 mg once per day depending on your symptoms. Also take higher doses of omega-3 fatty acids (molecularly distilled or pharmaceutical grade, the more expensive one, has 400 mg of EPA and 200 mg of DHA in one capsule). Take 3 capsules in the morning and three at night. Add to this 500 mg of curcumin per day. I am also very suspicious of an underlying wheat allergy (gliadin and gluten), which likely means you should refrain from sugar and wheat products. Read this blog I wrote:
Polymyalgia is another one of the inflammatory diseases like rheumatoid arthritis. Conventional medicine (before 2008 I belonged to that group) does not want to go there, but has not better answers than corticosteroids or methotrexate, both very strong and dangerous substances. Now I am retired and I can freely talk my mind; I am now interested in non-toxic methods of treatment as it is used by anti-aging medicine. One caveat: 10 to 15 % of patient with polymyalgia rheumatica develop giant cell arteritis in the temporal artery, which can lead to blindness. Your primary care physician can discuss this with you further.
Replied by Robert Seals from Santa Cruz, Ca on 05/09/2014I have found a ayurvedic med from India that completely relieves PMR symptoms it is called BYNA. The ingredients check out as herbal but it acts like a steroid, I am looking for a lab to check it out. This med could be a miracle, Robert
Replied by Rosemary from Cape Coral, FL on 09/07/2014did you find more info on the ayurvedic herbs from india? thank you
Replied by Linda from Jacksonville, Fl on 10/28/2014I was diagnosed with Polymyalgia Rheumatica in June and not wanting to take the normal 2 yrs of steroids I went looking for more natural remedies. I couldn't fine any ayarvedic specialist in the area so I tried Chinese herbalist. TaDa, she gave me a tea with many anti inflammatory properties and I noticed a difference within 24 hrs. I was pretty much immobile and week by week I gain more movement. My joints still hurt but I feel that with time this will be repaired also. I hope those of you with PMR will find this encouraging for your future.
Replied by Sandhya from Maui, Hawaii on 10/29/2014My friend has Polymyalgia Rheumatica and the statins are awful yet the pain was much better. Her immune system went way down. She tried Chinese herbs but the ones she received weren't working. Could you put down the herbal formula for everyone please? How much is you pain on a 1 to 10 scale with 1 being the lowest? Thank you for sharing.
Replied by Linda from Jacksonville, Fl on 01/28/2015I haven't looked on this feed for a few months. I have been seeing a Chinese Accupunturist (sp) that practices Chinese herbs and it has worked wonders on my PMR. After about 3 months on the tea she gave me I am pain free. Each week some symptom improved until I could move freely.I still have PMR but the symptoms are so mild.
Replied by Linda from Jacksonville, Fl on 01/29/2015Regarding Chinese Herbalist and your friend with Polymyalgia Rheumatica. She should not give up looking for good results. If she is not getting good results, she should go back to the herbalist and let her know it is not working or look for another in her area. I hope this helps
Replied by Mary from Arizona, US on 02/11/2015Linda from Florida, Did you ever get on the predizone? I think I want to try the chinese therapist and see what that does since you had such great results.
Replied by Justine from Elburn, Illinois on 04/23/2015Hi all ,
I am in the process of blood work and waiting for the next series follow up, Dr. is pretty sure it's PMR; like all of you, I am looking for holistic way to treat this, I am not happy that the cure all is prednisone.
Replied by Sue from Co on 05/22/2015November 2014 I had breast cancer surgery. Now am on a hormone inhibitor to reduce the estrogen in my system as the cancer was estrogen receptive. I cannot use any OTC that may contain estrogen or may increase its production. Now I am also diagnosed with PMR, so what herbal remedies should I use to relieve the pain I'm experiencing?
Replied by Helen from Uk on 07/01/2015Hello all
I was just doing some research for a good freind who has been diagnosed Polymyalgia to see if I could find any alternative meds - I always look in that direction myself.
Word of caution however on the Chinese Herbal medicine - I tried it for a kidney problem I have - it was a few years ago now - it tasted vile but it did make me feel much better so I didn't mind. What I didn't know is that one of the herbs was a natural steroid and that was what was making me feel great but it was also covering up what turned into a very nasty kidney infection so please be careful.
Replied by Susan Dominowski from Usa on 03/04/2016I just read your comments about BYNA, have you discovered anything more about this. I have PMR and have tried just about everything.
Replied by Jocelyn from Toronto on 04/03/2016WARNING: I do not advise my patients to go anywhere near DHEA as it's contraindicated with anyone with a history of cancer. DHEA can stimulate testosterone and estrogen hormones and can excite remission cancers.
Lots of supplements- but a good multivitamin 2x/day is a good start (NOT from a drug store go to a health food store) a 2:1 mag/cal - 500mg mag/500mg calcium combo is great at helping the muscles relax, and take them 6hrs apart. It takes your body 6hrs to metabolize these nutrients; more is not better.
Hope this helps.
Jocelyn - Nutritionist
Replied by Gaye from Australia on 06/27/2017Hi Robert Seals,
Did you find anymore out about BYNA?
Replied by Sylvia from Home on 06/29/2017Thank you for sharing about the tea for PMR. What is the name of the tea?
Replied by Dia from Usa on 07/19/2018This would be a lot more encouraging and informative if Linda would have shared what the tea was made of / a name for it, etc. Without identifying it the info is almost useless.
Replied by Suzi B from Minneapolis, Mn on 07/24/2018Robert, did you find anything else out about BNYA? I was diagnosed w/PMR a month ago and so far, acupuncture works best, but still don't feel that great. Looking for any new information on how to relive the pain and inflammation.
Replied by Henry from Toronto on 08/09/2022Hi Dia and everyone interested in the herbal treatment mentioned above. I am an acupuncturist and herbalist. I am treating a patient with PMR now. The way Chinese herbal formulas work is that it's different for everyone, even if the disease is the same. An East Asian practitioner will look at why this disease happened for you specifically and what other symptoms beyond the PMR may be present and contributing to the lack of healing. Chinese herbs can be powerful and, if used improperly, have serious side effects. Always consult a trained professional.
Replied by Magnolia16 from VA on 08/10/2022How do you find a trained specialist in this area? Is there a clearing house of names or anything???