| 4 star (1) | 100% |
Priscilla (Birmingham, Al) on 02/16/2016: 
I'm a 55 year old woman, with Fibromyalgia, Chronic Fatigue Syndrome; also multiple injuries (3 ruptures discs; ) history of endometriosis, etc. My medical history was long and extensive-including 8 surgeries; a visit to Mayo clinic, etc.
Eventually, I added an FMS specialist to my pain management physician, and PT. Interestingly enough, he found the cause of my CFS, FMS, etc. I have a genetic disease, Ehler's Danlos Disease, type III. This explained all my diagnoses. Then my rheumatologist suggested a clinical trial of Famciclovir 250 mg., three times a day.
By the way, my history includes Epstein Barr disease, several years before my symptoms started. The Famciclovir is supposed to bolster the immune system.
I was quite skeptical, but tried it. Three years late, I'm taking mostly Advil, instead of daily Rx pain meds. I use those only occasionally, now. Supplements helping include: Magnesium Malate; D3; and D-Ribose.
I am able to exercise now-without hat automatically throwing me into a flare. I haven't had a real flare in three years. Sleep better, less brain fog, also.
So, my comfort level is much better, and disability less. There is no genetic cure for EDS III at this time, but the : clinical trial; Advil (joint and back pain, ) and neuropathy meds. (Lyrics;) plus gentle PT have helped. My family has been supportive, as well as friends as church.
Overall, I'm much better compared to ten years ago. My FMS Rheumatologist (and the research) tell me that my disease is sometimes the cause of FMS and or CFS. Having the correct diagnosis is critical in determining treatment.
General information about EDSIII is available online. A Rheumatologist who specializes in FMS can make the diagnosis. He/she can then determine treatment, if you have it.
So, if there is a question that EDSIII might be the primary cause of CFS or FMS, I would strongly recommend seeing one. My life has improved a lot since I started seeing the rheumatologist, and continues to improve.
