Ruralady4 (Illinois) on 04/28/2025
I just happen to notice an article put out by the National Library of Medicine. Now what the NLM does is put out articles from all over the world about new treatments and studies that are being done and thank God that they do, otherwise we would never know about them at all. Big Pharma has complete control over everything being done here in America so we have no idea of what's being done anywhere else. NLM doesn't endorse or approve of any of the studies or treatments, they just report them.
This treatment/study was done in Toyoko, Japan at one of their Fibromyalgia Clinics
The treatment is called Epipharyngeal Abrasive Therapy or EAT
The title of the article is called "A Case Report of Chronic Epipharyngitis with Chronic Fatigue Treated with Epipharyngeal Abrasive Therapy (EAT)
CASE PRESENTATION
A 42y/o woman with chronic fatigue of unknown origin, which began to interfere with her daily life and employment about six months ago, visited an outpatient clinic specializing in ME/CFS aka fibromyalgia in Tokyo in February 2015, with chronic fatigue as the main complaint. At the time of her visit, she faced difficulty going out and spent more than 50% of the day lying in bed at home. She was diagnosed with ME/CFS aka fibromyalgia according to the diagnostic criteria for CFS by the Japan Agency for Medical Research and Development (AMED).
To make a long story much shorter they first treated her with nutritional therapy thinking this could be a gut biodome problem. They used high concentration of Vit C intravenously, DHEA, oral Magnesium supplements with no improvement. So they knew the treatment wouldn't be in the gut.
The patient then underwent an nasal endoscopy using band-limited light endoscopy system which revealed redness and swelling of the epipharyngeal mucosa from the posterior wall of the nasopharynx to the canal and lateral walls, this is the area where viruses hide and replicate esp Epstein Barr.
Epstein Barr Virus is responsible for many very serious health conditions and cancers and every fibromyalgia patient has tested positive for this virus unless their fibromyalgia has been due to trauma.
The patient was treated with a 6 inch Q tip soaked in 1% Zinc Chloride using EAT, each nostril. She came to the clinic 2x/weekly for 6 months before returning to work. EAT was done on her 54 times. During the past seven years since her treatment when she starts to feel unwell, she returns to the clinic for another 52 EATS.
I was able to find the Zinc Chloride an Amazon under "Zinc Complex" and it's the only one that has zinc sulfate, Chloride, and magnesium in it, all three is what's needed.
I tried it for the first time last night not expecting too much at all. Problem was I did it at midnight not realizing I would be blowing my nose until 3am so treat yourself earlier. I woke up and felt different. When you wake up in the morning your brain wakes up your body. Anyone with fibromyalgia your brain goes in overdrive immediately and your muscles go into microspasms, I didn't feel that for the first time in 7 years and I didn't feel the fatigue that I usually feel. I'm getting more done today and that's worth mentioning.
Now if you decide to do EAT please do not look up the vid on youtube under "Neal". He's doing it wrong and damaging his nasal tissues, PLEASE don't follow his example, I nearly fell out of my chair. As a retired healthcare provider I CANNOT recommend his vid. There are other vids that show you how to do it. You have to hyperextend your neck approx 45 degrees and insert the swab all the way to the back. Then move the swab gently against the back surfaces rolling the swab so the zinc chloride gets distributed well. Do both sides and wait, don't panic but you will feel different and your nose will start to run. In the medical field we call that rhinorhea.
I hope this helps anyone with this dreaded condition, there is hope but remember it's not a cure but excellent treatment.
1616 (France) on 10/16/2023
I developed fibro after a flu vaccination in France (Influvac Tetra), I'm still not fully cured but I shared what I tried and worked :
Methylene blue cure for one week (only once is not enough, this raise your oxygen in the blood, used only once it will raise only a little bit your blood oxygen) : https://www.endalldisease.com/methylene-blue-miracle-antidote-for-poisonings-and-overdoses/, try to make a cure every few years because with times with all the shit we eat and poison everywhere the blood lose the ability to carry oxygen again
Vitamin C cure for one week too (help with fatigue) -> you can take vitamin B complex powder, I purchased from aliexpress vitamin C powder mixed with vitamin B powder
Citric Acid high dose (break kidney stones, but also Oxalic crystal inside your cell, oxalic crystal is the cause of headaches, microbial infestation etc), take one tablespoon of citric acid for 5 days you will notice good change, take for longer if not enough
Low Dose Naltrexone (very helpful for gas, my bone started to grow back again, no need to use again and again only a cure for few days will give you benefits forever, bought it on cosmicnootropic.com, you can use a credit card)
Sodium bicarbonate : raise the body pH, help with fatigue and many things
Sodium Carbonate (or also called washing soda) : please view here : https://ted.earthclinic.com/cures/asthenia.html, it's like sodium bicarbonate but more powerful, bicarbonate and sodium carbonate can't be substituted for each others, you need to take both
DMSO (one tablespoon) : I don't remember what it did to me but It gave me good effect, you need to take one 3 teaspoon with orange juice, it's also a remedy found on earthclinic
Molecular hydrogen H2 supplement : good against constant constipation, that I was not aware of (it consist of magnesium and malic acid, you need to put in water before using it)
Activated charcoal powder
Zeolite powder (detox many thing but heavy metal mainly) and also nano zeolite (nano zeolite will detox your cell make you start seeing angel number like 12:21 or 11:11 etc) here where I purchased mine : https://glycan-shop.com/product/nano-zeolite-50ml/, when taking LSD you start to have synchronicity (only after one time) I think It is worth saying
Humic and fulvic acid : https://apoticaria.com/products/sonnenmoor-trinkmoor-1000ml
Dr clark liver cleanse : It remove stones inside your liver, I have 27 and I had a ton removed this way, please look here : https://www.youtube.com/watch?v=xXTUVDRkZCA, basically you don't need to follow the whole procedure, what you need to do is take magnesium sulfate and taking a mix of olive oil and pamplemouse (filtered, just the juice nothing else), too complicated to explain here, please do your research
Dr clark kidney cleanse : a more easy and powerful of doing it, is purchasing a juice extractor and drink a GOOD amount of juice of : parsley, lemon and coriander : https://www.youtube.com/watch?v=ak4dqaCh7F8, I can't find the video I put on favorite with one old female and one old male doing their juices for the kidney cleanse but it basically the same shit, the juice extractor can be used for many others "cleanse" like intestine cleanse like I seen on earthclinic someone had very good result with the juice extractor, try to only drink juice for few week someone claimed it can cure many illness
Bentonite clay powder
Full spectrum enzymes supplement : it helped me with body flexibility but also I felt better like I had less "shit" inside my body, very important to take I made the mistake to not take that for years because I thought there was enzymes in food like meat and vegetable and also I though my body was able to make enzyme but that not the case
Mitochondria supplement : try to buy a supplement with full spectrum supplements for the mitochondria, it helped me with fatigue, I bought mine on biotikon.fr it had acétyl-L-carnitine HCL, Coq10, mumijo Shilajit, phosphatidylsérine etc
Ozone water : drink water ozonated with an ozone generator https://www.youtube.com/watch?v=apuPdhj3zR0, less flatulence after using drinking ozonated water
Bone broth powder : also good again fatigue, try it absolutly !!!
Ted's Famous Alkalizing Remedies (VERY IMPORTANT) : find it explained here : https://www.earthclinic.com/remedies/alkalizing_formulas.html, you need to mix apple cider vinegar with baking soda (bicarbonate) and drink it, it will give you sodium acetate that will alkanize your cells and after that the other remedy is mixing bicarbonate with citric acid, it will give you sodium citrate also important for cell alkanization
Thuya mother tincture : very helpful too !
Apple cider vinegar : take one soupspoon with water the morning and before going to sleep for 3 weeks for example : it will alkanize lots of thing in your body, Apple cider vinegar is a remedy for many illness as you can see from earthclinic ADHD, allergies, weight loss etc https://www.earthclinic.com/remedies/acvinegar.html
Pure gum turpentine : very powerful way to remove a tons of parasite, more powerful than dr clark parasite cleanse or regular anti parasitic remedies, you can see many people testimonies of using turpentine : https://growyouthful.com/remedy/gum-turpentine.php, I recommend to take a cure of turpentine for 7 days one teaspoon every day is enough because this shit is very powerful, you need to make a cure because if you don't as explained by Dr clark the parasite come back because they make eggs (you don't need to see the parasites to have parasites, most parasite the human have can't be viewed on naked eyes)
Try also take an alkanizing powder, worth noting is Alpha Lipoic Acid replete all your antioxidant in your body, I purchased It in powder form, worth noting is also going to the sea (also try to drink sea water) will cure you of many illness because it contain bicarbonate, lots of mineral and negative ions and never ever take any vaccine it only fuck with your health even if you don't notice it, this is the big trap of this world even after all of those supplements I'm still sick, this is why with tap water (many documentaries on youtube about tap water containing pesticides, medication, aluminium etc) many people have ADHD, obesity or cancer etc this why now after this vaccine I have obesity but before I didn't had obesity and nobody in this world can cure this shit, the level of medicine today is near zero honestly I have seen naturopaths and doctors and nobody is able to help with anything (even if naturopaths helped more than doctors they are still of no help)
Others good supplements even if not worth mentioning above because less powerful is : black cumin oil capsules, mushrooms complex powder, Sulforaphane (repair damaged tissue/organ) and join care and stem cell supplements on iHerb
Hydergine and piracetam (recommended by Ted on one of his post here) also helped me a little with flatulence and I'm faster when I move or do something, I don't know if it will be approved but I think methanphetamine (for weight loss) might be helpfull maybe also others drugs (just a few grams)
https://psmag.com/social-justice/the-many-surprising-health-benefits-of-meth
I'm pretty sure I have forgotten some supplements that helped me very much but I will post them after If I remember
I recommend you to purchased all of this from amazon because it simpler, and you receive all your items in a single box or a few, this is very important when you are sick because everything become more complicated and painful, also purchase a VPN (I use NordVPN on Windows 7) to not be harassed by "them" when you look for conspiracy health website (they destroyed my life even more)
SusanM (OH) on 11/14/2022
Fibromyalgia is a muscular problem and Protein Whey repairs muscles. A friend of mine told me to try it. I was totally shocked that it worked. I no longer felt the rain coming for the first time in 8 years. I no longer had any pain. After drinking it for 2 years they changed the product I was drinking. My pain returned. I called them in tears asking for more of the old supply, which they didn't have. I begged the lady to tell me the changes. She couldn't help but feel sorry for me and she sent me a list of all the changes so I could calculate what I needed to create the same thing I was drinking. After two weeks I figured out what I needed to do. I had to ADD more Amino Acids...
Once I did that my pain went away again permanently. So I was able to ween myself down to drinking it once every two weeks to keep the pain away. But that took a year to get to that point. I hope this helps you and anyone else reading this searching for relief.
Annonymous (Vancouver, Wa) on 08/09/2021
Bi Thiamine takes away about 50% of fibro pain also, so I take 3 100mg pills & a multi-vitamin along with the cherry extract once per day.
Try it. I hope it helps you.
Ruralady (Illinois) on 05/08/2021
Fibromyalgia and Some Relief! Art (California) on 07/10/2020
Yes, melatonin has shown in multiple studies that it can be quite useful in some people who have the chronic and painful disease, Fibromyalgia!
I was noticing that in the EC section listing remedies for Fibromyalgia that melatonin is not listed, but it should be because studies show that melatonin can ameliorate depression, anxiety and pain while lowering inflammatory and oxidative stress levels in people with Fibromyalgia! It also improved quality of life test scoring as well as mood.
According to these studies, melatonin is shown to do this at a relatively low dose of just 3 to 15 milligrams per evening, but it leaves one wondering if higher dosing might do even more?Melatonin has a fairly good safety profile and considering the limited benefit and considerable potential for side effects with standard Fibromyalgia drugs like steroids and antidepressants which come with the potential for a grocery list of potential for side effects, melatonin seems worth discussing with your doctor to find out if it is safe for you in your particular circumstances and if it will be compatible with all meds that you are currently taking.
In this first study, they used melatonin at 3,6,9,12 and 15 mg per evening and best benefit was seen at 9,12 and 15 mg in terms of a significant reduction in pain, anxiety and morning cortisol levels. Here is a link to the abstract, but the full study is a pay per view and I had to look at the study to see some of the particulars that were not reported in the abstract:
https://pubmed.ncbi.nlm.nih.gov/30415563/
This next abstract is more of a meta analysis that confers benefit from melatonin supplementation for Fibromyalgia patients:
Melatonin in the Treatment of Fibromyalgia Symptoms: A Systematic Review - PubMed
This last study shows melatonin to be more effective at pain relief than Amitriptyline.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4119581/
Art
Yogaman (Grant, Mi) on 08/15/2018
I have compassion for all those who are going through pain and am here to lend some helpful information that I learned on my journey of health.
A little background, I developed pain in all parts of my body that came on strong and for no reason in my early 20's. I would rest and eat healthier but it would take weeks to go away and then return under normal circumstances. I saw a doctor and they offered no help other than pain killers. So, I started doing yoga and dietary changes and that helped some. I started taking Epsom salt baths and that helped more. But I still had pain and fatigue and so I saw a multitude of doctors, chiropractic, allopathic, naturopathic, holistic, TCM and others. I even went to live in a Yoga ashram for 2 years and ate most every type of diet including vegan, vegetarian, paleo, and other food combinations. I have tried most every remedy here and can say they all helped me in some way, but I still had pain. So, I have learned how to heal myself with the following things, but the pain comes back when I don't live a healthy balanced life.
Here are the common ones that helped me and then later some that are not mentioned here:
First, I eat mostly fresh organic foods and exclude toxic foods. It also helps when I am sleeping well, laughing often and letting go of the past. Exercise is mandatory for my health as is drinking lots of pure water. After those here is what helped me most.
1) Epsom salt bath with essential oils and candles. This will help manage the pain more than most anything else. The body is full of toxins and needs to be cleaned in salt water. Best taken alone in clean, chemical free water with 2-4 cups of salt. Use Epsom salts, baking soda, sea salt and others. Add a few drops of 1-3 different essential oils, use your personal favorites, I like bergamot and cedar. Place at least 4 candles around the tub with 1-2 at each corner, I use 8 of the tall glass church candles and don't leave this part out!!! Do 2-4 times a week and spend at least a half hour in the tub, but 1-2 hours is better. Listening to music and practice deep breathing.
2) Talking a walk in Nature to clam the mind and rebalance the stress response. Enjoying natural beauty is the key to any health issue and often left out. Ground with bare feet is awesome and though it may not fee like much at first, it will increase in benefit over time.
3) Trying only one new remedy at a time. Only introduce one thing per week or even better per month and test to see if it noticeably changes your health. This is very important and must be followed to know what works and what does not. Otherwise it will all be confusing and moat likely never be clear what helps and what hurts. This was recommended by a wise old doctor and totally helped me to take control of my own health journey.
Good luck and keep going, it will get better for you soon.
Hazel (North Ayrshire) on 07/25/2018
Christina (Texas) on 06/15/2018
Art (California ) on 02/03/2018
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J Integr Med. 2015 Sep;13(5):306-13. doi: 10.1016/S2095-4964(15)60195-9.
Effects of transdermal magnesium chloride on quality of life for patients with fibromyalgia: a feasibility study.
Engen DJ1, McAllister SJ2, Whipple MO2, Cha SS3, Dion LJ2, Vincent A2, Bauer BA2, Wahner-Roedler DL4.
BACKGROUND:
Fibromyalgia is a syndrome characterized by chronic pain, fatigue, depression, and sleep disturbances. Its primary cause is unclear. Several studies have reported decreased intracellular magnesium levels in patients with fibromyalgia and have found negative correlation between magnesium levels and fibromyalgia symptoms.
OBJECTIVE:
To gather preliminary data on whether transdermal magnesium can improve quality of life for women who have fibromyalgia.
DESIGN, SETTING, PARTICIPANTS AND INTERVENTIONS:
This is a patient questionnaires and survey in a fibromyalgia clinic at a tertiary medical center. Forty female patients with the diagnosis of fibromyalgia were enrolled. Each participant was provided a spray bottle containing a transdermal magnesium chloride solution and asked to apply 4 sprays per limb twice daily for 4 weeks. Participants were asked to complete the Revised Fibromyalgia Impact Questionnaire, SF-36v2 Health Survey, and a quality-of-life analog scale at baseline, week 2, and week 4.
MAIN OUTCOME MEASURE:
Questionnaire and survey scores, evaluated through intent-to-treat and per-protocol analyses.
RESULTS:
Twenty-four patients completed the study (mean [SD] age, 57.2 [7.6] years; white, 95%; mean body mass index, 31.3 kg/m2). With intention-to-treat analysis,
Revised Fibromyalgia Impact Questionnaire subscale and total scores were significantly improved at week 2 and week 4 (total score, P=0.001). Per-protocol analysis results were similar: all subscales of the Revised Fibromyalgia Impact Questionnaire were significantly improved at week 2 and week 4 (total score, P=0.001).
CONCLUSION:
This pilot study suggests that transdermal magnesium chloride applied on upper and lower limbs may be beneficial to patients with fibromyalgia.
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My brother has fibromyalgia so I am making him a mix similar to what I made my friend from high school days for her post-stroke nerve pain. I will post any worthwhile results here after my brother has tried it for awhile. I'm making his mix with vodka, magnesium flakes and msm with sweet orange essential oil.
Art
Acrane (Ms) on 05/09/2017
Better But With Side Effects
I have bad thigh muscle pain, occasional calf pain and sometimes pain in the muscles around my shoulder. Pain medication does not help, Lyrica does no good. Pain rub Voltaren does help some.
Since starting the larger amount of Borax I have severe pain in legs and shoulder. One day I woke up in the morning and had NO pain for about the first 30 minutes after awakening. It freaked me out. I couldn't believe it!
I have gone back to a smaller dosage of Borax Concentrate and worked back up to 6 tsp a day. Pain is not as bad. I think I was having the Herxheimer reaction. (large die off). For the first time in years I have a little hope.
Marcia (Utah) on 09/12/2016
I started taking 1/2 tsp of DMSO every night. It's the fourth day now and most of my stiffness and sore joints have disappeared. I started taking 1 oregano capsule every day, too, plus a capsule of garlic in the afternoon. But I have done those before with no results. The DMSO is amazing. I was getting so stiff I couldn't bend at the knee. My bursistis in my left arm is improving, too.
Wayne (Andrews, Indiana) on 08/21/2016
If You Have Fibromyalgia, Get Tested for H. Pylori Debra (Sydney, Australia) on 07/17/2016
A few months ago, I listened to Dr Amy Yasko talk on a stomach bug called Helicobacter Pylori. She went into the hidden symptoms, namely shut down Liver detox and Thyroid so for the first time in all my research, I considered this talk. I had no other symptoms but I went to get tested. My Doctor refused, saying I had no symptoms and it wasn't necessary. Eventually, after a lot of persistence she agreed to do the test to rule it out. Two days later I was called back in. My Doctor was quite upset and extremely apologetic. My levels of Urease were so high, it implied I had had this bug since childhood, which would be true as it is inclined to make one Anaemic and I had suffered that at age 9 and had to have injections. I am 55 now and this bug is classified as a class 1 carcinogen. I managed to reduce some of it with Mastic Gum but eventually had to have the Triple Therapy. The eradication left me with terrible discomfort in the gut but the Fibro symptoms changed.
During this time, I learnt about Inclined Bed Therapy and I raised the top end of my bed 6 inches. All the chronic inflammation I'd had moved down to the gut, hips and legs and I got a flare up of Fibro there which took me 2 weeks to recognize as I was so used to having it in my upper body and I never got it there. I managed to clear it by adding a Chinese Herbal called Thunder God Vine which is a powerful anti-inflammatory. I started this because it showed it killed 60 Cancerous cell lines and I was worried about Gastric Cancer from the Pylori. The next thing I knew, all inflammation in my body went down, my weight dropped to my ideal weight, and no matter what I ate, stayed there. Between the Inclined Bed Therapy (inclinedbedtherapy.com) and the Thunder God Vine, and getting rid of the H.Pylori, I am doing so much better. The Electro Hypersensitivity (EHS) changed too. I used to have to move at least 50 metres away from mobile phones to stop feeling them. Now it takes so much longer for those frequencies to cause inflammation, I get bad headaches from them rather than body inflammation but it all stops when I move out of range, and that never happened before. The Thunder God Vine (TGV) is also a powerful anti-viral and works strongly against Epstein Barr Virus and Herpes, both of which I have. It also works against Lyme Disease and all Autoimmune disorders. TGV is an immunosuppressant so is capable of recalibrating an overactive immune system. My brother in law is trying it now for MS as he's just lost the use of his legs.
Anyway I wanted to write this post and encourage anyone who suffers from Fibromyalgia to get tested for H.Pylori, even if you have no symptoms. If you've ever had Glandular Fever or have EBV antibodies in your blood works, try the Thunder God Vine. Its the only thing ever found to actually cure EBV and this virus is much worse than most would expect. It has 6 stages but only shows up in bloods in stage 2. It releases spirochetes just like Lyme does and it shuts down Thyroid and Liver function, just as the H.Pylori does.
I strongly suggest anyone with Fibromyalgia use the Inclined Bed Therapy. If you check out the website, you'll see its curing people of absolutely everything because it allows the Liver to continue detoxing 24 hours a day.
Priscilla (Birmingham, Al) on 02/16/2016
I'm a 55 year old woman, with Fibromyalgia, Chronic Fatigue Syndrome; also multiple injuries (3 ruptures discs; ) history of endometriosis, etc. My medical history was long and extensive-including 8 surgeries; a visit to Mayo clinic, etc.
Eventually, I added an FMS specialist to my pain management physician, and PT. Interestingly enough, he found the cause of my CFS, FMS, etc. I have a genetic disease, Ehler's Danlos Disease, type III. This explained all my diagnoses. Then my rheumatologist suggested a clinical trial of Famciclovir 250 mg., three times a day.
By the way, my history includes Epstein Barr disease, several years before my symptoms started. The Famciclovir is supposed to bolster the immune system.
I was quite skeptical, but tried it. Three years late, I'm taking mostly Advil, instead of daily Rx pain meds. I use those only occasionally, now. Supplements helping include: Magnesium Malate; D3; and D-Ribose.
I am able to exercise now-without hat automatically throwing me into a flare. I haven't had a real flare in three years. Sleep better, less brain fog, also.
So, my comfort level is much better, and disability less. There is no genetic cure for EDS III at this time, but the : clinical trial; Advil (joint and back pain, ) and neuropathy meds. (Lyrics;) plus gentle PT have helped. My family has been supportive, as well as friends as church.
Overall, I'm much better compared to ten years ago. My FMS Rheumatologist (and the research) tell me that my disease is sometimes the cause of FMS and or CFS. Having the correct diagnosis is critical in determining treatment.
General information about EDSIII is available online. A Rheumatologist who specializes in FMS can make the diagnosis. He/she can then determine treatment, if you have it.
So, if there is a question that EDSIII might be the primary cause of CFS or FMS, I would strongly recommend seeing one. My life has improved a lot since I started seeing the rheumatologist, and continues to improve.
Aurora (New Mexico, US) on 12/05/2014
Linda (Ohio, US) on 07/07/2014
Then my upper arms hurt horribly. I could not pick up even a coffee cup due to the pain. Then I could not lower myself onto the toilet without screaming in pain or get up either. Taking a bath was a nightmare as well getting in and out of the tub. I went on like this for a good 6 months getting worse every day. I did try everything under the sun for relief. Even using capsacian alcohol rub mixed with DMSO, and other things heated up and used in a very hot compress on the bad areas of my body. That did not help. At the same time my adult son had a horrible pain in his right groin area including his testes. This pain comes and goes for him.
I was able to consult with a former scientist in Russia (friend of son) who has this same problem. He insisted it was an introduced bacterial infection which would make sense as the affected areas would move around my body. The only way I can expel this bacteria is to cough up very, very thick mucus which reminds me of rubber peanuts.
After much trial and error I have hit upon a regieme of home medications that have worked for me. I take MSM capsules 1,000MG two at a time several times a day. I also have been using oil of oregano drops in chocolate milk (only thing I can stand to cut the oregano burn and taste) 2 times a day. I started with 2 drops and then worked up to 5 or 6 drops per cup of milk. I know when I use too many drops as my whole system feels like it's onfire - then I drop back to 2 or 3 drops and feel okay.
At night I feel I can run a marathon or do stuff that I can not do in the daytime. I got so bad I could NOT even roll over in bed as it hurt so much!!! Staying in bed is not the answer either. I walk to the mailbox when I first get up and that seems to help. My lower back hurts when I get up as it seems the bacteria has settled there overnight. My upper thighs hurt horribly on the outside area when I walk most times. My chest hurts horribly when I cough or sneeze as I must in the morning to cough out the goo. I go to bed feeling fine some nights and wake up a royal mess the next day having done nothing out of the ordinary. I can't even walk around most stores to shop as I hurt horribly. Getting up into my old Jeep is an event as well as I must hoist myself up by the steering wheel. Going up and down stairs is mostly a very painful experience.
About 6 months ago my son's inner thigh hurt so much to walk he had to use a cane and he's only 30 years old!! He can't take MSM as he literally can't get to sleep for several days after taking one pill!! Fortunately for me I can take all I want of this stuff and it does not bother me with any ill side effects.
His inner thigh groin pain comes and goes. My "bacteria" comes and goes. Some days I'm a royal mess and then others I can walk up and down stairs and walk okay to some extent with no problems. I think the connection to fluoride is not applicable to me or my son as we were not exposed to any water source that had this in it. Where I live is well water. We also use nonfluoride toothpaste so I am really stumped where we "got" this from. We were both ill with the flu right after my knees in bed incident though and my Russian friend thinks the bacteria entered my body and mutated then from the flu germs. My son had his groin problem after we were ill with the flu. My bacteria problem got horribly worse as well after we had the flu. I am now 67 and my son is 31. We have severe bouts of horrible lethargy with no enthusiasm to do much of anything some days.
I did try ACV and borax and baking soda and all that did to me was make me ill. When my body is ridding itself of the bacteria I get horrible bouts of indigestion to the point where anything including plain water gives me indigestion!!!
I refuse to see a doctor as my Russian friend said when he went to the doctors all they did was pump him full of extra strength antibiotics which worked until he stopped taking them as he took too many of them. He can't take MSM either. They insisted he had fibro and he insisted he had a bacterial infection. I don't have Medicare and don't want it just to have the doctors perform all sorts of tests on me to tell me they "think" I have fibro.
I'm doing fine on the MSM and oil of oregano drops every day and will continue with that regieme until I find something else to take.
27julieh (Oc, California) on 10/01/2013
Prioris (Fort Pierce, Fl, Usa) on 05/31/2013
I had Fibromyalgia for over 30 years with my CFIDS/ME. About 15 years ago, I was researching and came across researchers using Minocycline for Lupus. I was also looking at the Garth Nicholson protocol.
I decided to try Minocin which is the brand name for generic minocycline. Almost within 2 days, my fibromylagia symptoms started to melted away. I got some more minocycline prescriptions but my progress reversed.
I decided to go back to minocin and my progress continued. It seems many minocyclines batches are of bad quality. After a while I didn't need it anymore. Fifteen years later and my fibromyalgia is controlled and I sleep well so I still don't need the minocin anymore.
This is my recommendation. You could bypass a doctor presciption by buying and test the antibiotic minocycline from a pet supply place. This is low cost route also. Take bromelaine with it. This is very important. Bromelain increases the effectiveness of antibiotics so may be strong enough to work or give you a good enough indication of it's effectiveness. It also will prevent resistance since it removes any protective sheath from bacteria. If that doesn't work, you could optionally ask a doctor for a test prescription just to see if it works.
I tolerate that antibiotic very well so never run into any problems. I took it for two years to test it against CFIDS/ME. It is suppose to cross the blood brain barrier the best. You will likely know pretty quickly also. Always take Bromelaine with antibiotics. There may be a more natural antibiotic out there so this could be starting point.
Forget about what those mainstream doctors say. The cause of Fibromyalgia is some type of infection. Claiming that it is a defect in some muscles is absurd.
Jasmine (Perth, Wa, Australia) on 05/08/2013
I slowly developed some of the symptoms of fibromyalgia (IBS, dermatitis, allodynia, aneamia, low immunity, PMS and irregular, painful menses, etc. ) throughout my childhood until I became very ill at the age of 16, also developing chronic muscular and joint pain, extreme fatigue, brain fog, weakness and a host of other symptoms. I now believe the onset was gradual due to a slowly worsening condition of my gut, partially thanks to the frequent use of antibiotics (as I was often very sick as a child) without probiotics (my parents gave me Yakult to drink for probiotics, unaware of the fact that I was lactose-intolerant and never drank the stuff because it made me feel sick).
Over the next 2 years, I slowly began figuring out which treatments help me to manage the condition: occupational therapy, physiotherapy, not eating foods I was intolerant to, using the right skincare products, gentle exercise and mindfulness meditation. I highly recommend all these treatments. I experimented with fluoride toothpaste and fluoride-free toothpaste for a few months and decided that fluoride definitely brought on intense flare-ups. I now use organic toothpaste, which is expensive but worth it. A cheaper alternative is one of the Sensodyne toothpastes - the one which uses strontium chloride instead of fluoride. I noticed no negative effects from using that. I grew up drinking rain water but whenever I drink tap water I have to filter it or it makes me sick. As far as skincare products go, I recommend MooGoo or ecopure.
BUT in the last couple months, I have discovered the most helpful remedy yet: the Leaky Gut Cure Program by Karen Brimeyer. She proposes that leaky gut can cause fibromyalgia, and that by following her program leaky gut can be healed. (This is a similar theory and treatment to GAPS, but it is a lot cheaper to buy Karen's program than to follow the GAPS program. )The program involves eating certain foods, avoiding certain foods, reducing toxins in your household products and clothing, and following healthy lifestyle practices, such as observing appropriate sleep hygiene and many other things. It also involves supporting your adrenal glands, ridding your body of pathogens and healing the lining of the gut through supplementation. I had read and tried many other similar programs in naturopath books, which only seemed to make me sicker. But this program makes me feel better, not worse, and I can assure you that it is perfectly nutritionally balanced. My pain has decreased (I no longer take pain medications), I can think more clearly, I am sleeping much more soundly and feel refreshed when I awake (rather than stiff, sore and exhausted), I have been feeling a lot more energetic and people are saying that I look really well. And I tell them that it is because I feel really well! I have never felt so alive in all my life!
I cannot give exact details of the program here due to copyright issues, but I will tell you that Karen Brimeyer's program is surprisingly cheap and can be found at www.leakygutcure.com. Anyone with fibromyalgia, chronic fatigue or IBS should google GAPS to see if they think that they suffer from it - and if they think it likely that they do, they should try the leaky gut cure for at least a week. Even if it can not cure everyone with FMS, I am sure that it can help many people with it - so it is definitely worth a try!
I now feel confident that I am healthy enough to continue with my university degree and work a part-time job too!
I hope that at least one person reads my post, tries the leaky gut cure and becomes healthy and energetic!
