Christopher (Wisconsin) on 01/20/2016

In the ER, she pleaded with the Dr to do an MRI scan, which she was told was not indicated. (34 years old, profound headaches, accompanied by confusion and fatigue is a pretty good indication for an MRI scan) And I was sent home with a diagnosis of Atypical Migraine. The following morning, my wife called my primary care doctor and asked him to order an MRI scan, to which he agreed. And was done the next day. When the results of the MRI were called to my doctor, he in turn called my wife and told her that the MRI revealed multiple lesions in my brain, scattered throughout the white and grey matter, and he referred me to a neurologist. When we saw the Neurologist, he told use he thought it was Atypical Multiple Sclerosis. We decided to seek a second opinion, and we called the University of Wisconsin, Madison, and made an appointment with an MS specialist. When we went there and I was evaluated by the specialist, to which we were told “I dont think it is MS, though I am unsure what is going on” we went home to follow up in 2 weeks for additional testing and further evaluation. Over the next few days, I took my Lipitor as usual, and I continued to worsen with headaches, confusion, and profound lethargy.

My wife called the MS Specialist at UW Clinics, and he recommended I be evaluated as soon as possible. My wife and I dropped our 2 year old son off at my parents and we headed to UW Hospital where we were met by the Neurologist we had seen in clinic prior. Upon a mini mental exam, which I failed miserably, he admitted me to the hospital, Where I spent the next 28 days, akin to a 90 year old with advanced Alzheimer’s disease. I could not walk, nor speak coherently, I was incontinent of bowel and bladder, I did not know my wife, nor my parents, brother or sister.

I had a brain biopsy which showed the lesions to be Apoptosis, (Programmed Cell Death), and an Electron Mictroscopy which revealed Mitochondrial DNA abnormalities consistent with Mitochondrial Encephalomyopathy and Lactic Acidosis with Stroke Like Episodes (MELAS). A muscle biopsy corroborated these findings. Serial Lactic Acid levels were grossly elevated, consistent with MELAS. I was to be transferred to a nursing home to live out my days, when I was evaluated by a visiting professor from Harvard, he suggested starting me on a mitochondrial Cocktail (essentially 13 vitamins, amino acids and one KEY NUTRIENT, CoQ10.

It was within 36 hours of starting this cocktail, that I could now answer simple questions, I began to walk with assistance, I could feed myself with assistance, I could now recognize my wife and my son and my parents and siblings. I was able to discharge home with aggressive rehab therapies.

Within a few weeks of being home, my wife and I watched Good Morning America one day, and Diane Sawyer was interviewing Dr Beatrice Golomb MD PhD, of the University of California San Diego. They were discussing a Statin Effects Study, Dr Golomb was to be doing. My wife urged me to enroll in the study, to which I replies, “Honey, my job as an RN was to know full well what the drugs I gave to my patients could do as well as any adverse effects.” But she was persistent, and I enrolled in the study, and had all of my medical records sent to Dr Golomb. When the study had finished, I received a call from Dr Golomb who informed me that I was one of several patients in her study with similar courses of illness and similar Brain and Muscle Biopsy findings, she told be she referred our cases to Dr Doug Wallace at UC Irvine, who she referred to as one of the top Mitochondrial Disease Experts in the US, and it was his opinion that my use of Lipitor was the Causal Contributor to the Mitochondrial DNA mutations, as well as the holes (Apoptosis) in my brain.

Since discharge on 11/7/2002, I have Peripheral Neuropathy, I still struggle with profound fatigue, muscle pain in my legs, severe cognitive delay as evidenced by an in depth Neuro-psychiatric Evaluation. It has been 13 and 1/2 years since my disability began. I have poured thousands of hours into researching the effects these dangerous drugs can and do have, more often than admitted by the doctors who dole these drugs out with callous disregard to the profound risks these drugs can have. I am an admin in a facebook group for statin side effects…I have read several books about statins and their risks an minimal benefits..none of which I was truly educated about during my tenure as a Critical Care RN. If anyone would like more information, please check out http://www.facebook.com/groups/statinsand or read “The Truth About Statins: Risks and Alternatives to Cholesterol Lowering Drugs” by Dr Barbara Roberts MD a cardiologist of 40 years who knows all to well the dangers these drugs can and do have.