Rare Diseases

Most Recent Posts

Can Borax Help With Familial Mediterranean Fever?

Hunz (Australia) on 02/18/2015

Hi, just stumbled onto this site. Interesting readings, can borax help with my FMF (familial mediterranean fever).

If so what dosage and frequency would be safe. I have been a suffere of this for a very long time and find it very hard to manage just with colchicine.

Kindest Regards, Hunz

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Take Vitamin C for Proctalgia Fugax

Peter (BC, Canada) on 01/08/2015

I have had this horrible pain from Proctalgia fugax (or levator syndrome) for many years now! Just about every time after sex and it often times woke me up at night. I would get in the tub for 1/2 an hour with hot hot water. The pain was so intense I at one time passed out! Quite by accident I found out that by going on high doses of vitamin C the cramps never came back! Happy Day!

I now take a couple vitamin c a day!

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Urgent Help Needed for Mom with Amyloidoisos

Loren (Queens, Ny) on 11/10/2014

Hi Ted....Was wondering if you have any suggestions for a disease called amyloidoisos....a friend of mine was recently diagnosed with this horrible disease and is struggling to deal with it...she has four kids one under four and right now her household is in chaos with this diagnosis....doctors are giving her no hope....please help...thank you so much for all you are doing....God bless...
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Help Requested for Friend with Amyloidosis

Loraine (Orlando, Florida) on 09/28/2014

Hi everyone....I really need your help guys....I have a friend who was recently diagnosed with a rare disease called amyloidosis....she is really sick and right now doctors have her on strong medication. she also has just finished several chemo treatments.....she has lost already about nine inches of her height....its such a terrible situation, and she has small children, the youngest being four....if anyone has anything that can help her live an easier life with this disease, please help.....thank you everyone.
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