Neurofibromatosis (NF)

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Questions About Nattokinase or Serrapeptase for Neurofibromatosis

Madearthmama (Northwest Indiana, US) on 02/17/2015

What about nattokinase or serrapeptase for dissolving the fibrin in neurofibromatosis? I heard those were good enzymes to dissolve the fibrin as well. Has anyone used those? I read and personally believe in the success of nattokinase in dissolving fibroids...what would the possibility be they could also dissolve the fibrin in these tumors also?
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Neurofibromatosis Tumors

Teresa (Omaha, Nebraska) on 12/23/2013

Please help me and tell me what would be the best natural treatment to get rid of tumors on skin and in the body from Neurofibromatosis. I have a big one on my arm and about 10 little ones.
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Remedies Needed for Children with Neurofibromatosis

Cathie (New Mexico) on 09/18/2013

I have a couple of children who have nf (heridetary). How can I help them now at this young age (5 & 6)? Is there any cure for them? Thank you for your time. Cathie
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Supplements for Neurofibromatosis?

Teresa (Omaha, Nebraska) on 07/17/2013

I have Neurofibromatosis and from this I have brown spots all over my body and some neurofibromas on my body and from this disorder I also have tumors in my body. What would be the best herb or vitamin to take to shrink these tumors or make them disapear especially on my body?
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Aloe Vera Helping Children with Neurofibromatosis Type 2

Susan (Liv, Ca) on 07/08/2013
5 out of 5 stars

I have long history NF2 with this my mom, her dad, my brother, and now my two boys. So I HAVE AMAZING News please read this.

All tumors are created from a over-acidic body. Raise the alkaline.

My two boys have been diagnosed with brain tumors and they my oldest has tumors on the outside as well. I heard about drinking Aloe Vera barbadensia using the whole leaf, honey, and whiskey. My friend's grandfather had prostate cancer and used this for three months and he was healed. So my kids have been drinking it and one shrunk already all gone and the others are shrinking. It is a true Miracle. I can't believe that this is working.

I look up the aloe and it is 8.6 PH which is what you want to have to fight off this demon. I want to help everyone and anyone from this. I bought a book Aloe isn't medicine and yet it cures! For 20 dollars it tells you how to prepare it and what kind of reactions you will have while these toxins come out of your body its so amazing. Their body broke out in boils for 24 hours then they went away. They never felt sick just tired. I believe it is the body repairing itself.

It has been shown by so many scientists that Aloe Vera barbadensia helps so many diseases including cancer and tumors. If you have a loved one and you want to help them do research help your self and save your own life. I seem my mom suffer my brother have surgery and gamma knite. This was not for my children. God Bless I hope you will do the research. Oh look up McDaniel H. Reg M.D. On youtube. He talks about this on his videos.

One more thing: No Milk, No Meat, No Caffeine and less sugar. More Greens.

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Neurofibromatosis

Teresa Larsen (Omaha, Nebraska Usa) on 05/15/2013

I was wondering what is the best remedy to user for Neurofibromatosis? There are so many different remedies to use and I don't know what to do.
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Patricia (Montreal, Canada) on 08/24/2007

I am 22 and have membranous glomerulonephritis. I have had it for 6 years. I have been on TONS of different medication and nothing has worked. Recently I decided to go off all of my medication, since it wasn't working anyways I figured whats the point of me being on it then. I see a naturpath and homoepath and am very into natural health. My protien levels in my urine are the problem, I am now at around 3 mg protein a day in my urine. Over the past few years I have gotten better and better with other symptoms (water retention) and the oil pulling which I started about a month ago has really helped my energy. I am now able to work part time. A couple of years ago and I was taking 2 naps a day. It is just the darn protein! I had severe stress in my life before I got this, for sure this was the cause. Do you have any advice to get my protein in my urine down? Thanks! I love your website!"


Ted from Bangkok, Thailand replies: "Patricia: My own experience of high protein in urine is due to infection usually of bacterial origin, and indicates bacterial colonies or that the body is having an infection. Therefore zinc gluconate 50 mg/week, magnesium citrate 250 mg 5 days out of a week would increase the body's defenses against these bacteria, thus reducing the high protein in the kidneys.

Also whenever urine pH is acid, which means the pH of urine is below 6.5 (usually infections exists whenever urine pH is about 5.5, which is quite low). In which case raising the body's alkalinity would increase the immunity and reduce bacteria colonies. In which case a Apple cider vinegar 2 tablespoon plus 1/4 teaspoon of baking soda in 1/2 glass of water, taken twice a day, once in the morning and once before sleeping should help. Lime (lemon) of 8 teaspoon (or 2 tablespoons) plus 1/2 teaspoon of baking soda in 1/2 glass of water taken twice a day could also help too. But this is often done on alternate days.

Adding 1/4 teaspoon of sea salt in one liter of drinking water will raise the salinity of the urine somewhat so that the antibiotic effect of some salt, would reduce the bacteria thus reducing the protein buildup in the urine.

My own experience with "cloudy urine" usually from weaknesses can also lead to protein buildup in which case it helped me a lot to take vitamin B complex for a couple of days. The urine will often clear up and reduces the protein buildup from my own experience."

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8/24/2007: Ted adds: "One more thing, the membranous glomerulonephritis may be related to heavy metal toxicity which is why oil pulling works, although a proper oil pulling should be done between brushing of teeth, I believe taking some granulated lecithin would also reduce excess fatty liver and reducing the liver's congestion while the addition of one drop of close oil in one liter of water does help too but its mechanism is more in killing the bacterium in the liver is usually how the clove oil works in reducing the excess urinary proteins too."


EC: *** Ted's Remedies Reader Feedback here. ***
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Supplements for Nf1

Tia (Spooner, Wi) on 01/08/2010
4 out of 5 stars

NF1

I have noticed since taking Vitamin C, E, and B that my tumor growths have shrunk. I dont know if it is just me who notices or feels it but I feel it is. Does anyone else know anything else I could take?

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Bee Propolis for Neurofibromatosis

Michael (Sabinal, Texas) on 07/31/2009

my name is michael martinez and i have neurofibromatosis and i was searching for anything that might help with what i have and i read that bee propolis might help with the tumors - http://www.naturalnews.com/026158_propolis_tumors_cancer.html
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Gregory (Quezon City, Philippine) on 06/02/2008
5 out of 5 stars

I have read an article on the web, the remedy in NF1 [Neurofibromatosis -- brain tumor ] , that Vit.E (400 IU) + Vit. C (500-1000mg) with rose hip and citrus bioflavonoid complex supplement; plus dieting by avoiding meat product, especially highly preservative food and sugar will slow down the tumor growth. I have try it over a year and a half. The result is satisfactory.

I wondering from Ted if there another way to reduce the tumor? Also if i can combine cesium chloride+Vit.B complex+ Vit.C+Vit.E and baking soda solution at a same time?Will there be side effect? Thanks...

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