Journey5000 (USA) on 12/31/2023
Ashley (Watertown, NY) on 05/02/2021
Better But With Side Effects
June H. (United States) on 11/23/2019
Nico (Australia) on 09/22/2019
I have found that a vegan gluten fee diet helps, but what really makes a difference to the kidney involvement is daily consumption of natural probiotics in fermented food. This includes coconut yogurt or kefir (I found out early on that avoiding dairy helped my lupus tremendously), cultured vegetables with live cultures (not to be confused with vinegar preserved veggies) and small amounts of kombucha (tart, not too sweet). If I eat these daily in small amounts the kidney inflammation is non existent. When starting out be gradual and add each slowly to your diet as they are powerful, and can cause a detox reaction. Eat well, eat fresh, avoid sugar and fast foods/drinks.
Good luck!
Dolly (Los Angeles, Ca) on 08/03/2020
Candybeagle (Ohio) on 01/12/2018
Borax, ACV, Colostrum, D3, Taurine, Selenium, magnesium, Vit C, Lecithin, Ubiquinol, fermented fish oil, B complex, inhaled peroxide, etc...have all helped me to make this disease bearable.
When ever you go DRs and they say...there is no cure for this...I start asking myself...then why should I take the drugs? At the risk of damaging other parts of my body. My alternative med. Dr.said, You can take the drugs but it will kill you faster than the disease. He was right. I had to have some Depomedrol in my ear for hearing loss, I developed all sorts of side effects. That was enough for me. I found that using the information from this website and other natural forums have proven invaluable to me. Am I cured...no but is my quality of life good...yes and I have had this for 7 years. I feel blessed to have found this site and recommend to my other AI sufferers also. WE who have these diseases know from experience what is helping and by sharing can possibly help others. God Bless all of you who contribute to this site. It's an invaluable resource.
Shell (California) on 10/29/2017
We are using a natural path where she is on many protocols such as magnesium, Galactose, mannose, Vitamin D, Mineral waters etc. we were hoping with the help of natural path and regular treatment we will be able to save her not to flare up. But it seems not happening. Her blood test results haven’t shown any lupus or ANCA yet but we could she because it happened same when she was diagnosed and hospitalized. My husband and I can't sleep and very worried about her. However, very sure that there must be some solution for her kidneys and disease. Looking for ways to revive it and keep her safe from dialysis as much as possible.re
Dr is asking to give her IV steroid that might help her stopping the flare up and in kidneys as well.
Any Help or similar situations anyone have deal and were able to solve will be appreciated.
Wanda (Arizona) on 10/18/2016
Gricel (Dallas, Tx) on 01/11/2016
I am a woman so I feel that hormones play a role in my lupus as well, so I also take DNA 50mg a day in combination with dong quai, damiana, and maca, I use half the dose as directed by the bottle.
For the inflammation I use fish oil, 2,000 mg per day or more sometimes, and for kidney I use kidney support from Tibetan Herbal Balance.
Even though my lupus is still active I don't have to take all the crap from the doctors, hope this helps other people
Susan (Ca) on 11/25/2015
I had the butterfly patch, I also had hair falling out where my hair was parted, a patch on the back of my arm round that looked like my butterfly a cross my nose and under my eyes and another one on the back of my calf that was the same size as the one on my arm.
I also had severe pain in my joints and getting out of bed was extremely difficult as my day progress movement became easier.. I was spilling protein in my urine around +2'.
My doctor told me I wouldn't be able to take birth control any more so 2 months after taking me off of them I became pregnant 2 months later. While I was pregnant, my doctor explained to me that having my baby was very risky, I felt wonderful pregnant and if I had it my way I wanted to be pregnant forever... I had complications during my 6th month and was in the hospital for a week. I had my baby 2 days before my due date and she and I were healthy.
Right after giving birth the put me on prednisone and several other medications. I've been in and out of the hospital several times. I also was on dialysis for 6 1/2 yrs then I received a kidney from my sister. During the work up, they cross match you with the donor, then after they're done working up the smoothest cross match both of you again and I didn't match. They asked if I would like to be in a study called IVIg STUDY (Intravenous Immunoglobulin). I agreed. YOU get 4 treatments and you know after the first one if it's working,
I was blessed and it worked. The last treatment is done when the transplant itself is being performed. It's been 15 yrs, 4/11/00 and my kidney, function is still working and my labs are well as expected.
I have developed other problems through the years, DVT GERD, COPD, HYPERTENSION, CHRONIC PAIN IN MY LOWER EXTREMITIES. There are more pills I take, just more then I want to explain.
If you would like to ask questions feel free to ask. I did clot almost every other treatment on dialysis. I take roughly 30 pills a day now.
Shirley (San Diego, CA & Puerto Vallarata, Mex) on 12/10/2014
Re: Aloe Vera Juice and Probiotics for Lupus Sue (Albany, Ny) on 10/05/2014
Therese (Australia New South Wales ) on 04/28/2014
My name is Therese and I am from Australia, Sydney, and I want to tell you my experience curing (sucking out) my Skin Lupus.
I am 53 years of age and I have had to deal with my skin Lupus for the pass 30 years. Always following Doctors and Specialists advise and directions "that Lupus can not be cured just controlled". All this medications made my skin Lupus very strong and healthy as I become to protect the Lupus and adjust my life style, making the Lupus very comfortable in my environment. So strong and comfortable I made the Lupus it showed up all over my body, especially on the top part of my body and very intense on arms, back and scalp. Wow what a monster I created.
Becoming very depressed and confused I started seeking my own help. I found you on the internet and read about you helping many skin Lupus suffers. I kept reading and realised I maybe able to cure myself.
I started with the Bentonite Clay Powder mixed with water (plastic bowl no metal allowed and all jewellery to be removed from body) using my hands to create a paste which I then placed all over my body including my head, face and sole of my feet. I left the clay on my skin for about 1hour until it started turning to powder or I could not bear the itch no longer I would then lye in a bath for about 1hour. What a itch I created. Had trouble locating the Urea Cream 40%. Started controlling itch with Oil of Cloves (about 10 drops to 1litre of water). Burning feeling for about 15minutes then what a relief, skin felt free for the first time in many years. After about 10 days I stopped using the Oil of Cloves and I used creams for Mature Aged Skin containing Shea Butter to help with itchiness and dryness until my Urea arrive. (Urea 40% costed $50 for 75mg difficultly with shipping to Australia).
I also started taking my supplements one week after I commenced the clay procedure, my supplements are: MSM 3grams daily, Lecithin Granules 10grams daily, Echinacea & Vitamin C 4 Capsules each containing 722mg and 200mg of Vitamin C daily, Citric Acid 10grams with Bio-Carb Soda 1gram mix in water twice daily to drink and Licorice Root Extract 250mg Licorice Root Extract and 225mg of Raw Licorice Powder daily.
I had to learn to identify the Lupus which I was drawing out of my body. Little black dots as small as a pin hole was what I had to look for as this is the sign Lupus coming to surface of the skin. Not in clutters but spread out enough to be identified. Especially notifiable when cream was placed on skin you can see the Lupus on surface. Two to three days later the black dot would be gone.
After 12 days into my treatment and 7 clay treatments I managed to start bringing out the Lupus to the surface (started sucking out) I also managed to bring a lump the size of my palm up my back (right side) and placed itself on the bottom of my neck. I kept monitoring the lump I could not touch the lump as it very hot and sore. The whole time I presumed this lump was part of the Lupus I am trying to suck out.
24 days into my treatment I started getting the Lupus and itch under control. My lump was not getting any smaller and my ears have had a bad discharge for the past 10 days. I went to see my GP (Doctor) and told him of my treatment (my Doctor being African related to my treatment) and discovered I had been trying to handle two seperate issues. The Lupus and the massive infection I brought out of me. The Doctor immediately placed me on "Cephalexin" 500mg 3 times daily to clear up infection. Also had my ears swipe, blood test and ultra sound done on lump that day.
30 days in my treatment my ears have almost cleared up and my lump is much smaller. My Lupus I feel is very close to being all sucked out and my skin is healing well. Still awaiting my Urea cream 40% to arrive. I am looking at keeping my supplements going for another 2months to help my white blood cells to open up and function correctly.
I am due to see my Doctor tomorrow to follow up the result of the lump and monitor the infection which I now have under control. In 2 months time I will be having a blood test to see if the Lupus is still showing in my blood system.
Thank you so much for being on the internet and helping cure my Lupus.
Therese from Australia.
Altaf (Mumbai, India) on 08/17/2013
Kokil (Roslyn Heights, NY) on 07/15/2013
Hope this helps others...
Kokila
Neal (Asheville, North Carolina Usa) on 02/20/2013
This type of treatment has been shown to be beneficial for respiratory problems (asthma, bronchitis, allergies), dermatologic problems (eczema, psoriasis, acne), hypertension, stomach disorders, stress, and some autoimmune diseases, but have not found specific guidelines for Lupus.
Could you let me know of any findings you have that might support this treatment for sufferers of Lupus. Thank you, Neal from Sola
Gloria (Spart., S.c.) on 10/09/2012
Peggy (Cresskill, NJ) on 09/19/2012
I found the closest, most trusted homeopath I could get to - now disabled & in a wheelchair due to pain. She was my first angel & I started on the road less traveled. I still don't believe that if anyone else had heard this prognosis they wouldn't have looked elsewhere for help. My journey began with alkalinizing & purifying all water, a liver detox and immune support. This truly was the only time I had feelings of what I used to be. I was capable of so little, I'm not sure how I got through with so little home support. Now, friends & family jumped on the "crazy" bandwagon. As they kept themselves busy, I improved. With the support of a pain interventionist, I can now walk 50 feet with a cane, food shop holding on to the cart & cook 5 nights/wk, the decent food my family needs too.
This year I found a second angel to build on the routine, I wanted to feel better & knew I could with support. Then I found you, found the first true hope & healing in all these years.... Now, if I can organize this plan, I will be very busy. I continue ph Balance, through clean, ionized water mixed with baking soda & ACV, candida support, dairy free probiotics & enzymes with meals, immune modulation with colostrum & peptides, neurological support with B vitamins & Antioxidants & free radical scavengers. I continue liver support & use DMSO for pain & inflammation. I have seen a glimpse of how good I will feel, as I have also had to move slowly due to Herxheimer reaction. I read as much as I can & see that many recommend following a celiac diet & new suggestions for vitamins & amino acids for energy & acupuncture for ongoing pain. I really needed to thank all of you for taking the time to post & care. I have never felt this level of hope. I know I have a long way to go, positivity seems to make all the difference. I only hope as I improve I can inspire someone as you all did for me & continue to pay it Forward... Thanks again~~~~~~~
Remedies for Lupus Sam (Portland, Oregon) on 07/03/2012
For the treatment of lupus herbs should be taken: nettle leaf, bilberry pine, color, tansy, herb St. John's wort, birch leaves, grass, Knotweed, leaf plantain, mother and stepmother, pine, dandelion root, Oregano grass, clover drug, herb yarrow - equallyTwo tablespoons pre-shredded (in a coffee grinder or grinder) collection pour 0.5 liters of boiling water, drain, along with the grass in a thermos, leave overnight. Take 1/3-1/4 cup 3-4 times a day. The course of 1.5-2 months. After 1 month of treatment interruption herbs can be repeated.
Jamie (Indianapolis, In ) on 06/26/2012
