Colleen (New Brunswick, NJ) on 03/29/2009:

I have had this for 2 years. and found Wheatgrass works wonders after using the topical steroids and it getting worse. I stopped using what the doctor prescribed and used WG and she was amazed and wanted to take pictures and everything. I tried many natural remedies and this is what I have found to work. I had about 6 months that was excruciating and painful sex but now and basically symptom free besides having a small patch of white spots that never real go all the way for good.

Wheatgrass pulp as a compress for 15-45 mins. Make sure it is juicy this is a little messy but very clean and has been proven as a remedy for many problems including yeast infections. Just holding the compress on for 30 mins made my white spots disappear and the skin that appeared was pink and healthy. Juice it and grow it yourself and use 1-2 times a week or get a wheatgrass shot at a heathfood store and ask for some of the pulp. I do this -you can tell them it is to treat a burn or infected cut b/c it is used for that too. You just bundle up the pulp and hold it on press it to your skin firmly. I sit and watch TV on the couch or in bed on top of a towel with paper towels on top. The chlorophyl is very rich and can stain clothing/sheets. Wheat Grass contains many minerals and chlorophyl so maybe this is why it works so well.

But, I recently got wheatgrass cream form an Australian doctor who makes it. it is sold on his website Dr. Wheatgrass. I find if I put this on a few nights a week the white spots disappear too and the skin heals. This stuff is amazing you can heal cuts and burns very quickly with it with generally no scarring. I also found that salt water baths help and Aloe Vera gel helps soothe, and tea tree oil ointment takes away itchiness.

I used the Nuva Ring birth control vaginal ring for 2 years and that is when my problems with LS started. Now I use a pill and generally have a little bit of white spots but no irritation at all anymore and the white spots always go away every month when I get my period. I feel maybe if I did not use hormonal birth control at all this would go away completely but am not at a point in my life where I can justify it as there is not as reliable of a natural method Hope this helps some people with LS b/c it is really awful to have this condition.