Multiple Remedies for Hidradenitis Suppurativa

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ThankfulForFindingThisPage (California) on 03/11/2021:
4 out of 5 stars

Tips from a girl who has had HS for 8+ years

I started having symptoms of HS when I was around the age of 14 but I didn't realize what I had until I was around 20 years old. Once I discovered my extremely painful boils weren't a result of a lack of hygiene, I started the long road of looking for a cure or a way to manage them. A doctor gave me spironolactone and although it worked great, I didn't want to be on a medication like that long term so I started looking for natural remedies...which is when I found this site! It helped me so much I thought I would share some tips of my own. First, I only have HS in my groin (panty-line) and bottom area, so not in my armpits (thank God! ). Things I do that have helped A LOT:

--Washing the affected area once a day with hibiclens (OTC anti-bacterial soap). It was recommended by a doctor and I have found that when I skip a day, I regret it!

--Washing the affected area after working out or getting the area sweaty is a MUST! And I mean right after. I tend to sweat a lot around my panty-line and when I don't follow this regimen, again, I regret it! I usually schedule my daily skin-shower around when I work out so that helps.

--I didn't use tampons until I read posts on this page of women recommending it. I couldn't agree more that if you have HS you should exclusively use tampons. They are a life saver. I used to get the worst flares during my cycle and now barely at all! Moisture and a lack of airflow are huge no-no's with HS, so you can see why pads are terrible for you.

--Wear underwear/briefs that are a size too big. I know that sounds weird, but ANY pressure on the skin in my groin area (the hem line of underwear) would cause the worst inflammation which would lead to the boils. This was honestly one of the easiest ways to manage my problem. I also stopped wearing shorts/pants to bed to give the area more airflow (so less sweat).

--Like the above tip, do not wear tight swim bottoms! I now wear a tankini (I used to wear a one-piece) so that I can wear looser swim-shorts. Beforehand, I would literally have same-day inflammation from wearing a swimsuit that hugged that panty/hemline!

--Another reason I wear swim shorts is so that I don't have to shave my legs so high! I would get a lot worst inner thigh flare ups from shaving, so I stopped doing so as frequently. I have considered laser hair removal but have yet to try it.

--The right kind of shorts (and pants! ) is really important and is probably the hardest to find. I don't wear jean shorts at all anymore (I miss them so much) because they were pinching and causing problems. This is a tip that you will have to figure out by trial and error, but just know that clothing makes a HUGE difference. Speaking of clothing, if you're at home on a cold day, loose shorts and a blanket are better than pants--remember, lack of pressure and airflow are everything.

--Unfortunately, I haven't found many ways to manage the bumps I get on my bum! I've found certain chairs/sitting positions cause bad flare ups, but I haven't found anything else to help so far.

--I have tried turmeric, and although I think it helps a little (I was eating it every day for a couple of months), it didn't help me enough to make me want to eat it every day (so gross when eating a teaspoon by itself). I've also tried tea tree oil and manuka honey which I didn't see much results with. BUT, I wasn't all that diligent in their application so that might have been my problem.

--Although I would not recommend spironolactone long term, I would recommend someone who has super-damaged skin from untreated HS to use it for a couple of months. After 6 years of damage (I literally have scars and had areas of my skin that were so damaged they were almost constantly in a state of being an open wound), the break spironolactone gave me was great. It allowed my skin to heal up and just calm down and I think the natural methods I'm using now work a lot better because I started from better skin.

I've been doing the above for around 2-3 years now and I can say that although I still suffer from HS, it is nowhere near as bad as when I didn't know what HS even was. Although there are some areas of my skin that are still pretty sensitive (only one area of super damaged skin near my panty line), there are other areas that used to flare up every couple of months that haven't bothered me in over two years! Hopefully, this helps you on your journey. And please don't get overwhelmed by the changes either! Just take one change/step at a time and hang in there!

REPLY   6      

Kim (Ohio) on 05/28/2020:
3 out of 5 stars

My son was diagnosed with Hidradenitis Suppurativa (HS) last year, he's 15.

After 3 different kinds of antibiotics, it kept coming back. It started at both his underarms and then his private area. I've been reading up on this and trying to find some relief for him. I bought turmeric pills, the high strength with at least 95% curcumin, he's taking zinc, vitamin D3 and flax seed oil. His boils drain often after a flare up. It's been a couple months taking turmeric, the boils are still there. I read up on nightshades food and took him off a certain food.

What we discovered is he can't have pizza sauce, any sauce with tomatoes in it. Then we discovered he can't have potatoes, just sweet potatoes which he doesn't like. Sugar, like in soda is another item he must avoid. I hate to see him suffer daily and having to do so much maintenance for his boils. I bought the 15 umf manuka honey to apply to the boils. It helps but it didn't totally go away. I spent $65 on a 8oz bottle of the 20 umf manuka honey and the boils are still there. When the boil drained, there is a piece of tissue hanging, gross, I know but the manuka honey helps it shrink back and close the opening, it took about a week.

I am running out of resources, I wish he could have 1 of the successful story I read from people here. We've been battling this for a year with no relief. Does anyone have something else I can try?

REPLY         

Vee (Palestine, Tx) on 12/31/2017:
4 out of 5 stars

I have this issue in my groin, around my vaginal area. Here are a few remedies that worked for me:

Try to get rid of as much hair as possible in the area of your frequent breakouts. I use a hair removal lotion around my bikini area (don't get any of this on the bumps! ) that seems to work well and not cause further irritation. Shaving is the worse-I usually got a bump afterwards. I've never waxed my bikini area so can't comment on that. I've heard laser hair removal may work.

The TURMERIC really works. I simply mix a few dashes of it in a small cup of hot/warm water and drink it straight with a straw. The turmeric really stains so you may want to do this right before eating or gargle before brushing your teeth. It will stain your toothbrush. I try to do this at least once a day when I have a bad breakout but it you can do it more often I'm sure that is better. I actually like the taste of the turmeric so I'm thinking I must have a mineral deficiency or something.

I had a large boil right along my belt line that really hurt! I bought those large square band-aids and soaked the gauze part in straight TEA TREE OIL. It was large enough to completely cover the boil and was discreet enough for me to wear all day. In a few days it became flat and eventually went away. It did leave a dark spot that does eventually fade, after several weeks...

VICKS VAPOR RUB-even the generic kind-did give me some relief. It is soothing and did relieve some of the itching that happens as the boils go away and heal. It was best for me to use this at night.

Ladies-use TAMPONS instead of pads if at all possible. I usually get these breakouts around the time of my cycle. Using the pads causes more moisture in my vaginal/anal area and I start to sweat, which causes the bumps! Change your pads often. There is one particular brand-that starts with an "A"-that is the absolute worse and I always feel the moisture a few minutes after using them. Choose wisely!

Using ZINC SUPPLEMENTS seemed to work also. I read that taking 90 ml a day is the trick, but the brand I had is only 50 ml, so I had to take it twice a day. You MUST take this with plenty of water or with a meal, otherwise you will get nauseous or you may throw up.

This last breakout I had was the worse-I had about 4 small boils in my vaginal/anal area at the same time. As they heal, the itching is intense! Scratching seems to make itchiness spread. To combat this, I used ANTI-ITCH VAGINAL WIPES, (in my vaginal area) ANTI ITCH CREAM and ANTIBIOTIC OINTMENT outside of my vaginal area.

I don't currently have any boils now, but on a daily basis I use TEA TREE OIL mixed with COCONUT OIL around the area where I've had past breakouts.

Mind you-my boils never burst, they just went away. Draw your own conclusions with that...

This is a really embarrassing ailment. I truly hope that some of these things I've tried helps someone.

REPLY   7      



Jess, 19. (Sydney, Australia) on 04/24/2017:
5 out of 5 stars

Since I was about 13 I started badly suffering from Hidradenitis. I get it in my groin, only in 2 spots however. After extreme pain every day and attempting what I thought was every natural remedy and antibiotic, I realised that my flare ups were merely due to stress and hormones. At age 17 I got surgery to remove the 2 bad cysts. STAPH was found in the wounds and months later, the condition was back and worse. Things I began to realise were that when I was on my period, it got a whole lot worse.

When I am stressed, the pain often rises to a 9-10/10 every moment of the day.
However, I have started to take a few herbs and change a few things up.
- Ginseng ( Relives stress)
- Turmeric capsules (Anti-inflammatory)
- Baking soda and tea tree oil baths 1-2 times a day.
- Anti-bacterial soap.

I also often use Bactroban (prescription) directly to the wound, however I have not found this to help any more than tea-tree oil.

I used to be so self conscious of my body and what people would think of the cysts if they were to see them, now, more than anything I just want the pain to go. If you receive nerve pain (I do all down my legs) this is very normal. Epsom salt baths do help a little bit.

Something I found was that trying to squeeze the cysts or pop them myself was a bad idea, though, sometimes when the pressure is soo terrible, it will be a way to relieve pain. You MUST ensure that the needle or pin you use is one-use only and completely sterile, though, if you have a nurse or doctor who can assist you I would ask for help as you do not want to increase scaring by hitting the wrong area.

As of last week I began to cut out Added sugars, grains, gluten, red peppers, red meat and dairy which seemly does help after about a week. Though you really do need to stick to this. At this point I have been to around 15 doctors and specialists for the issue, no one with a cure of course. But all I can really say here is if you have any way to reduce stress and maintain a happy wellbeing, do try. Meditation works for some, more sleep, exercise (Often hard when you are in pain) and eating well all contribute directly.

However, I realised that since I went overseas and became sexually in-active it worsened. I have a boyfriend back home and it has been around 4 months, for me, the hormones released during sex with a close partner was my best cure so far. Although it can sometimes be painful, the hormones kick in relatively quick and really do help. Though, 'Helping myself out' does not actually do anything for me in terms of pain relief or release of such hormones. For me, when progesterone and oestrogen levels are slightly higher (When ovulating) I am at my best. Taking a contraceptive pill did help but, only when you are on the active pills.

Good luck, please do let me know if you have any natural cures or thoughts towards this. Also, if you know any good herbs for hormone regulation I would love to hear!

Best of wishes,
Jess.

REPLY   1      

Amdkm (India) on 02/14/2016:
4 out of 5 stars

I have hidradenitis suppurtiva in my armpits for almost 3 years now. I was misdiagnosed initially and only recently I came to know my exact illness.

As per my experience, antibiotics are not much effective unless its when a flare up occurs and you want to reduce the inflammation. Also, if you do surgery you have to do it each time a flare up comes.

But, I have been dealing with it and now I have very less flare ups using the following:
- After bath, Use Povidone Iodine solution, the traditional brown colour liquid on your affected area to kill all the germs.
Let it dry so that it doesnt stain your clothes
- Use clindamycin gel on your affected area any time of the day or before sleep.

Do not miss any day.
Do not shave or wax.Try an alternative.
Try not to sweat too much.
Drink water.

I guarantee that you wont have a flare up :)
Good luck guys and stay strong!

p.s In case you get a flare up ever, use neosporin (bacitracin) powder on it for school/work since its a powder and the pus won't scar your clothes.

REPLY   2      

Anne (Warsaw, VA) on 01/04/2015:
5 out of 5 stars

I'm 47 years old, decided to clean up my act put myself on all organic, all natural diet, take supplements & yes, I needed to lose about 60 lbs. So, when I bought yet another deodorant, that claimed to be all natural, I actually thought I'm doing something good for my body. About 6 hrs after applying this deodorant, I felt a discomfort under my left armpit only, it also smelled sweaty; but because I started a new work out routine, I just attributed it to the muscle soreness. Same night increased soreness woke me up from sleep. I found raised red bumps under my left armpit, with what felt like swollen lymph nodes, pain radiated to left side of left breast. Naturally I freaked a bit, started searching & found many sites, but the:

https://doctorrennie.wordpress.com/category/diseasesconditions/dermatology/page/2/

confirmed that it is Hidradenitis Suppurativa. This was 4 days ago. My armpit is pain-free and clear now. This is what I did:

1. I drank 1 Tbs of organic turmeric powder in 16 oz warm, (not hot), filtered water flavored with 1 oz of ACV, & 1 Tbs of Manuka raw organic honey -- all of this 3 times per each day.

2. Twice a day I cleansed my armpit with sensitive liquid soap, (used Dove) with a tsp of tea tree oil mixed into it; gently rubbing it with cotton puff if preferred, or just use fingers, absolutely no need to scrub, run warm water over as much as you can stand. It felt ridiculously painful when it first appeared, I could barely stand rinsing it with water.

3. after cleansing & gently patting it dry with toilet paper, I applied a mix of 1 oz of organic turmeric with 1 Tbs of same Manuka honey, making rather thick paste & then spread it on my entire armpit, it will run a bit, so wear black, as turmeric stains everything permanent yellow, but make sure no cloth is touching your pit, (or you will waste the paste you just made by having your clothing absorb it, just clamp your arm down & ace wrap it if neccessary.

4. Started taking 1 gram of Vit C, 300 mg Vit E with 50 mg Zinc, all 3 x day. This is in addition to my other supplements that I had been taking prior to this.

The swelling, redness & pain went away within 2 hrs of 1st application of the turmeric/manuka paste! I cried with joy, because the pain & swelling relief was so apparent.

I do not shave, just occasionally trim my armpit hair & have never had this happen to my entire armpit. When I used to shave I remember that I had one "pimple" pop out, which I quickly stopped with epsom salt soak, but cotton ball quickly became rough & it was painful, so I stopped shaving, had no problem until this deodorant application, or at least I think this did it.

Also, online, there is a rising consensus & a possibility that HS is an autoimmune disease. Now I already have rheumatoid arthritis, and HS is listed on many sites, as a "side-effect" of autoimmune disease. As much as I love my tomatoes & potatoes, eliminating all nightshade family plants from my diet helped greatly in controlling RA.

REPLY   3      

Maria (Eeatonville, Wa.) on 11/04/2014:
4 out of 5 stars

The idea is not original. I got it from the Internet and I forgot exactly where.

My son got his attack of Hidradenitis Supperativa on Friday. He took tumeric and zinc capsules/ pills, on Friday evening and on Saturday, morning & evening and Sunday, twice a day to the present. Saturday evening we used Ichthammol ointment on it (first with just tissue over it and the second time on Sunday, a bandage was used).On Sunday also a LED UV auto-leak-detection little 2 AAA battery flash light was place right on top of the boil for 5 minutes . This was done also for three minutes after the boil popped the next day (about 24 hours after the first flash light application.) We are continuing with the pills and are now using neosporin instead of Ichthammol ointment

I would like to get in touch with Hs/ai New Hampshire, 02/15/2014 to inform him of this.

I am 75 years old, no advertisement nor religious propaganda has been made and I just wish to thank everybody for their help.

REPLY   3      

Martha89 (Los Angeles, California) on 09/06/2014:
5 out of 5 stars

Several years ago I was diagnoised with Hidradentis Suppurativa by two doctors. Recently I went to specialist in the disease, she examined my armpits (without gloves) by rubbing and looking for scar tissues and marks left from previous outbreaks. She saw no scars or marks under my arms, and said "she did not think I had the disease."

She told me to go home and try her solution for my problem, and if that did not work come and see her again. All smiles---it worked. She had me take a bath every other day for 7 days only, and to put a little clorox in the water (1/4) cup. In addition, she had me take my previous prescribed oral antibiotic for "7 days only" (this stuff I had been taken for 3 years), and to put the previous cream prescribed for my scars/bumps into my nostrils for 7 days, several times a day.

So basically this new doctor's advice cleared me up in 7 days for a disease I was told I had for the past 3 years. My old doctor (dermatologist) had me take oral antibiotic pills everyday for years, and I had to see him monthly---go figure.

It has been 4 months (summer 2014) and I have not had any outbreaks, smell or drama associated with that disease. The bumps under my breasts, which I thought "was not" associated with the disease was entirely something else--- a problem that quite a few big breasted women have. The new doctor prescribed a cream to put under my breasts and I have not broken out since. However, I do wear cotton in my bra on hot, humid days.

Needless to say, I am so happy that I am no longer having the problems I have had for the past three years. I do think that moving to this hot and humid state 4 years ago contributed to this problem. I must say I feel very uncomfortable in this weather, and try not to go out on extremely hot, humid days.

Good luck and I hope this helps somewhat.

REPLY   1      



Tracey (Somewhere, Montana Lake) on 04/02/2013:
4 out of 5 stars

I have had HS since I was about 19 years old I am now 51years old. I diden't have a diagnosis till about 10 years ago. I've seen numerous doctors. I have tried topical antibiotic creams, lotions and gels, retinol prescriptions very expensive and not covered by my insurance. However the retinol did help. I have used tea tree oil for many years and add hibilclens to lever2000. I can't use dial.

I started using turmeric and magnesium yesterday for pain issues. I also take EFA's and have since my 20's. I am currently on an oral antibiotic which was given to me after 2 outbreaks where I turned septic. I had a cyst the size of a grapefruit on my buttocks. It started out the size of a grain of rice at 10pm. By 1pm in the morning I had a fever of 106 and the cyst was the size of a lime. By the time I was able to get into the doctor at about noon I was septic. This happened again a few years later. I also used ACV and zinc, not as helpful for me as other people here at this site. I don't want to add too many thing at once. So for now I see how what I added works. I would like to get off the antibiotics.

REPLY   3      

Suz (Highlands Ranch, Co) on 01/16/2013:
5 out of 5 stars

My Mom had H.S., but had no diagnosis back in the '70's. Instead, her doc sent her to a shrink, which about humiliated her! Now my 32 year old daughter has it. She has special needs, so I tend to her needs in this area, so I am always trying new things and read whatever I can find about H.S.... She has it mainly in her underarms. I never shave her, instead I buzz cut her underarms with a personal shaver. Never use any deodorants, instead I wash her affected areas with clear bath water, thoroughly dry her and clean her with antibacterial wet wipes. It seems to work, 'cuz I never smell any odors and her outbreaks are few. I feed her fresh pineapple almost daily as I read it has great benefits for the skin. I also add fresh strawberries as often as I can. In addition, I give her a probiotic daily and Omega 3 in the form of chewable gummies... Her clothes and bedding are 100% cotton. I try to watch that she doesn't sweat and keep her as calm as possible. When the occasional outbreak does occur, I use lots of wet warm compresses and follow up with Neosporin with pain relief. She has been on Clindamycin topical solution 2x per day for several years and it works great for her with no side effects. She only sleeps in sleeveless nighties. When there is an outbreak, I do not put a bra on her and always keep her clothing loose... I watch her caffeine and sugar intake. She is always in a smoke-free environment. When she has the occasional flare-up, I treat it like the inflammation that it is and administer 4oo mg Ibuprofen as needed. I hope some of these ideas help some of you... GOOD LUCK ;-)
REPLY   1      

Milly (Titusville, Florida) on 10/23/2012:
4 out of 5 stars

I'm now 23 and I have suffered from HS since I was about six years old. I would get a flair up a couple times a year and it stayed that way, until I was around 17. I'm not sure what changed exactly, but I began having mulitple flair ups in my groin/buttock/armpit and now lower stomache areas. Its a terrible disease.

I finally got the guts to ask my gyno about it when I was like 18 and she told me it was a form of staph infections from poor hygiene, boy I felt like for a long time after that thinking it was something I did to myself. Luckily I know better now.

after doing some reaserch online, I refuse to use antibiotics because I dont want my body to build up a tolerence or be stuck on a medication for the rest of my life but some things I have found that have helped me are as followed.

When I get a flair up that wont pop, as long as its in an area I can bandage I use full strenth tea tree oil (I know its very drying on the skin, but it opens the sores right up to drain sometimes over night)

Recently, I cut out all majorly proccessed foods, and have gone gluten free and I noticed a HUGE change, they almost completely went away within a month, with an exception of one that I've been fighting with for about six months.

and then lastly I started taking Tumeric capsules like crazy. The 500mg ones, I would take 3x in the morning and 3x at night.

with the combination of all of that it cleared up my HS almost completely. Sadly, I went on vacation and didnt eat right, didnt take my vitamins, and I got insane flair ups, something like ten of them at once.

Over the last year I also lost 40 pounds and that might have something to do with it too. Anyway, I hope something here may help someone out there, I know it's all things that have been said before, but they have helped me when I stick to them!

REPLY   2      

Ricaninlv (North Las Vegas, Nv, Usa) on 06/25/2012:
4 out of 5 stars

I have had HS for over 15 years and have always had them lanced with no permanent solution; they always come back. I recently went to a doctor for an official diagnosis and was told it is HS. Now I am in search of a homeopathic solutions nothing else has cured it.

Here is what I have tried that has helped:

1. Hybaclens - antibacterial soap

2. Topical antibiotics both over the counter and prescription

3. Hot compresses

Now I recently found this to be very helpful reducing the swelling and removing the puss within 2 hours of use.

1/2 teaspoon Tannic Acid (powder) in 1/4 cup warm water plus 20 drops of DMSO (liquid). Applied to infected area repeatedly for 1 week. It does not burn but stings a little.

If you have any other homeopathic remedies please post here. Thank you!!!!

REPLY         

Jobaby1 (Hayward, California, Usa) on 07/25/2011:
5 out of 5 stars

Hello everyone I have personally dealt with Hidradenitis for over nine years. I have terrible scars under my right armpit as well as scars on my buttocks. The first boil I ever had was in high school and it was on my buttocks and it was huge and painful! Needless to say from that point on I have been plagued ever since. I would go to the hospital and get them lanced and they would just put me on antibiotics which would help but the relief was always short lived. I found out years later that I had this Disease and learned the official name for it. The doctor suggested the surgery option or the Accutane. Neither option was appealing so from that point on I researched and researched as much as I possibly could on remedies and treatments.

I came across this website and read a lot of the posts and cried because I really could relate and I didn't feel alone. Once I browsed the site I was eager to try whatever I could to make this go away! I began using only Lever 2000 soap, cooking with Turmeric. I also used Tea tree oil topically, after all these steps I noticed an improvement but still kept having reoccurring boils that would never completely heal I'm talking about weeks and months. So with a little more web surfing, I decided to try Echinacea and I loved it! I noticed it brought boils to the surface immediately! I also changed my deodorant from secret to tom's and Jason's. Also being on a health kick I decided to do the master cleanse to see if that would help the situation, and it actually did.

But this is when it got even better I researched an herb called Pau d' Arco and have been taking it in conjunction with the Echinacea and OMG I'm getting some seriously AMAZING results! First of all my bad acne on my back is clearing up and most importantly it's causing my boils to drain and the area surrounding the boils to clear up. I feel almost like a tingling sensation as if it's fighting the infection! I just wanted to share this I really hope it helps someone.

REPLY   6      



Black2moose (Atlanta, Georgia) on 04/12/2011:
4 out of 5 stars

Does anyone know if HS is a form of candida?

I've had HS since high school and I'm in my 30s now. It's pretty much all over my body, face, neck upper and lower back, thighs, armpits and back of arms. It gets worse when I'm stressed or I eat sugar or drink alcohol. I have been diagnosed with Candida. I know that sugar and alcohol both make Candida grow. While I was on the Candida diet my abscesses got better but as soon as I got off the diet they got worse.

Somethings that work for me but are by no means a cure are as follows:

  • exfoliating regularly
  • apply ACV topically - ingesting is good too
  • probiotics
  • soaking in a hot bathtub when the cyst is infected/painful will help open it
  • apply a paste of garlic topically as well as ingesting raw garlic
  • Surgical removal
  • Antibiotics don't work and if this is a form of Candida the antibiotics will just make the candida worse since they eat the good bacteria with the bad.

REPLY         

Lrgold (Las Cruces, New Mexico) on 03/24/2011:
5 out of 5 stars

Hello all--

I can't believe it--after years of suffering and MANY hours of my own research, I found something that WORKS!!! I put the pieces together after doing my own research because docs kept putting me on antibiotics and I didn't want that. The meds cleared up the "bumps" (really bad under my breasts and in my armpits) for two weeks, then they'd come back with a vengeance. Also, I've tried collodial silver,

For the first time in 3 years, my bumps are gone and the scars are healing. I am 100% convinced that HS is related to yeast overgrowth in the body, which is aggravated by antibiotics and other things. Some symptoms are yeast infections (including under the finger or toe nails), vaginal yeast infections, chronic sinus problems, affected lymph nodes, and a white film on the tongue or a cracked tongue.

I've always had problems with vaginal yeast infections--very sensitive to sugar, though I eat my fair share of chocolate, of course. One beer makes me feel like that purple chick in the original Willy Wonka. On these HS support forums, many people swear by a gluten-free and dairy free diet... This is directly connected to the "yeast (candida)-free diet" which advises people with candida overgrowth to avoid fermented dairy products, pretzels, chips, bread, beer, wine, etc. Pretty much everything but veggies and meat. However, what's great is that it doesn't have to be a PERMANENT diet. Clear out your body for 3 or so months, then really monitor what is going into your body and how it makes you feel.

Sorry for the length of this post, but I feel compelled to pass this on to other sufferers!!! What finally cleared up my suffering is this:

NYSTATIN 100,000/g POWDER: prescription only (ask for the larger sized bottle), but not a controlled substance. Clean the area well, then put this in the groin area, under the armpits, and under the breasts (in your affected areas). I also had to use Nystatin cream on a small section of my groin and a little under my breasts, until I got it under control.

I am currently also taking (available from Vitamin or health stores):

Candidase Enzymatic supplement (to inhibit yeast growth)

Kyolic odorless garlic supplement (anti-candida formula)

Acidophilus Pearls (anti-yeast)

Turmeric one-a-day pills

(all of the above I plan to be on for one month, then try and monitor my yeast intake to keep levels under control).

Vitamin A

Vitamin D3

B-vitamin complex

Prenatal vitamins (always take them as my multi because I like the effect on my skin and nails)

I only use IVORY bar soap under my breasts and in my armpits and groin. I use a new razor every time I shave under my arms. Now that the bumps have gone down, I try to exfoliate under my armpits with a loofah to remove dead skin. I also do NOT use anti-persperant, but rather spray Crystal deodorant in the clear bottle with a purple label.

-----

When you are in a breakout--use pure tea tree oil on your bumps that haven't come to a head. It works wonders. If you get a bump behind your ear, don't mess with it, and the lymph node will eventually go back to normal. Take ibuprofen 800mg to reduce swelling in the deap-seated large abscesses.

The nystatin will help you! GO GET IT! I can't urge it enough. The anti-candida supplements helped too! There is another article I read that said people have had luck on long term anti-fungal prescription medication, but this can be damaging to the liver, so I opted to try the supplement route first.

I also gave up dairy a few months ago, and still severely limit my intake. I know that until I get the candida under control, I'll have to keep using the nystatin powder, but I am making an effort to try and cut out the yeast foods. Avoid sugar/sugary drinks at all costs if you can.

I have been in severe pain, spent hundreds of dollars for surgeons to drain and pack cysts, and been depressed and shameful. Please try this, I think it may help many people.

REPLY   2      

Samantha (Orange County, Ca) on 03/09/2011:
4 out of 5 stars

I've been dealing with HS for 12 years now. I usually tell my boyfriends that I have an issue with my sweat glands... That they get infected and don't function properly. That is usually sufficient and they always understand : )

For me, all of these things help:turmeric, topical antibiotics (evoclin), and using antibacterial soap. In addition, I'm mindful of the fabrics I wear (cotton almost always), the personal hygiene products I use (natural deodorants), and usually go "commando. " Lol. However, nothing has "cured" my HS yet.

I've quit smoking cigarettes and am working on losing weight. I am specifically focusing on having a clean and healthy body from the inside out. Eventually, I will do a comprehensive detox like a raw food cleanse for a few weeks this summer. It makes sense that this will be the best option because it has worked for others and these types of regimens have healed cancer and other vile diseases.

I'll keep you all posted <3
Samantha

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E.j. (Brevard, N.c., Usa) on 08/22/2010:
5 out of 5 stars

Hi I had HS, over 25-30 yrs. Stopped antibiotics 10 yrs ago. HS is an autoimmnue disease, that antibiotic only help if you get a secondary infection like staph in an open wound. For me, heat and stress, make mine worse. I use turmeric, also tea tree oil. Also, epsom salts (2 cups) in a hot bath, or a black drawing salve with ichthammol 20% in it, it help draw it to a head to drain plus relieve pressure and the pain. If, I am working outside and get to sweating I come in and take a cold shower to lower my body temperature down, so I don't have a large boil, later that evening or the next morning! EJ
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Jen (Dover, DE) on 07/13/2009:
4 out of 5 stars

I read every post on this link and tried what seemed to be most common for my mild case of HS (compared to some of you--how in the world do you do it?). I am taking a tumeric supplement becuase I couldn't find tea, using the yellow bar soap, switched to the spray on crystal deodorant and use acne spot treatment for breakouts as soon as they start. I had a spot that was about the size of a half dollar, swollen out about an inch and within 1 day of trying the combo listed above, it had reduced by half. I had no faith that this stuff would work, but I've noticed that what is appearing are minor spots that I can get rid of in a couple of days. I don't know what is the driving force behind them but I will continue to use/take all of the remedies above if they continue working for me. I just thought I'd share and tell you all thanks for the info--it has really helped me. All of you who are suffering so terribly, I'm so sorry that you can't find relief. One last thing, I was only diagnosed in December after my first break out and immediately, I was referred for surgery. I didn't find this site until after I had both underarms excised. I wish I had found it befor--the areas covered by the surgery do not breakout anymore, but all the areas around the surgical area are now breaking out. Anyway, the remedies above are helping me. I hope they help others too...
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Jessy (St. Pete, Fla) on 05/29/2008:
5 out of 5 stars

For more than 1/2 my life...Re: Post-surgery of the right armpit and beyond. In 2000 I had a cyst removed from my right pit. It was benign, the size of a grapefruit, & was an outpt procedure, Was sent home with drains & Oxy-contin. Detoxed self off that, & came through well with the drains meaning little scarring. 6 mos. later I was to return for the same procedure on the left arm, but refused as the right was beginning to swell again. Hence, SURGERY DOESN'T WORK FOR A SYSTEMIC CONDITION. What does?? Every thing mentioned in this blessed site so far! Especially the ACV-Epsom Salt, & Kosher/Sea Salt. Messy as hell, but very healing. Paper tape as well when draining, as it took me years to find a solution to ripped-off skin. Also, Curry powder which contains Turmeric, at night, but it can stain so be careful. Then, Campho-Phenique after bathing can catch new erupts early and stop them, especially in the groin area. Hot compresses of Golden Seal/Burdock/Slippery Elm herbal tea are also effective, but on thin skin they are indeed painful - had to take several shots of liquor before applying - BUT, 30 YEARS LATER THERE'S BEEN NO RECURRANCE TO THE AREA AT THE TIP OF MY COCCYX BONE. Good luck all, will write back soon...Jessy
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