Eosinophilic Esophagitis

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Re: Eosinophilic Esophagitis

Aaron (Detroit, Michigan) on 03/09/2018
5 out of 5 stars

I have been suffering with eosinophilic esophogitis for over 30 years now. I was originally diagnosed with a shotzki's ring, then acid reflux, and now “ee”. After years of struggle and well over 20 throat dialations a doctor finally recommended I go get tested for food allergies. After I did, I was amazed by how much I'm actually allergic to! The list is long but the biggest problem foods for me are the following: Soy, Beef, peanuts, eggs, almonds, lobster, yeast, etc. All of these foods I have been eating for years with no “visible” symptoms.... it wasn't until I stopped eating all these allergens that I noticed a change in my ability to eat. The problem is that these foods would very slowly affect my swallowing. For years I blamed chicken, French fries, and other foods for my dysphasia but then later realized that chicken wasn't he problem it was the breading on the chicken. French fries weren't the problem either but the oils it was cooked in.

Out is all the foods I'm allergic to SOY has to be the worst. It is in absolutely Everything! It's in ice cream, chocolate, crackers, oils for bread at sandwich fast food places, the entire menu at steak-n-shake, almost all gum, etc. This poison has no real nutritional value and is used as a binding agent and/or filler for many products. You must read the ingredients in Everything!

So I hope this helps somebody out there that is struggling with the same problems I have experienced. I'm hoping to avoid ever having another throat dialation by simply avoid the problem foods. I used to drink “ensures” and other protein drinks to supplement my poor ability to eat only to find out years later that the ensures contain soy and other ingredients that were part of the problem.

By the way, if you love chocolate and can't find any that doesn't contain soy lecithin, Kroger sells a brand called “Green & Blacks” dark chocolate that is soy free!

Also, a teaspoon of baking soda and a glass of water works better than the antacid medication they prescribe you and is better for you. (Although I'm not a doctor just a guy of whom has had real-life experiences with these problems for years and am winning the battle! )

Good luck to all!

Multiple Remedies for Daughter With Eosinophilic Esophagitis Not Helping

Barbara (Atlanta, Ga) on 03/22/2017
1 out of 5 stars

Help. My teenage daughter was just diagnosed with EOE. She is about to go off to college and I am worried about her being able to eat at school. What supplements would be good for her to take. It seems like everything she eats makes her feel bad. She takes a probiotic and l-glutamine. We have tried an array of different natural supplements but not have been a great help. All the traditional doctors want to do is pump her full of steroids but I want to find the source. Her symptoms are troat pain, burning, stinging, stomach pain, fatigue, nausea. She has waves of being hungry and then nauseous. She is a distance runner and needs to eat alot of calories.

Eosinophilic Esophagitis Caused by Dysphasia and Food Allergies

Marcela (Jacksonville, Nc) on 11/11/2016
0 out of 5 stars

Eosinophilic Esophagitis Caused by Dysphasia and Food Allergies

Eosinophilic Esophagitis it is not just caused by GERD. New studies in the last couple of years have found that is also caused by food allergies disorder. Unexplained dysphasia and vomit. In < 15 or more per high field test Studies have a correlation with Celiac too. I had dysphagia for years. I stopped eating dairy, lactic acid and gluten. after eating this food I had food impaction in my esophagus. I am happy to see that new studies have found the problem that is not related to GERD Studies and testing are promising in the next 5 years.

Re: Treatments to Help Heal Digestive System

Kacy (Iowa, US) on 02/18/2015
5 out of 5 stars

Before I knew what I had, I was using lemongrass, myrtle and myrrh essential oils to treat what I thought was a thyroid problem. I would rub it on my throat and put it on the bottoms of my feet as well. It helped immensely. I could swallow without discomfort within minutes of doing this. Soon after I found out I had eosinophilic esophagitis. I'm now researching oils specific to Eosinophilic Esophagitis. Next week I plan on starting a daily regimen of myrhh, basil, frankincense and cinnamon along with Manuka honey. A great natural remedy but I can't imagine a 3 year old swallowing it willingly and essential oils aren't always recommended for ingestion for children - but oils on his feet or externally on the esophagus could help.

Ginger and Turmeric Helped Son with Eosinophilic Esophagitis

Mala (Florida, US) on 08/02/2014
5 out of 5 stars

My son was diagnosed with Eosinophilic Esophagitis at the age of 18 mths, and his GE told me the count of 52 and 33 was the highest he'd ever seen. He referred us to an allergist and the battery of test showed that he was allergic to most things under the sun! With diet elimination and steroids his EE count was doing ok but I wanted him off steroids cause he's on a lot of meds for other things. Then one day someone who I trusted told me that they had had cancer stopped taking doctor's medicine and started taking ginger and turmeric pills. So I thought about it and decided that since my son never had any pain, I'll stop giving him steroids put him on these tablets and scope him within the year. I got the results of his scope yesterday and with the combination of a GF diet and these pills his count was 5!

I should mention that my husband is a physician who clearly does not believe in alternate medicine, but EE is an inflammatory disease and ginger and turmeric are anti inflammatory!

Remedies for Eosinophilic Esophagitis

Lorraine (Mississippi) on 11/06/2013
5 out of 5 stars

I have been struggling with EE as well. Been following the elimation diet. Easier to swallow now. Have not had a repeated EGD. Gave upeggs, milk-dairy(cheese), nuts/tree nuts/coconuts, soy, fish, and gluten. I had a hard time at first, very hungry loaded up on rice and potatoes. For me the rice milk was the best alternative for someone who loved skim/2% milk. Tried to balance fat with veggies. Tried to supplement with a rice protein powder for amino support. You can mix it with water, applejuice or rice milk. I also added blueberries or strawberries. It's more expensive but very smooth.

Dietary Changes Not Helping Husband with Eosinophilic Esophagitis

Renna (Sacramento, Ca) on 08/19/2013
1 out of 5 stars

My husband now 29 got diagnosed with eosinophilic esophagitis 5 years ago. We tried everything, he was seeing a research doctor that put him on all kinds of meds that just made him feel so sick. He had to quit his job drop off college for a while. This keeps going on and off he is never feeling good and when he is it never lasts. We decided to go a more hollistic approach and tried the eimination diet. He is allergic to most fresh fruits and vegetables which makes it difficult for him to be healthy. His health has suffered greatly and the worst part is that his immune system is compromised and he gets sick all the time. He had an epsidoe last month when he tried to eat bannans and has been so sick since nothing he eats goes well he has gone down from 160lbs to 133 and keeps losing more weight. I am scared and feeling helpless. Currently he is taken supplements and we are trying clay in his drinks. His diet is mostly organic brown rice potatoes almond milk and occasionally other things such as eggs apple sauce yogurt peanut butter and sprouted bread. We tried gluten free but it made him sick for some reason. I am worried mostly now about immediate remedies. It is important for him to put on some weight and recover a little before we try anything else.. Any suggestions? I would really appreciate it

Seeking Natural Remedies for Son with Eosinophilic Esophagitis

J_stone (Indy, Indiana ) on 05/13/2013

My son is 6 1/2 years old and was diagnosed with Eosinophilic Esophagitis (EE) 3 years ago. We found that he was allergic to corn (which is in everything!). Turns out its all the processed corns such as hgh fructose corn syrup and maltodextrin. When we cut everything out of his diet that Had any type of corn or corn bi product he got better. We didnt think he had it anymore. For some reason it has came back. He was tested and his eosinophils are high again. They put him on Flovent and it is so expensive! Around $500 for a 3 month supply! I can't afford this medication and there is no generic for it. He has so many allergies, seasonal and non-seasonal that the best thing for us would be to go all natural. I welcome all suggestions and would love to hear what has worked for you or your children. Thank you.

Re: Eosinophilic Esophagitis

Leslie (Moorestown, Nj) on 03/19/2012
5 out of 5 stars

My 12yo son had mild EE, but serious abdominal pain just left of and below the navel for a few months. He had some lymphoid nodularity in his terminal ileum on colonoscopy. We have him on zinc l-carnosine (polaprezinc) and soy-free diet. He is amazingly better. Try googling zinc and eosinophils or zinc and gastric mucosa to get a better idea of what zinc does. Best of luck.

Elvira (Barrie, Canada) on 09/08/2011
5 out of 5 stars

I MUST recommend to everyone to visit an OSTEOPATH instead of the chiropractor. Osteopath works with the entire body: bones, muscles as well as internal organs. I am not saying that chiropractors are bad, but this is much, much better. It did miracles for me and practicaly everybody that I recommended it too.

Riboflavin, Folic Acid for Eosinophilia

Greg Lagsdin (San Mateo, Ca 94402) on 04/19/2011
4 out of 5 stars

MCH 24.7, RDW 18, NEUTROPHIL 45, EOSINOPHIL 18 AND ABS EOSINOPHIL 1. 2. The traditonal metheods of treating Eosinophilic esophagitis with pills and a proton pump inhibitor never worked for me I still had swalloing issues if eosinophilia is the result of defective protein marker in the body. Wouldnt it be necessary to jump start the protein system? Riboflavin is the one vitamin thats the building block for all others in the human body. Taking 100 mg of riboflavin daily ive stabalized the erratic bloodwork a leading sign of active eosinophilia. Then adding 400 to 800 mcg of folic acid to the mix to help the rna in the body. Could you have a cure for eosinophilia? GL

Coconut Oil Helping Hypothyroidism/ Fibromyalgia

Jazzdanca59 (Highett, Melbourne, Australia) on 12/20/2010
5 out of 5 stars

I have severe Oesophagitis. Am under care of a Specialist. He told me to give up tomatoes and bread. I didn't believe about the bread, but I have tested it, and he was right! . I occasionally indulge in a slice of healthy grain bread, but have found it's not worth it. What I have found remarkable for it is Coconut oil. It has lots of healthful qualities, (don't believe the propaganda about bad fats). It's a good fat, especially for hypothyroidism. Also, I have recently begun symptoms of Fibromyalgia, which I believe from lots of research ( Dr Low) is caused by extremely high oestrogen/very low progesterone. Oestrogen dominance causes hypothyroidism. I can keep the pain under control with a mix of coconut oil and Turmeric/Boswellia tablets, (which I have to buy from America). This combination will keep me far from any cancer threat as well.

Feedback on Elimination Diet for Eosinophilic Esophagitis

Kpack (Ruston, La) on 12/09/2010
4 out of 5 stars

I am a 33 yo Female diagnosed EE 2 years ago through biopsy. This led me to get skin prick allergy tested and I was shocked to learn that at 31 I had 14 food allergies I had not had in my teens when I was 1st tested. My allergies including wheat, onion, chicken, peanut & green beans comprised about 90% of what I had been eating. My doctor put me on budesinide and the compounding pharmacist made it a suspension liquid that is easier for me than puffing the inhaler and swallowing the medicine. I've been asthmatic so long I totally kept inhaling every time I tried to take it. It was a GOD send!! Dysphagia and nausea was eliminated almost immediately and I only had to take it a week or 2. Now I just take it as needed.

Elimination diet helped with alot of my symptoms- no more headaches (Daily, debilitating stress headaches $thousands of dollars in meds, MRI's and testing only to find no known cause and was on Lortab 10's 2x a day just so I could hold a job), less asthma, less fatigue, less anxiety and also it increased the range of motion in my neck by reducing the inflammation in my neck and shoulders. Before I felt so bad all of the time I didn't realize how inflexible I had gotten. My Dr.s just kept saying exercise more, that I was getting older and was out of shape. :(

I still have insomnia, anxiety, IBS symptoms, occasional dysphagia and I am always bloated with water retention- I mean BAD bloated whether I am taking the steroids or not. It hurts to sit for more than an hour because I'm so bloated with water. After 2 years on elimination diet- my food allergies have mysteriously disappeared as quickly as they came. I only have a slight allergy to peanuts, but still have EE symptoms because I have many inhaled allergies like pollen and dustmites- but I have always had those allergies. My Dr.s don't know what has reversed my allergies (Lord knows it wasn't anything they did).

Last year I started eating only organic foods, much more whole foods- no processed stuff (Mainly because processed foods are all made with wheat and things I am allergic to) I wash my fruits and veggies religously and I try to grow a couple of veggies on my patio when I can. That way I know what's on them. My husband is a hunter so we ate mostly meat he killed which is very organic and untreated with antibiotics. I also started eating yogurt pretty regularly because it was convenient for me to pack for lunch since sandwiches were out of the question. I believe that my diet accidentally becoming more probiotic and less antibiotic and that along with getting away from the allergens has helped my intestines heal. This started me reading about leaky gut syndrome. Intestinal wall is damaged- leaks large protein molecules of food you eat across into bloodstream- white blood cells attack that protein and instantly you have food allergies. Before you are identified EE/ or allergic your Dr. may treat the symptoms with antibiotics, anti-inflammatories and antacids all of which further destroy the flora in your GI tract that is thought to protect your guts from leaking and you have a perpetuatal cycle. Stress, processed food diet and antibiotically treated food are also thought to destroy flora in the tract.

So elimination diet made me better- next I decided to start an actual probiotic regimen. 2 weeks in and I am not bloated AT ALL!! Since I've been sick I gained 30-40 Lbs. I felt hungry all the time, I craved sugar, I was exhausted so I didn't excercise and my body was in anaphylactic shock daily for years before I was diagnosed. The day I started elimination diet I was so sleepy for 3 days all I did was sleep. I hadn't taken a nap in almost 5 years my constant adrenaline rush made me too anxious to rest well. It was hard for me to diet because I would eat chicken and whole wheat when I did which was what I was allergic to. I'm still a big girl but Jeans with no bloating and no muffin top is such a blessing for me!!! I'm eager to learn more about the possible probiotic/ EE link and am currently looking into digestive enzymes, but haven't had time to read much about it. Is the probiotic thing anything you have looked into?

Needs Help W/ Natural Remedies for Severe Acid Reflux

Sherri In Bc (Surrey, Bc, Canada) on 12/09/2010
4 out of 5 stars

Our son is 14 1/2 years old and has been dealing with EE for over 4 years. The only thing that has completely stopped the reflux was the elimination diet. He could only eat 9 or 10 food items but at least he could go off his 40mg of Nexium. Unfortunately it wasn't enough nutrient to get him through puberty and baseball so we started the meds again and let him eat what he wants. Currently we have been working with a naturopath who said she could cure him. She actually said those words. I was not happy but it gave our son hope. After the Vega Testing she put him on a strict diet to bring down his candida numbers. After 4.5 weeks we retested. His number for candida went from 9 to 4 and it showed that we could reintroduce many of the foods that he had been denying himself. Unfortunately, if he missed his Nexium pill, even for a couple of hours in the morning, he had reflux. The goal was to get him off the pills and if the beginning stages of the diet didn't help what was the point of reintroducing foods?

She has also sent us to a 'chiropractor' that does visceral manipulation. She 'listen's' to my son's stomach (hands on stomach, eyes closed) and does cranial adjustments to put him 'back in sync'. She has recommended that we see a Constitutional Therapist. At this point we've spent several hundreds, if not a few thousand, searching for a cure for EE. I'm not interested in putting out more money because someone thinks my son has a 'sulphuric' constitution and therefore needs some Essence of Sulphur. So.... He has chosen to stop the diet, go back on the Nexium and live his life. Hopefully the Nexium will continue to work and he will continue to eat most of what he wants. (He cannot eat potatoes! )

We are discouraged and I was hoping that this discussion might be able to direct us to a legitimate 'natural' cure for EE. Sherri

Alternatives Needed Regarding Eosinophilic Esophagitis

Lavoras (Chicago, Il) on 12/06/2010
4 out of 5 stars

Hi my son is 4 and was diagnosed 6 months ago with EE. I am a nurse and I am on the pursuit to find the cure, as physicians dont seem to know too much about this disease. When he was born they told me he had GERD and Colic. After many doctors, they went in did a biopsy and voila we now know what it is. We then did the elimination diet, went back in scoped and no eosinophils, great, however 4 weeks after he was vomiting 10-14 x a day.

Currently I took him off prevacid and I am trying the alternative route (chinese medicine). He is back on all foods due to chinese teas including ginger and we have 1 more week, no vomiting for 2 days and then yesterday only 1x. I must exhaust this avenue before I start pumping him up with steroids, etc. We havent gone down the road of a gtube because he is gaining weight. Let me know if I can help in anyway.

Elimination Diet for 3 Year Old Son With Eosinophilic Esophagitis

Angel (Concord, Nh) on 10/17/2010

My son is almost 3. He was diagnosed with EE over a year ago. Since that time, so much allergy testing has followed. He has many positives including anaphylactic and environmental. A few weeks ago, after being on a limited diet omitting all of the things he tested positive to, he had another scope, only to find that his esophagus is still in tough shape. They are trying one last diet, removing all the common allergens, whether testing positive to it or not. After 6 weeks, another scope will follow. If he doesn't look better, the recommendation and next step from Children's Hospital Boston EE clinic, is to insert a feeding tube and doing an elimination diet, after 2 weeks of oral foods. Has anyone gone this route? Is this scarier for me than it really is? I am looking for input either from parents who have gone this route or parents with children who have the same issues but took other measures. Thanks for all of the information posted so far. Angel

Son Wtih Eosinophilic Esophagitis

Krissi M (Washington, Pa) on 05/21/2010

My son's been diagnosed with this condition after about a year of throwing up and gagging. He does appear to have acid reflux because I observe him closely right before an "episode". We still have no idea what causes it in him, aside from the reflux. They've put him on Pulmicort which is a steriod he swallows. I sure do not like this and want something natural as well. Unfortunately, the common cures for acid reflux are things like cayenne pepper and ACV, and he's not quite old enough to take capsules. I'm afraid also that the course of treatment makes one worse before making them better. My son is three so I feel I cannot do this. Hoping someone else has found something.

Bananas for an Irritated Esophagus

Ed (Heber City, Ut) on 05/01/2010
5 out of 5 stars

When the esophagus is irritated nothing feels good and at night the problem worsens. I tried eating bananas every hour at night it is the only thing that worked. after few days I feel better. I tried all the remedies for four weeks and nothing worked as good as the bananas.

Remedies for Eosinophilic Esophagitis

Khloe (Fresno, Ca) on 11/09/2009
5 out of 5 stars

EOSINOPHILIC ESOPHAGITIS

Try reading about leaky gut. I was diagnosed with EE several years ago after I had a gallbladder surgery, and they overdosed me on antibiotics. Several weeks later, I ended up developing leaky gut syndrome, which I believe is the altrenative medicine's name for the same condition. I could not eat anything without having an allergic reaction, and was down to just lettuce and brown rice and cooked vegetables. The only raw items I was able to eat was lettuce. I also ended up not only being allergic to mostly all food, but became severely chemically sensitive as well. It took me over a year and a half being on probiotics and supplements, mainly Zinc,digestive enzymes, NAC, and l-glutamine to help rebuild my intestines. I also did plenty of colonics and sauna treatments to help detoxify my body. Finding a good naturopath is extremely important. Especially someone who can test you for deficiencies.

When you take antibiotics, it destroys all bacteria, whether good or bad. The good bacteria never have a chance to colonize in the gut unless you replenish by taking probiotics. The bad bacteria end up creating tiny holes in your intestines. When you consume certain foods, the undigested proteins cross the blood barrier through these holes, and cause an allergic reaction.

I currently am on several vitamins and supplements daily, but I am now able to have a wider range of choices to eat from. I recommend also getting an ALCAT test to figure out what foods you may be intolerant to. These foods can be trigger foods, and set you up with a whole host of immune reactions from other seemingly safe foods.

Currently I try to avoid all gluten containing products as well as corn, soy and especially sugar. Try limiting your fruit to only two pieces, and make sure that they are not too sweet. Green apples work well. Get plenty of vitamin D (sunshine, fresh air, and spiritual time, and try to relieve stress through exercise. Stress makes it much worse.

Good Luck.

Naet for Eosinophilic Esophagitis

Angela (Tonasket, WA.) on 08/13/2008
5 out of 5 stars

An eating disorder only recognized since about 30 years ago is called EE for short. It is way under diagnosed, and often mistaken for acid reflux, and even celiac disease. A simple blood test can diagnose celiac disease, but when that comes back negative, you may need to do a scope of the esophagus to do a eosiniphil count. A lot of doctors don't even watch for an elegated count, or know what it means, but that's EE if it is. Basically it means your body is attacking itself bacause of an allergy causing inflamation. The result is coughing, throwing up some or all foods around the time of ingesting an allergen. When there are many allergens, it can cause malnutrition and even death if they can't figure out what to avoid. Not being a skin allergy, the doctor way of diagnosing is faulty at best. The only way I've found to help and we believe now cure it, is a muscle test to know what the allergy is, and then using a proceedure called NAET to permanently cure the allergy. It could be done at home yourself, but as it's not as likely to succeed without a trained professional. Some are better than others too. We found a chiropractor who has been curing people of allergies and allergy related diseases for 15 years. It's not exactly a home cure, but it's so helped us! With people everywhere still saying that EE is incurable, I just want to get it out there that this has been a life saver. Please pass it on.

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