Ehlers-Danlos Syndrome

Most Recent Posts

Proanthocyanidins For Ehlers Danlos Syndrome

Jeff (Daytona Beach, FL) on 04/27/2025
5 out of 5 stars

People with hypermobility EDS are high in MMPs (not sure underlying cause which might not be genetic). This creates weak ecm and leads to weak collagen due to "short chained HA" being created in a high MMP environment. Suggest researching with AI.

Anyways, my suggestion is to try cranberries or wild blueberries regularly as both are great sources of proanthocyanidins (PACs) - aka "condensed tannins", aka procyanidins.

These bind MMPs as do catechins and epicatechins in green tea (catechins and epicatechins are subunits of PACs, which are chains of these).

Recommend food and beverage natural quantities only, and regulars but don't pound, and don't mix too many at once. These MMPs are needed in our systems - people with hypermobility EDS just have too many.

REPLY   1      

Multiple Remedies for Ehlers-Danlos Syndrome

Sharon (IL) on 11/14/2022
5 out of 5 stars

Ehlers-Danlos Syndrome (EDS) ligament laxity hypermobile c0, c1 and c2. ligaments not holding bones in the spine in place:

Try atlas orthogonal. Myles Koby reads bones to measure the spine upper cervical in Maryland EDS society.

7 adult neurosurgeons in the Usa. 1 children in Ann ArborMI, Cormac Maher.

Find excellent Drs through your medicare or insurance for the thoracic and lumbar. Try different dc. only atlas orthogonal for the cervical.

Then take flax seed oil flavored is best.

Turmeric, magnesium and pain and muscle homeopathic remedy by dc in Dallas 972 792 7500 bodylogic.com

Doug Kaufmann dr protocol dr Kam Yuen. Carol everett uk bluerayhealer. 600 ibuprofen. meloxicam 15mg. kerorotac 10 mg. find an internist who deals with hypermobility eds. medical medium bacopa, black walnut wormwood chamomile drops pills piping rock.com melatonin sleep 5htp. dc best to stay out of pain. drive safe. get enough rest. drink chamomile tea. honey vanilla/ eat fresh fruit veg. raw or steam roasted sauted. quinoa beyond meat spicey fav. no meat or sugar. causes pain and inflammation. Lots of stevia and no dairy. unsweetened silk cashew or almond milk. carob missy j's. glutern free jovial pasta. chebe pizza crust. be well. No positional weakness if getting a robotic vacuum cleaner. ask for help if lifting. always get to the dc if in pain or not sleeping without melatonin. Get well or have surgery.

REPLY   4      

Ehlers-Danlos Syndrome and Puberty

Stephanie (Athol, Ma ) on 04/01/2015

I am wondering what things can help a 12 year old boy, I think this, coupled with his puberty, is the cause of severe pain he is currently in. Ortho doctors in the area have no assistance or help. Anyone have knowledge of puberty age Ethers Danlos?
REPLY         



Don't Do Yoga with Ehlers-Danlos Syndrome

Susan Mc (California, US) on 01/25/2015

My daughter has Ehlers-Danlos, we went to see a genetic's doctor and counselor last week, they specifically told her not to do yoga, as with being hyper flexible she could hurt herself. As far as exercise, they said low impact like an elliptical machine, as it does not put stress on the joints.
REPLY   13