Replied By In Pain (Seattle, Wa) on 03/23/2013
Hello: where do you get the cell salts and the Magnesium that helped you? Thank you so much.Replied By In Pain In Seattle (Seattle, Wa) on 03/25/2013
In response to person that mentioned cell salts: I could find the cell salts at the local super supplement stores but it did not come in 12x only 6c or 30c. Since you are experienced using this I wonder if you could give me more advice or refer me to a book or something?Replied By Donna (Anchorage, Ak) on 07/01/2013
To In Pain in Seattle, I am sorry, I have been travelling and haven't looked for awhile. I am still completely pain free 4 months after the laser therapy so I now believe it really did help. In answer to the cell salts, go ahead and take the 30C. There is a homeopathic mixture called nerve fix all one word.... It has the ingredients I use plus a few more. I haven't tried it, but since I am pain free now I am not even using the salts. There are some interesting articles on B12 and B1 for TN. I still take my oils, magnesium and B12. I will try to look at this site more often...Replied By Pain In Seattle (Seattle, Wa) on 07/17/2013
Hi Donna: please continue to check back and let us know how you are with your trigeminal neuralgia (TN). I am researching the Laser Med treatment center in S. Carolina but also have ordered the Cell Salts too. I have also been going to an upper cervical chiropractor only recently. So far my pain has been increasing, with the chiropractor but it has been only 2 adjustments. Just took the cell salts. Can't believe the pain and I am on 600 mg of Tegretol. Must go to another Neurologist too.
Well anyway, I know that remissions of trigeminal neuralgia can make one think that certain remedies work and others don't so it is hard. I tried some Biogetica.com homeopathic stuff for TN and it worked for 2 years but now does not. So I pray your cell salts help me, itleast so I can try the Upper Cervical Chiropractor long enough to give it a fair try.
Going across the country, blindly, to the LaserMed Center is a hard decision. With the treatment costing $5600 and plane fare and hotel fare and everything else, we are looking at $7000 or more for the 3 weeks treatment. And it could be something that only works for a short time. So I am still deliberating on this. I have had trigeminal neuralgia for 5 1/2 years but the first couple of years things seemed to work so much better than now.
So don't forget, keep us informed about the LaserMed Surgery.
My warning, though, don't go to a chiropractor for their LaserMed treatments. After I tried one, stupidly, it has caused me much more pain and now I am in this situation. The LaserMed center told me these kind of treatments at the chiropractor, using the Laser on only the pain paths, can cause more pain. Well of course, my personal experience tells me that now. I wish someone had warned me. LaserMed in S. Carolina, I believe, works on a different principle.
Replied By Pain In Seattle (Seattle, Wa) on 07/17/2013
Dear Donna: I kept searching for the cell salts that you mentioned in your blog.
Since the laser treatment at a regular chiropractor, my condition has worsened about 80% or so; it has been 3 weeks and I seem to have it triggered by long noxious odors like bleach, burned gasoline, insecticides, etc. Well each time it gives me episode of horrible pain that lasts for 15 hours or so. This time I also found the cell salts that I ordered in my cupboard (Last night) and tried it. After 30 minutes, the pain went away. I had to do it again, 2 hours later, but then the pain went away. I slept and until the pain came back, took it again, as the company clearly explains to, and the pain went away. I have not had any pain now for 13 hours and if I get the smaller shocks, (as I have been even with the Tegretol for the past wks) I will take it again, but if not, I will assume that my body is healing and balancing itself. One of your cell salts mentions how it heals and balances inflamed tissue, which I think is what happened at the regular Chiropractor, With this K-Laser treatment.
Let me clarify, this K-Laser is about $4000, and my naturopath mentions that they teach the awareness of it for back aches or muscle pain.
Your mixture was nothing short of miraculous for me and the company obviously is very, very generous with their information. I have learned alot and will always have these cell salts on hand. thank you so much. I am early in the use of them, but I will keep this group informed. I am still going to continue to try the upper cervical chiropractor too.
Replied By Pain In Seattle (Washington) on 07/26/2013
Hi. Bless you Donna for sharing with us the information about Cell Salts and how they helped you.
I am only 2 wks into the Upper Cervical chiropractor and about 10 days using the cell salts. For some days I have no shocks, for other days, I have 2-3 tiny shocks a day. Big improvement over the agony of episodes that wanted me to end it all sometimes.
Most of the time I go to the upper cervical chiropractor, I don't even need adjustments--unless I have been exposed to something that causes a subluxation of my "atlas" bone in the neck. I can see how I will be symptom free almost every day, very soon.
I strongly recommend the cell salts and the upper cervical chiropractor. It takes an average of 3 months for most people to respond with a 90% symptom free time, with the upper cervical chiropractor, so needing some help with pain (in my case) is advisory. The cell salts help greatly with this.
I also wanted to add something about the LaserMed center in south Carolina. It works with healing the Trigeminal Nerve and has something to do with the DNA in the nerve. I have closely followed the research of doctors all over the world, coming to Florida to do research on TN and they are also thinking it has something to do with the DNA in the nerve; why do some people have such pain and others do not? They believe they will have a cure in less than 8 years.
BUT until then, Upper Cervical Chiropractor has shown to be an overwhelming success with people who have TN. (90% of the time. ) But you do have to go and get checked every 3 -6 months after you are symptom free to make sure no new subluxations that can fray those nerves, occur.
Replied By Louwrence (Rustenburg) on 07/26/2013
Pain in Seatle, Please look up on the net Sharry Edwards (Bioacoustics) plus Bob Beck Protocol & maybe that is what you need to treat your condition.Replied By Donna (Alaska) on 08/27/2013
Reply to Pain in Seattle.... I'm sorry I have not followed this thread for awhile. I was very happy to hear that the cell salts have really helped you. I just wrote to another person today who has written about TN. I have been absolutely pain free for 6 months now. I am back in Europe, something I thought would be impossible a year ago. I rarely take the cell salts (as you wrote, you only take them when you have symptoms), but I never fail taking the magnesium, sublingual B12 and oil - coconut or olive oil, 2-3 T. Daily. I am still convinced the laser treatment took it completely away. I tried upper cervical twice, but fear it triggered it again. I kind of believe it really would help to continue it, but am nervous to try it now... Let sleeping dogs lie! Anyway, I am again living completely normally, and even without fear. The big thing about the lasermed center is the price. I don't know why insurance won't at least help on it. But I also know from experience that these natural measures made it so I could live with it. Of course, I am thankful to have no symptoms now. I'll try to keep following along... and I'd love to hear how you are doing.Replied By Donna (Alaska) on 10/08/2013
Just checking in again. I am now 7 months pain free. I had my first VERY MINOR TWITCHES in 6 1/2 months, took cell salts, and no more twitches. I still do sublingual B12 and magnesium. To Pain in Seattle, I sincerely hope the salts are still helping you. I do think they are miraculous. Are you still having the horrible pains since you started the salts? Are you still considering LaserMed? If you want to email me directly, I would be glad to give you my email address. It is donna.j(at)seznam(dot)cz. I would be glad to hear from you (or anyone else still suffering).Replied By David Gruesbeck (Alma, Michigan) on 11/04/2013
I have tried Colloidal Silver, not much help. My family Dr put me on Time Release Tegretol 400mg. No Help.
He referred me to a Neurologist at MSU. That doctor gave me same drug, just lower dose, (200mg) but x3 morning night. BAD Deal!!! Horrible!
So, MSU doctor switched me to Belcofen (bell+clow+fen) 10 mg 3 times a day - Praise God! Whew! It isn't totaly perfect as I once in awhile have a rough time getting pills down in morning.
I am thinking I may have to increase 5mg, but won't unless under Dr order.
I want to find something nature gives us to fix it. Tired of just more drugs.
The one person said Gabapentin. I take 1200mg twice daily, but that is for the Diabetic Neuropathy.
If anyone has had diabetic Neuropathy, they know it is horrible painful! Again, Nervous system.
Diabetes is taking its toll on me, my last A1C was 4.9, just to let some know, I do take it seriously.
My highest A1C was 6.8 because of an infection.
The best way I can describe TN to people is, take two wires from a AC outlet and stick it to your face!
Replied By Pat (Washington) on 11/17/2013
Dear Donna:
you had gone to the LaserMed Center and went about 7 months with no symptoms. then you started feeling some minor symptoms. YOu went back on the cell salts (good choice) but I wanted to tell you that when I called LaserMed they told me once in a great rare time, a patient will have to have the treatment twice. So don't lose your hope about it curing you for life.
Keep in touch and let us know how you are doing.
Pat
Replied By Marie (Seattle, Wa) on 05/24/2014
Re: Trigeminal Neuralgia Treatment.? Help me please. What are these cell salts you are referring too? Recently diagnosed and suffering. Willing to try anything :(Replied By Donna From Alaska (Europe) on 05/27/2014
Hello Marie, I am so sorry to hear you have been diagnosed with TN. This site has helped me a lot and I am in touch with some who have tried my 'formula', which I have basically developed from reading different forums and trial and error. I have been pain free for 16 months since going to the laser center in South Carolina, and though I definitely feel it has played a role in my cure, I am not advertising for it. Some have not been helped. But what I strongly recommend is some serious B12 therapy now, shots if you vacant get them and sublingual B12 5000-10000 mcg of methylcobalamin. You really can't overdose on it. Also coconut oil, fish oil, omega oils....you need good fats. Also a lot of magnesium...I take 1000 mg daily of magnesium with SRT. And it totally believe in cell salts, also known as homeopathic cell salts....KaliPhos, FerPhos, MagPhos and CalcPhos. A health food store or naturopath can help you find them. A mixture of four of each in a bottle of water and sipped throughout the day. If you would like to write me my email address is [email protected]Replied By Kristin (Germany) on 09/16/2014
Have to be careful with Schuessler Salts, only 3 can be combined at a time, but can be taken 3 to 6 times a day.Replied By Tamika (Dallas Tx) on 12/21/2014
Hi my brother is suffering really bad from Trigeminal Neualgia he is in so much pain - has anyone ever tried Electroacupuncture? I saw this online and will take him for a treatment. I will also start the B12, Magnesium and Fish Oil that's recommeneded here- please offer anymore advice if you can - he will be here tomorrow and I want to make sure I'm fully prepared to help him. Thanks!Replied By Donna (Alaska, US) on 12/21/2014
Hello Tamika, I am so sorry about your brother. Definitely try the cell salts too...I have had quite a bit of feedback on them, a great help if not a cure. I am still pain free. Let me know about the electro acupuncture....DonnaReplied By Steve (Nevada, US) on 12/22/2014
I think the electro-acupuncture would be helpful. Also have him check out the supplement GABA which is known to calm down nerve pain and muscle pain. Cold laser therapy, EFT (emotional freedom technique) and energy healing are also worth exploring as they have a good track record for relieving pain as well.Replied By Brittany (Canada) on 03/22/2015
Hello, after suffering for about 7 years amd trying all western medical medicine had to offer including 5 different surgeries, I had micro vascular decompression done which worked for about 4 years. Now it's started to occur in the same way on the other side. I can not imagine doing this again. Can you ball park the cost for the laser? Thanks so muchReplied By Donna (Alaska) on 03/22/2015
I'm so sorry to hear yours has returned. I'm two years pain free now. The laser cost about 7,000 dollars. I'm ambiguous now about knowing if that was what really 'cured' me...I've been in touch with some who hasn't had such good results. I still attribute my 'success' to the multiple things I was doing. I believe I would still consider the laser if mine returns, which I hope and pray it doesn't. I am consistent about doing the magnesium and B12...and hope that will keep my nerves healthy enough to never get TN again. You can email me if you want more info or google TN laser S. Carolina and you will find it. I do wish you speedy help...the sooner the better.Replied By Prioris (Fl) on 03/22/2015
Have you considered that your neuralgia could be caused by an infection like herpes zoster that infects the nerves ?
I have occipital neuralgia and that is what is causing my neuralgia. This isn't something a doctor can actually prove either. I don't experience shingles outbreak on my skin either. Just tingling. I have a highly active immune system.
Replied By Bessie (Pa) on 10/25/2015
Donna, how did you discovered those things/dosages would be helpful? Was it a boom, article or doctor? My stepmom has TN and the medicine is not working. We're desperate for a solution! Your method is worth a shot. Just wondering how you came to it because everyone's body is different. We want to make sure to try something that will safely help her. Thanks!Replied By Donna (Alaska) on 10/27/2015
Dear Bessie, It's really hard to say. I did a lot of research after getting my first ray of hope/help from homeopathy. My naturopath prescribed the B12, coconut oil, I read about magnesium, and experimented with the cell salts (because they are related to homeopathy). And then did the laser. But I am in touch with a few people and none have had the results I've had... so it's hard to really know what helped me. I was so confident about all these things because of still being 100% pain free but no one else I am in touch with is. I don't know if they are doing all these things that I did. Everyone's body is different...
As I have written before, I still do the coconut oil, magnesium and B12. I use cell salts occasionally, but not for TN now, but for other things. A lot of it is just research and looking for anything that might help...I don't know how helpful this is to you. Please feel free to email me....I can send you some of the sites I have looked at and some of the things I've researched. I hardly look now as I don't have any symptoms whatsoever. So I really hope that you can find some help for your mother. It is a dreadful condition. Donna
Replied By Susan (Fullerton ) on 01/02/2016
Hi! Question: What are Kali Phos, Mag Phos, Cal Phos, Fer Phos? Does Phos mean phosphate?
EC: Hi Susan,
These are names of Cell Salts, a group of homeopathic remedies made from minerals. Google for more information!
Replied By Imran Ahmad (Lahore, Punjab, Pakistan.) on 03/25/2016
My Dear I am 34 year male. I am involved in Trigeminal Neuralgia disease after a horizontal wisdom tooth extraction. Dear I am very worry to this pain. In my country no proper treatment and I didn't want to do surgery. My pain is on my right side please help me if you have any treatment. Now I am taking pills tegretol and beclofen from last 3 years butt now these tablets are not effective. Kindly help me I'll be thankful to you.Replied By Priscilla Singh (Fiji) on 06/17/2016
My husband is suffering from TN and I am really worried about his condition. Doctors have prescribed medication but he gets only temporary relief and is in a lot of pain.
A homeopathy doctor has recommended that he stops have any dairy products which he has.....still no improvement. Am interested in the cell salts that have been mentioned and hope to get check with my pharmacist today.
We are scheduled to see a neuro specialist next week.
Replied By Donna (Alaska) on 06/18/2016
Dear Priscilla, I am very sorry about your husband's pain. Have you read the input on cold laser treatment? I don't know if it is available where you are. Has the homeopath prescribed any remedies?Replied By Suseeq (Sydney, Australia) on 06/18/2016
My husband had TM. Everything we tried didn't work. Only the oil pulling did.Replied By Constance Klushkan (Yakutat, Alaska) on 11/05/2016
Hi Donna, I Just wanted to say I am from Alaska also and have been suffering from this terrible disease (Trigeminal neuralgia) for the past 12 years. I am grateful for finding the information you provided on this site and am currently taking the regimen you suggested and it is working. I had the microvascular decompression procedure done in 2011 and it didn't work unfortunately. I know these posts are old but, are you still taking the regimen and is it still working for you? Once again thank you for passing the information on it has been a god send.Replied By Donna (Alaska) on 11/08/2016
Dear Constance, thank you for your email. What a coincidence, I lived in Yakutat in 1973! Also for a little while in 1987... It's a beautiful place when the sun shines! Yes, I do continue on this regime, I don't do the cell salts now as I have no pain, but I faithfully continue to B12, magnesium and coconut oil (not as rigidly as I did when in pain). I have been pain free for 3 3/4 years now so I am thankful. I am so glad to hear this regime is helping you... Please feel free to write me through my email address: donna.j(at)seznam.cz. I would love to hear from you.
Donna
