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Kathleen (Los Angeles, Ca) on 01/29/2013
5 out of 5 stars

I suffered from Hemochromatosis and have been having phlebotomies for almost 20 years. In the beginning I was having one pint depleted once a week. Then I got bad so quickly the started drawing two... Yes 2... Pints of blood a WEEK! This went on for over a year. Then once a week for several years.... Until I found ip6 [inositol hexophosphate]. Once I started taking it regularly, I didn't have to have a phlebotomy for 2 years! Not one treatment for two whole years! I stopped taking it for a while and recently started again. I'm having phlebotomies about 3x a year now and I'm happy and I thank God I'm alive! I hope this helps....
REPLY   16      

Replied By Lea (Colorado, US) on 04/19/2015

Hi Kathleen,

Just wondering what brand of IP6 you find most effective? Thank you!

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Replied By Phyllis (Tuscumbia, Alabama) on 08/21/2020

I was just diagnosed this week and my doctor stressed the need for IP6, he also has Hemechromatosis. I just ordered Source Naturals because it's a brand I'm familiar with and trust. I manage an herb shop and my boss is very particular about the products she carries.

Replied By Barbara (Grand Prairie, Texas ) on 03/21/2016

I have hemochromatosis I just found out about 3 months ago, I have had 7 phlebotomy's and the iron levels have not gone down. I bought my first bottle of ip-6 and took my first pill today, I am hoping and praying it works. The doctor has not been terribly helpful, your post gave me hope.
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Replied By Phyllis Sweat (Al) on 08/21/2020

I was just diagnosed myself and my doctor, who also has hemechromatosis, also said that calcium is also important. He also suggested green or black tea.

Replied By Rakaia (Perth) on 04/28/2016

Hi, how much Ip6 did you take each day?
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Replied By Annette (Lubbock, Tx) on 05/12/2016

Hi Barbara - have you gotten your levels checked again since starting the IP6? What brand are you taking?
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Replied By Praveen (India) on 12/04/2017

Did you observe any side effects of IP6? Also is this a natural product or allopathy medicine?
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Replied By Cjuan (Asia) on 11/12/2020

Could someone here pls state the IP6 dosage frequency and the actual dosage... telling us stories and anecdotes about its efficacy won't help, if info on the basic dosage info is absent. Thanks.
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Replied By Sally O. (Kentucky) on 02/01/2021

We are getting IP6 Gold and will take a scoop a day (equal to 8 capsules) which is recommended by the maker for people with hemochromatosis. I've done a lot of research and you want IP6 with inositol in the proper ratio. Most of the brands know the ratio, there is a wide range of options.

Replied By Joyce (Portland Oregon ) on 05/18/2022

I have tried taking IP6 several times and each time it has given me mental issues like brain fog tiredness and has made me very irritable. Has anyone else had this side effect? I wish I could take it for my hemachromatosis but every time I do I regret it.
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Replied By Teresa (Central Texas) on 06/22/2026

Kathleen, do you know which genetic alleles you have? I have an H and a C but not the S. I have been told I was very lucky I don't have the S or double of the other 2. My high ferritin was 702 and found by my oncologist in 2003. No one did anything about it until around 2023 when I had a port put in for phlebotomies although they weren't started until March of 2024 due to medical system juggling doctors and Advantage plans around which left me lost in the shuffle. My last blood test revealed my ferritin and iron were reduced so I didn't have to have a phlebotomy, just a port flush. But my liver enzymes were elevated. I have found a number of my supplements raise liver enzymes. Black cohosh, Red clover, Ashwaganda, beets, and tart cherry were just a few. Some were aimed at lowering my blood pressure. Trying to take care of one problem is exacerbating another. My dr gave me a reference to numerous dieticians. None of them were familiar with dealing with hemochromatosis. My new hematologist was not concerned with my elevated liver enzymes.

I am in the process of playing detective for supplements that negatively impact the liver enzymes.

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Replied By Art (California) on 06/22/2026

Hi Teresa,

Silymarin plus Melatonin may have synergy together for the purpose of lowering elevated liver enzymes. Check with your doctor for approval and supervision for your safety before taking either one or both.

Art

Replied By Teresa (Central Texas) on 06/22/2026

Kathleen, do you know which genetic alleles you have? I have an H and a C but not the S. I have been told I was very lucky I don't have the S or double of the other 2. My high ferritin was 702 and found by my oncologist in 2003. No one did anything about it until around 2023 when I had a port put in for phlebotomies although they weren't started until March of 2024 due to medical system juggling doctors and Advantage plans around which left me lost in the shuffle. My last blood test revealed my ferritin and iron were reduced so I didn't have to have a phlebotomy, just a port flush. But my liver enzymes were elevated. I have found a number of my supplements raise liver enzymes. Black cohosh, Red clover, Ashwaganda, beets, and tart cherry were just a few. Some were aimed at lowering my blood pressure. Trying to take care of one problem is exacerbating another. My dr gave me a reference to numerous dieticians. None of them were familiar with dealing with hemochromatosis. My new hematologist was not concerned with my elevated liver enzymes.

I am in the process of playing detective for supplements that negatively impact the liver enzymes.

REPLY