Replied By Epretty (Charlotte, Nc) on 02/27/2013
Hi, I have a subset of vulvodynia and I am desperate to be healed. I was wondering if the pain and burning you experienced was constant and interferred with your daily activities? Or did you only have pain with sex? Thanks!Replied By Anna (Seattle, Wa) on 03/23/2013
Epretty my vulvodynia started with just pain during sex but then later changed to constant unprovoked pain. After trying many things over many years, the one thing that suddenly stopped the constant pain was this combo.Replied By Sandra (Houston, Tx) on 04/19/2013
So you just take all three at once. Do you take it before or meal or with a meal or just when you have pain?Replied By Bluesky (Orlando, Florida) on 05/23/2013
I tried the Amino Acid Nac, Vitamin C and Spirulina and it worked for me. I had gone to my GYN and she had told me that I was deficient in Vitamin C. When I saw this post, I guessed it had something to do with this so I tried it. Thank you so much for sharing. It has changed my life. I was getting it almost every single week or every other week. So painful! Now, if I forget to take the vitamins everyday, as soon as I feel itching, I now its coming. A couple of hours of taking the vitamins, the itching subsides. As long as I take them everyday, I have not had an episode. Thanks a million.
For all those suffering from this painful condition, try this combination. If it doesn't work, you might have a vitamin deficiency. Ask your doctor to perform blood work to see where you are deficient and try taking those vitamins.
Replied By Anna (Seattle, Washington, Usa) on 06/02/2013
SandrafromHouston, I take it on an empty stomach and besides the vulvodynia I think it also generally makes me feel better.
Bluesky, I think it's really wonderful to hear it worked for you I know two other's on the other forum I used to post on, said it worked for them also. I think many don't try it because they think its a weird combo. I dont' think it's a total cure but I think at least it seems to stop the itching and then burning and like you said if your starting to feel bad it seems to work pretty quickly. That's interesting what your doctor told you about vitamin C I will look into that. Like I said I was given it for getting rid of heavy metals so remember to take a good multi mineral while you're on it. Again, I think it's so wonderful to hear that it helps as I know this condition is hell, take care, Anna
Replied By Sfnative (San Francisco, California) on 06/20/2013
Hi All, I've suffered with Interstitial Cystitis for 20 years, and now the past few years with Vuvodynia and Vulvar Vestibulitis. The burning and rawness is horrible. Doctors have tried everything for a few years now. I have done EVERYTHING!!!!!! IC has been controlled with Botox injections to the Pelvic Floor Muscles, so that is tolerable. But I am on a constant no acid diet, no oxalates, so I'm wondering about the high Vitamin C content in your pills up above. I never, ever eat anything with Vitamin C and haven't for years as it aggravates my bladder and IC. Does anyone have that problem???Replied By Anna (Seattle, Washington, Usa) on 07/02/2013
SFnative you can always just give the combo a try and see how it goes. If you have a lot of increased bladder pain then certainly stop. I know that last year I had a bladder infection and even after it was gone I still had an uncomfortable irritation that felt like it was still there and so took another round of antibiotics but the pain stayed so then I decided to start up the combo and it took it away. I know sometimes the vulvodynia can cause irritation around the urethra and make you "feel" like you have to constanly pee but it's just irritation so not sure if mine was really an IC type situation. You could also try buffered vitamin C as that is less acidic on the system. I know that some berries make my vulvodynia worse but the combo has never bothered me.Replied By Hellen (Romania) on 08/13/2013
Anna from Seattle, Washington, Usa... hello, can you please tell me if you took this combo of NAC 600mg, vitamin C 2000 mg and 3 capsules of Spirulin all at once or did you take it fractioned during the day (like 600 mg vitamin C in the morning and 1 capsule of spirulin and the same at lunch and in the evening, NAC is only 600 mg capsule so that can't be fractioned..) Thanks!Replied By Anna (Washington, Usa) on 08/19/2013
Hi, Hellen from Romania. I take the combo all at once. The NAC 600mgs with vitamin C 2,000mgs and three sprulina tablets all together and on an empty stomach. I also take a multi mineral at a different time of the day as the NAC is good at getting rid of heavy metals like mercury and lead but it can also take zinc and copper out of the body over time... So you need to replace that. Take care, hope this helps, Anna from Seattle.Replied By Leigh (Washington) on 10/28/2013
I have been taking this combo almost everyday for two weeks and have not had any improvement. I know this blog (thanks to Anna for all the information) says this should help within hours, but I wondered if it could take longer the first time. It's starting to feel like the same old exercise in futility. I'm glad this combo is working for some of us with this problem, anyway. I'm considering the amitriptyline/nortriptyline route, which I've been avoiding for years.Replied By Olivia (France) on 04/15/2014
Thank you for finding my first breakthrough - just the the NAC I am getting virtually no symptoms - then when it got a little borderline I added the vit c and spirulina and it is great. Thank you...Replied By Dawn (Pennsylvania) on 06/02/2016
My doctor referred me to another ob-gyn group that performed vaginal laser surgery on me last week. I will go back again in 6 weeks and then 6 weeks after that. Then once a year. It is supposed to "cure" it. It is expensive - $ 500 each time but I am desperate and willing to try it. I do feel some relief after the first procedure. Will keep you all posted.Replied By Tems (United Kingdom ) on 02/17/2017
My 12 year old daughter has vulvodynia it's unbearably to watch her in so much pain. The Dr's have been useless and she has missed 4 weeks of school. I diagnosed her myself online as all the tests came back negative. Today she got prescribed antidepressants but they take time to work and school starts next week do I will see my pharmacist about these vitamin combo's for girls her age. Any advice would be appreciated.Replied By Steve (Nv) on 02/17/2017
I've seen some pretty amazing things happen with energy healing and EFT. There are free EFT videos on youtube to coach you through using EFT for pain (maybe not specifically vulvodina but all the EFT techniques will work the same for pain issues). Should be very helpful.Replied By Rsw (Oh) on 02/18/2017
I would look into Perrin's Creme Complete for possible topical relief. There is a Yahoo Low Oxalate Group online with very knowledgeable people and researchers who can help you with a low oxalate diet that has proven to be very beneficial for relief. They have links to a Vulvadynia Society that has specific supplements and protocols for dealing with this problem. I hope she can find some relief soon.Replied By Anna (Washington) on 04/11/2017
Hi Tems, sorry to hear about your daughter having this awful problem. One thing I would say about these supplements is they are very liver supportive in helping your liver detox and now days with so many toxins in our environment and food maybe this is the reason it has worked for me and some other women. Also I have read NAC, vit. C and spirulina all have anti inflammatory properties along with turmeric and are also good for helping with supporting liver detoxification. I also limit my exposure to things that come in contact with the skin down there like detergents making sure they are hypoallergenic and fragrance free and I don't use soap down there just warm water also a big one for me is using toilet paper made with out using chlorine bleach so I always take my own toilet paper with me. I wonder if your daughter also has sensitive skin in general as I do and this combo helps my skin look and feel better on my face, which seemed to get more sensitive when all this stuff started for me also I was also very sensitive to chemicals in my environment as my symptoms of not just vulvodynia but sore eyes and throat would flare in places like department stores or around any type of chemical fumes. I would really give it a try as the drugs have a lot of side effects like tiredness and weight gain. Better to try the simple things and least harmful things first before you move on to more desperate measures. Also generally I would try to go organic foods and limit her exposure to toxins in her environment. One very good test I read once on whether someone has vulvodynia or just some kind of infection down there is that vulvodynia sufferers usually have other symptoms going on whereas someone with a difficult infection just has problems in the vulva, vaginal area. Just something to think about. Hope she finds relief soon.Replied By Nelsi (New York) on 07/14/2017
I just started feeling these symptoms the burning was out of control all my lab test kept coming back fine GYN exams too even had a sonogram everything fine. Came across your suggestions bought this combo last night and this morning I already feel the difference!!! I also use cold compresses that helps as well. I can't thank you enough for sharing I hope to continue to feel better. Seriously forever thankful!Replied By Danish Girl (Appleton Wi) on 07/20/2017
My 29 year old daughter is the one who is suffering from vulvodynia and has seen a number of doctors over the past year and a specialist in vulvodynia who has prescribed a diazepam and gabapentin compounded cream which really hasn't been working. She just recently started seeing a pelvic floor therapist weekly where she is having my daughter use a dilator every night to help stretch the area plus the weekly therapy sessions. I came across your blog and purchased the combo. Not sure if the spirulina I purchased is a quality product because I bought it at Walmart which is the Spring Valley brand. I started her gradually with the NAC and 1000 mg vitamin C and she is also taking B-complex because she has a lot of sensitivities and I want to make sure she can tolerate the pills. I am concerned about stomach upset and diarrhea with the Vitamin C so I will have her gradually increase the vitamin C to 2000 mg then add the spirulina to the mix. I am curious she has been taking a multi vitamin so can she continue with that for the multi mineral or should be taking something completely different then the multi vitamin. She hates taking pills so this needs to be gradual steps vs all at once. I am hoping even with the NAC and part of the Vitamin C she will show some improvement so she will be more open to taking the pills. Crossing by fingers for that to occur. I am curious to your thoughts on this.Replied By Chrissy (India) on 09/07/2017
Hello I have just realized I have what I think is vulvodynia.
when I have sexual intercourse it is very painful around the back entrance of my vulva, like nerve endings are burning/
I am loooking for natural cures... homeopathic or ayurveda .
Replied By Kathy (Atlanta, Ga.) on 01/26/2018
After about 3 years of lots of pain, burning, and pressure, I came across your remedy and trying so many of natural products for these years I could not get anything that would really help me. I started out with a UTI and antibotics did not help, it just would come back. I was miserable all the time and in pain and hurting. Your remedy is the first one that is actually working for me. I have been on it for about a week and no more pain or burning so far. I still pee too frequently and do not know what is causing that, but just getting rid of the burning and pain has been a big help. I still do not know really what is the real problem but continue to research and hope to find out eventually so I can get my life back. Thanks so much Anna, for sharing.Replied By Anna V (Washington State Usa) on 01/27/2018
Kathy of Atlanta, that is really great to hear. I know it seems that this combo doesn't help everyone but even just a few who are suffering might get relief it makes me feel good because this is such a terrible condition to be in. Only another women with this condition can really understand what it's really like to suffer this way. By the way, the frequent peeing for me was a big issue also when I had the vulva pain but it went away and nowadays I know when I am getting worse because I start the peeing again and then I make sure I take the combo.Replied By Kathy S. (Atlanta) on 02/10/2018
Anna thanks for your reply and could you tell me how long you stayed on the combo? I have been on it for 3 weeks or more now and did not know how long to continue doing it. Also about how long did it take you go stop frequent peeing, as I am still doing lots of that and it keeps me up at night alot and breaking up my sleep. Thanks again.Replied By Breza (Canada) on 02/15/2018
For Vulvodinia:
Check oxalic acid level in your body (oxalates). Had a same problem for few years and naturopath discovered very high level of Mg oxalates. Frequent urination, itchy genital area, burning, increased discharge, genital tissue was cut with crystals ... Cherry juice helps, avoid food rich with oxalic acid
Replied By Kathy (Atlanta, Ga.) on 03/11/2018
Thanks for your comment Breza and the cherry did not help but I still have burning that came back recenty and constant going to the bathroom day and night. I recently got on baking soda and that has helped the burning a good bit but not the bathroom runs day and night, but still trying to find what to do for that. My PH has been checked and that is very good at this time. Thanks for your help. KathyReplied By Leena (Riverside, Ca) on 10/22/2018
Please give your daughter d-mannose filled up to level with the childrens Tylenol measurement scoop. Fill it up to 10ml mark and 1 capsule of 400mg solaray cranberry 3x a day. My daughter had the same thing she got better with this combo.Replied By connie (Alberta) on 02/03/2021
How long did you have to take this before you noticed a difference? I have been taking for 2 months now and have not noticed any relief..